Lightnews — Scholar-powered news

Inflammatory Arthritis UK @inflamarthritis.bsky.social · 15d

“How do you even describe pain?” 🤔
New Inflammatory! episode out now, we talk invisible pain, flare vs. dull aches, fatigue, coping tools & finding community.

🎧 Listen here: tinyurl.com/38duw842
Or watch on YouTube here: tinyurl.com/27skps9x

#ChronicPain #InvisibleIllness #ArthritisAwareness

1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · 18d

💥 How painful is inflammatory arthritis? 🤔
This Friday on Inflammatory! we’re diving into the invisible pain that comes with IA.
✨ Does pain change your mood?
✨ What are your go-to tips for coping?
Drop a comment below & join the conversation.
🎧 Full episode out Friday + YouTube!
#Inflammatory

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · 22d

This week on Inflammatory! 🎙️ Sarah Yorke shares her journey with RA, from being dismissed as “too young” to ways to take control through rest, movement & self-advocacy.
RA is unpredictable, but no one has to face it alone. 💙
Listen here tinyurl.com/34sm8t7h
Watch on YouTube tinyurl.com/5ftp47d3

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Sep 4

Want the latest on our podcast episodes, updates in inflammatory arthritis, new research, events, and more? 📰🎙️

👉 Sign up to our newsletter and be the first to know what’s happening in the IA community.

🔗 tinyurl.com/yc4jj93b

#InflammatoryPodcast #ArthritisAwareness #PodcastCommunity #IAnews

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 27

📢 The British Society for Rheumatology is working on a brand-new life-course clinical guideline for Juvenile Idiopathic Arthritis (JIA). People with lived experience we need your help! Share what matters most by completing our short survey before 16 Sept.

🔗 tinyurl.com/3pxu3mdu

#JIA #Rheumatology

British Society for Rheumatology - JIA Guideline Scope for patients

tinyurl.com

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 26

🐾 Happy #InternationalDogDay! 🐶✨
Dogs just know when you’re not at your best, flare, fatigue, or a rough day. Their cuddles & unconditional love are the best medicine. 💕

Here’s Debbie’s pup Whiskey 🐾, who we’ve mentioned on the Inflammatory! podcast. Listen here: tinyurl.com/yck6huy7

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 18

One of the hardest parts of living with Inflammatory Arthritis (IA) is explaining it. It’s not “just arthritis” like OA. IA is an autoimmune disease. 🎧 In Ep13 of Inflammatory! we use a sound system analogy to make sense of it.
Listen here tinyurl.com/4ajba8rr

#ArthritisAwareness #Autoimmune

1 2

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 8

🎙In episode 17 of Inflammatory! we were joined by fashion and portrait photographer Rachell Smith, who shared her journey living with inflammatory arthritis. Navigating years of misdiagnosis to parenting with chronic pain. It is full of heart, honesty, and hope.
🎧 Listen here tinyurl.com/55ezx3hu

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Aug 5

🎧 Have you or someone you care about been diagnosed with a type of inflammatory arthritis (IA)?

Check out Inflammatory! our weekly podcast (currently on a summer break ☀️) that dives into what life is really like with IA.
🎙️ Listen now on our website inflammatoryarthritis.org

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jul 18

🎧 Bonus summer episode out now! Debbie joins from Crete to chat about:
☀️ Travelling with inflammatory arthritis
🧴 Sun sensitivity & medication
💛 Self-compassion when things don’t go to plan

Listen now: tinyurl.com/mtyepf8n
#ChronicIllness #ArthritisAwareness #inflammatoryarthritis

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jul 8

🎉 Inflammatory Arthritis UK is 6 months old!
What a journey it’s been and we’ve only just begun.

There are other charities, but our focus on lived experience shows: people need to hear from people who get it.

