Author | Lightnews

ALS News Today @alsnewstoday.bsky.social · 22h

What’s your take?: https://bit.ly/4kpEbpV

#ALSDiagnosis #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 1d

New Study: https://bit.ly/4ooYDKo

Researchers are taking a close look at how the TDP-43 protein shifts inside motor neurons. In most people living with ALS, this protein moves out of the nucleus and into the surrounding cell space.

#ALS #Bionews #ALSNewsToday #ALSResearch #TDP43 #ALSCommunity

Magnifying glass examines a neuron, highlighting TDP-43 abnormalities possibly linked to motor neuron loss in ALS.

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ALS News Today @alsnewstoday.bsky.social · 1d

Connect through your story: https://bit.ly/3WCTEJQ

#ALSNewsToday #Bionews #ALSCommunity #ALSAwareness #LivingWithALS #ALSCaregivers #EndALS #ALSResearch #ALSSupport #RareDiseaseCommunity

A diverse group of people seated in a circle, discussing ALS. Text asks about comfort in discussing ALS and any untouchable topics.

ALS News Today @alsnewstoday.bsky.social · 2d

Honoring the heart behind the care: https://bit.ly/4nCX2PY

Read their stories. Learn. Share. Honor. Register for our e-newsletter to stay updated throughout the month @ link!

#ALSNewsToday #Bionews

"Caregivers Month: Honoring the Heart Behind the Care. Illustrated hands cradle a heart, celebrating caregivers' dedication."

ALS News Today @alsnewstoday.bsky.social · 4d

Drop your thoughts: https://bit.ly/3ZYoEpJ

#ALS #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 5d

Feel the Aggie Spirit: https://bit.ly/4oErEBk

Former Texas A&M football player Chris Larkin is leading Aggieland Against ALS, a powerful community festival and record-breaking Ice Bucket Challenge at Aggie Park.

#ALSNewsToday #ALS #AggieSpirit #AggielandAgainstALS #FightALS #Bionews

Text about Chris Larkin leading an Aggieland ALS event, featuring a world record Ice Bucket Challenge, 5K run, and community activities.

ALS News Today @alsnewstoday.bsky.social · 7d

Exploring new treatment paths: https://bit.ly/4qDHlL8

A new Italian clinical trial has officially enrolled its first participant to test a cannabis-based medicine for managing symptoms in people with ALS, Parkinson’s, and Alzheimer’s.

#ALSNewsToday #ALSResearch #MedicalCannabis #ALS #Bionews

Graphic summarizing a trial involving Avextra's cannabis-based medicine for ALS, Parkinson’s, Alzheimer’s. It highlights the potential benefits of full-spectrum extract and mentions Avextra's development of a standardized extract.

ALS News Today @alsnewstoday.bsky.social · 7d

Understand the Cost Burden: https://bit.ly/47KiZYl

A new @alsassociation.bsky.social study found that Medicare users with ALS face more than $47,000 in medical costs in the first year after diagnosis, over three times the average Medicare user.

#ALSNewsToday #ALS #ALSCare #ALSAssociation #Bionews

Graphic highlighting ALS care costs: ALS patients in the U.S. spend over $47,000 in the first year, with hospital care as the largest expense.

ALS News Today @alsnewstoday.bsky.social · 7d

Share with us: https://bit.ly/41G6b1R

#ALS #EndALS #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 9d

Explore promising progress: https://bit.ly/3WppaLi

A new study suggests a simple blood test may one day help diagnose ALS faster and even predict how quickly it will progress.

#ALSResearch #ALSNewsToday #ALSBiomarker #NeurodegenerativeDisease #Bionews

Illustration of a hand holding a blood vial, with a cross-section of a blood vessel showing DNA fragments. Text highlights a blood test for diagnosing and predicting ALS progression.

ALS News Today @alsnewstoday.bsky.social · 11d

Explore the new dashboard: https://bit.ly/47m2X5F

The ALS Association has launched a free interactive data tool offering access to five years of real-world ALS survey data from over 4,000 patients and caregivers.

#ALS #ALSNewsToday #ALSResearch #ALSCommunity #ALSAwareness #PatientData #Bionews

Megaphone icon with text about the ALS Association launching the ALS Focus Data Dashboard, a tool for exploring ALS data to improve care and policy.

ALS News Today @alsnewstoday.bsky.social · 11d

Post your experience: https://bit.ly/44fduOt

#ALSDiagnosis #ALSNewsToday #Bionews

ALS News Today @alsnewstoday.bsky.social · 12d

Share your experience: https://bit.ly/42XnrQW

Many ALS patients make changes to their diet, whether it be to improve their overall nutrition or accommodate an ALS-related issue with eating.

What changes have you made?

#ALS #ALSDiet #NutritionAndALS #ALSResearch #ALSNewsToday #Bionews

ALS diet recommendations: Eat polyunsaturated fats, high fiber, polyphenols, resveratrols, high-calorie foods. Avoid: glutamates, some mushrooms, nuts, proteins, seafood, sweets.

ALS News Today @alsnewstoday.bsky.social · 13d

See what’s changing: https://bit.ly/43grTdR

Researchers have uncovered blood and spinal fluid biomarkers that could help track ALS progression and treatment response.

#ALS #ALSNewsToday #ALSResearch #ALSCommunity #NeuroScience #Bionews