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Maybe possibly a Crow

@chaotickestrel.bsky.social

210 followers 600 following 460 posts

Chaos Goblin 24/7 AutiHD, queer, and disabled. Any pronouns. Swiss army knife being for Hollow Crow Studios. Kindness for kindnesses sake. Always. "Be the weeds, Grow in concrete in defiance of those who would thwart you" https://hollowcrow.carrd.co/

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Maybe possibly a Crow @chaotickestrel.bsky.social · 1d

Yeah, one of my passion project things I do is advocacy docs for stuff. I think thus far I've done MCAS, POTs, and EDS but I plan to do a bunch of others eventually, they have facts and resource links and stuff to make the self advocacy process easier.

It's super frustrating. I'll manage, but ugh.

Maybe possibly a Crow @chaotickestrel.bsky.social · 1d

I actually wrote up a self advocacy document about MCAS for others to use a while back, so I know a fair bit about it. Right now the running theories im working with from people who experience them/doctors, are Lupus, Sjogrens, or MCAS. But as of yet nobody has been able to give me a firm answer.

Maybe possibly a Crow @chaotickestrel.bsky.social · 1d

And by flu like I mean like... muscle aches , headache, nausea, gastro cramps etc. That are all worse than my baseline... Not like... coughing and sneezing.

Maybe possibly a Crow @chaotickestrel.bsky.social · 1d

Not technically. Infact most of my allergic reactions aren't histamine based, I basically just get like.. a bad flu-like thing for a week or so. Except for sulfa based meds. Those tank my white blood cells, turn my whole body into a swollen mess, and try to end me.

Reposted by Maybe possibly a Crow

Thierry St-Laurent Dion @tstld.bsky.social · 1d

Sketch of a crow

Graphite pencils on paper
5x7

#art #birds #nature

Sketch of a crow made with graphite pencils on paper.

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Reposted by Maybe possibly a Crow

Laurel Gale @laurelgale.bsky.social · 1d

Wild turkeys are fascinating birds. They're bald heads are strange, but the colors are quite lovely.

#birds #WildlifeWednesday #nature #wildlife 📷

A close-up photograph of a wild turkey, showing only the head and upper body, against a soft background of out-of-focus wild grasses. The turkey's head is pink and blue.

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Maybe possibly a Crow @chaotickestrel.bsky.social · 1d

Like I get weird rashes on my face at random. My bones and muscles always hurt. I break out in hives for no reason. Im constantly in pain and nauseated. Among many other problems. Why would *any* of that spell "happy my test results came back with no answer." I don't understand the thought process.

Maybe possibly a Crow @chaotickestrel.bsky.social · 1d

Without an actual *name* to whatever it is I can't treat it, research it, or find anybody else living with whatever is wrong with me. Im in this limbo of *knowing* something is wrong and not having a name to put to it. And then doctors act like I should be happy when my test results are normal.

Maybe possibly a Crow @chaotickestrel.bsky.social · 1d

Trying to get a proper diagnosis for any autoimmune disease is honestly fucking insane. I have had four doctors "diagnose" me with an "unidentified autoimmune disorder" now, *four* which is beyond unhelpful. Im so frustrated.

Maybe possibly a Crow @chaotickestrel.bsky.social · 3d

Daylight savings coupled with the weather/season change has my entire body in a state. Im exhausted and wide awake simultaneously. All of my joints feel like somebody used them for storing ice picks. My head has a goblin or gremlin or something in it with a drum set just banging away. Ugh.

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Maybe possibly a Crow @chaotickestrel.bsky.social · 4d

I would really like it if my body would stop inverting my sleep cycle every two weeks. I, without fail, will sleep from 2200ish to 6ish for two weeks straight and then suddenly be awake for 36 hours straight. And then sleep from 8ish to 1600ish for two weeks on repeat no matter what I try. 🙃🙄

Maybe possibly a Crow @chaotickestrel.bsky.social · 7d

Please, for the love of the universe. Do not take medical advice from chatgpt. I don't feel like that sentence should exist. I don't feel like I should ever have to feel like that's something that needs said. And yet here we are. Again.
Do not take medical advice from AI Chatbots.
for fucks sake.

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Maybe possibly a Crow @chaotickestrel.bsky.social · 7d

I need to be up to do morning animal/ farm chores in roughly three hours but I am currently dealing with sleep preventing nausea and it is extremely frustrating.

Maybe possibly a Crow @chaotickestrel.bsky.social · 7d

I'm very much in a "The world is frankly horrific and stressful for the most part so if decorating for Christmas on November 1st or before even is something that brings you even the smallest amount of joy, do it. Please." Mindset about people who start celebrating "too early"

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Reposted by Maybe possibly a Crow

Dr. Ashley | Panicked Foodie @panickedfoodie.bsky.social · 10d

I will never understand the comments across social media that are cheering on the potential starvation of roughly 42 million people that depend on SNAP.

What a vile country.

NO ONE deserves to be hungry.

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Maybe possibly a Crow @chaotickestrel.bsky.social · 10d

I somehow pulled a muscle in my neck and one in my arm. I do not know how I managed this. But tilting or turning my head is not a comfortable experience at the moment. (I dislocate my elbow all the time, so the arm thing is less of an annoyance)

Maybe possibly a Crow @chaotickestrel.bsky.social · 10d

Also if anybody in my area (nemaha county Nebraska&surrounding areas) needs sweet treats (or food in general) given the SNAP situation, my inbox is open & I would be more than happy to share. (This also applies to people outside my area for food that ships well, ill figure it out if you need food)

Maybe possibly a Crow @chaotickestrel.bsky.social · 10d

I think im gonna start some of my holiday baking this week. Might make butter mints. Or potato candy... or almond peppermint bark... I may have to take a survey of all the people who eat my holiday baked goods/candies and determine where to start based on feedback 😅😂

Maybe possibly a Crow @chaotickestrel.bsky.social · 10d

Adding another book to my "highly recommend" list. Mandrake Manor by JP Rindfleisch IX. It is a *beautifully crafted* fantasy story about evil HOAs, found family, and caring for & protecting your community. There's queer representation, humor, witchcraft, werewolves, and more. It's stunning. 10/10

Maybe possibly a Crow @chaotickestrel.bsky.social · 10d

Yay!!

Maybe possibly a Crow @chaotickestrel.bsky.social · 10d

This. Very much this.

lee @leehtml.bsky.social · 11d

i’m not a woman but i AM an oldest daughter hope this helps

Maybe possibly a Crow @chaotickestrel.bsky.social · 11d

I called him "thumbs" for the first week after I found him and his littermates on my porch, and then one day while doing a paw check I started talking about his "extra digits" and it stuck. 😅😂

Maybe possibly a Crow @chaotickestrel.bsky.social · 11d

My best friend to my polydactyl cat, Digit. "You think you're better than me just because you have thumbs" (this comment was followed by him going, "Wait..." And then muttering to himself that he *also* has thumbs)
I think of that every time I check Digits paws.

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Reposted by Maybe possibly a Crow

David Kaib @davidkaib.bsky.social · 11d

Every one deserves to eat. It’s that simple.

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