We’re here, and we’re needed. 💙 #IAUK #LivedExperience💙 #IAUK #LivedExperience

2 2

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jul 7

#JIAAwarenessMonth
Juvenile Idiopathic Arthritis (JIA) is so much more than just joint pain.
🎙️ In Episode 11 Inflammatory! Word!, our co-founder Debbie shares what it’s like to parent a child with JIA, while living with it herself. Listen here tinyurl.com/mtdjfa6u
All episodes tinyurl.com/yck6huy7

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jul 4

The NHS 10-Year Plan is out. We welcome the ambition but are reviewing how it impacts people with inflammatory arthritis. Timely diagnosis, access, and care matter.
🔗 Read our response: tinyurl.com/mr4djm5t

#NHSPlan #InflammatoryArthritis #IAUK 👉 tinyurl.com/mr4djm5t
#NHSPlan

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jul 1

July is #JuvenileIdiopathicArthritis Awareness Month 💙
JIA starts before age 16, and for many, it lasts a lifetime. Our co-founder & her daughter both live with JIA.
Read Debbie's inspiring blogs here: tinyurl.com/ye3x5djr

#JIA #ChronicIllness #JIAAwareness #InflammatoryArthritis

1 2

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 30

Inflammatory arthritis doesn’t take a holiday... even when we do!
In this week’s episode of Inflammatory! we talk all things holidays, reflect on how far we have come considering IAUK is not even 6 months old!

🎧 🔗 Listen now: tinyurl.com/y42k4scr
#inflammatoryarthritis #podcast #community

1 2

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 23

🌟 Small Charities, Big Impact 🌟
#SmallCharitiesWeek, even though IAUK is a new small charity, we are already making a big impact 💙

💬 Show your support this Small Charities Week by:
✔️ Sharing our page
✔️ Spreading awareness
✔️ Sign up to our newsletter & donate here inflammatoryarthritis.org

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 20

🎙️ New Episode: Support Act
Katy & Debbie get real about life with #InflammatoryArthritis while both managing painful flares.
From misdiagnosis to mental health, this is a must-listen for anyone living with IA.
🔗 Listen: tinyurl.com/yc4f5u4z
#IAUK #ChronicPain #AutoimmuneLife #ArthritisAwareness

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 19

🔥 Stay In the Know! 🔥
Sign up to our newsletter and get the latest Inflammatory! updates, cutting-edge IA news, breakthrough research, upcoming events, and more straight to your inbox.

📩 Join the list now → inflammatoryarthritis.org

#Newsletter #Inflammation #Immunology #ResearchNews #IAupdates

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 17

🌟Our co-founder & proud trustee of the Teapot Trust is in Edinburgh for the next two days for board meetings.

She’s bringing her lived experience, charity sector expertise & passion to the table. Exciting times ahead as the board explore new ideas, fresh energy & shared purpose.
#CharityLeadership

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 13

Powerful and inspiring story from Adam Newton. He was cycling for charity when the pain hit.
🎙️On the latest episode of Inflammatory!, Adam shares his journey with inflammatory arthritis, from denial to acceptance & how movement, mindset, & support have helped him. Listen here tinyurl.com/ymphehs4

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 6

HELP! episode out now
👥 Want to make a difference, even with limited time or energy?
We’re talking about realistic, empowering ways to volunteer and shape the future of IAUK.
🎧 Listen to the full episode here: tinyurl.com/4aynyfs4

#ChronicIllnessWarrior #VolunteerOpportunity #InvisibleDisability

1 2

Inflammatory Arthritis UK @inflamarthritis.bsky.social · Jun 3

#Volunteerweek2025 Inflammatory! episode this week will celebrate and highlight the great work volunteers do. IAUK wouldn't exist without our amazing volunteers. If you know someone who gives up their time to help others please let us know in the comments and we would love to do some shout outs 👇

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · May 30

🎙️ Episode 20 our fifth Q&A is OUT NOW!
We love diving into your questions, and this one was packed with great ones.
What’s the most obscure “cure” for IA that someone’s ever suggested to you? 🤔🪄
Listen to our answers and the full episode here 🎧: tinyurl.com/5yncx8jz 😅

1 1

Inflammatory Arthritis UK @inflamarthritis.bsky.social · May 29

If you missed last weeks episode of Inflammatory! here is a small clip of what we discussed.
Listen to the full episode here: shorturl.at/P53mT
What would be your main research priority?
Please let us know in the comments below 👇
#inflammatoryarthritis #InflammatoryPodcast #inflammatory

2 2

Inflammatory Arthritis UK @inflamarthritis.bsky.social · May 27

We can not quite believe it is our fifth Q&A session this week!!🥳🎉
It is not too late to send in your questions.
Leave your questions in the comments or send them here: tinyurl.com/yc4jj93b
Please note: we only answer from our lived experience, we are not medical professionals.

1 2