Author | Lightnews

Karyn Bishof

@kbishof.bsky.social

1.6K followers 850 following 73 posts

🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org 🔵 Pw/ #LongCOVID, #IACCS, #Disability 🔵 Fmr. Firefighter/Paramedic 🔵 Fmr. Educator, Coach, & Dir. of Athletics 🔵 B.S. (ex science & health promotion) 🔵 #StillCOVIDING #COVIDConscious #Mask

www.longhauler-advocacy.org

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Reposted by Karyn Bishof

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 4d

Our team heads to the American Public Health Associations conference. #APHA2025 Is the biggest public health assoc. & conference. C19LAP will present 3x & exhibit. We are wishing our team health & success as they connect w/ thousands to help advance solutions to Long COVID!

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Karyn Bishof @kbishof.bsky.social · 22d

On #IndigenousPeoplesDay, remember: the violence never stopped. Colonization just changed its form, from stolen land to stolen children, erased histories, and borders that criminalize the very people this land belongs to. We are still witnessing the same injustice.

Karyn Bishof @kbishof.bsky.social · 23d

@SecKennedy our community is dying from #LongCOVID. While its disabling impacts have fractured our national infrastructure, the deaths associated with Long COVID are far under represented & largely ignored. We need urgent leadership & action. We need solutions. We need to educate

Karyn Bishof @kbishof.bsky.social · 27d

REMINDER: 3pm est tomorrow 10/8

us06web.zoom.us/webinar/regi...

Welcome! You are invited to join a webinar: Navigating Long COVID and Disability Insurance: What Patients Need to Know. After registering, you will receive a confirmation email about joining the webin...

Join us for a free webinar hosted by Kantor & Kantor, LLP in collaboration with the COVID-19 Longhauler Advocacy Project. Senior Partner Andrew Kantor will share practical steps for navigating disabil...

us06web.zoom.us

Karyn Bishof @kbishof.bsky.social · Oct 2

The cost of #LongCOVID

This is ONLY March - present of this year. Prior, Jan-Feb I paid $2,000+. My SSD is ~$1,400/mo. I have Medicare. I currently owe over $8,000. This is not sustainable with living. I am one of tens of millions with Long COVID.

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Reposted by Karyn Bishof

COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · Sep 29

Join us for a free #LongCOVID #Disability webinar on October 8th at 3pm ET!

The webinar will discuss the confusing & frustrating insurance system, understanding your rights, preparing stronger claims, & knowing what to do if benefits are denied.

Register here:
us06web.zoom.us/webinar/regi...

Promotional graphic for a free educational forum titled “Navigating Long COVID and Disability Insurance: What Patients Need to Know.” Event date: Wednesday, October 8, 2025, at 12:00 PM PDT / 3:00 PM EDT. Discussion led by Karyn Bishof, Founder and President of the COVID-19 Longhauler Advocacy Project, with a presentation by Andrew Kantor, Senior Partner at Kantor & Kantor, LLP. Logos for Kantor & Kantor and the COVID-19 Longhauler Advocacy Project are at the top. On the right side of the image, a woman sits on a couch with her head in her hand, appearing fatigued and distressed, with a blurred double image effect suggesting dizziness or brain fog.

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Karyn Bishof @kbishof.bsky.social · Sep 5

Same for the Vaugh guy mentioned

Karyn Bishof @kbishof.bsky.social · Sep 5

*They* are reporting extraordinary things but their patients ARE NOT. When their patients speak up, they are dismissed and ignored.

These guys have been around since 2020/2021 and cost many people everything they had to their name.

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Karyn Bishof @kbishof.bsky.social · Sep 5

This is absolutely horrible news.

Let’s bring the prey on vulnerable patients desperate for their lives back who will do anything, even pay their life savings, sell their homes, etc crowd to lead Long COVID research.

Think supplement peddlers meets meets Fl surgeon general, meets cure offerer.

Karyn Bishof @kbishof.bsky.social · Aug 27

You know what worked…

The collaboration and unity that was summer fall and winter 2020.

Bring that back. Drop the ego’s.

#LongCOVID solutions depend on it.

OUR LIVES DEPEND ON IT.

This 2023-present fighting and race to the top of the podium isn’t it.

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Karyn Bishof @kbishof.bsky.social · Aug 23

After two long years of fighting and advocating for myself, my port is in. Hopefully this gets me better access to medical care and quality of life.
#LongCOVID #POTS #Gastroparesis

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Karyn Bishof @kbishof.bsky.social · Aug 20

Nothing like pending a lymph node and bilaterally tonsillectomy next Friday, and being told the port I was waiting til January for is now being put in THIS Friday. Not mentally or physically prepared for this.

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Karyn Bishof @kbishof.bsky.social · Aug 18

Can I tell you that I really never thought I’d be in people’s inboxes and DMs like hey do you want my organs and tissues for Long COVID research, I’m having them out in two weeks.

What a time.

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Karyn Bishof @kbishof.bsky.social · Aug 10

-Car / Bus: windows down, masks on.
-Avoid common areas as much as possible especially unmasked.
-Turn on the HEPA’s! Open windows.
-Wear quality masks *correctly.*
-Hand washing & sanitizer
-Eating in open spaces outside vs cafeterias

Think through your family & activities.

Karyn Bishof @kbishof.bsky.social · Aug 10

As school starts tomorrow for parts of Florida, this is a reminder, that when schools start back up after summer, winter, and spring break, transmission & cases take off. While you should ALWAYS protect yourself against COVID+, take the extra precautions the first few weeks. ⬇️

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Karyn Bishof @kbishof.bsky.social · Jul 21

Me: submits a modification request for my home for my disabilities.

HOA: no, doesn’t align with bylaws.

Me: ada/ fair housing request supersede

HOA: no

Me: your fines for not complying at astronomical plus my civil suit.

HOA: no

Me: ask the HOA attorney.

HOA: approved

Karyn Bishof @kbishof.bsky.social · Jul 3

The comments …chefs kiss

www.tiktok.com/t/ZTjEvgBVW/

More and more patients are coming in with AI-generated diagnoses and medication requests lately. While I love an informed patient, it’s a fine line between self-advocacy and being told how to practice...

TikTok video by Carlie | Derm PA-C 🌟💉

www.tiktok.com

Karyn Bishof @kbishof.bsky.social · Jun 20

Report or find ICE spotting here: padlet.com/PeopleoverPa...

Spread the word!

People over Papers (anonymous | anonimo)

Our purpose is to collect data on ICE sightings submitted by the public with the intention to inform the public and raise awareness. The reports are not confirmed sightings; however, they are reviewed...

padlet.com

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Karyn Bishof @kbishof.bsky.social · Jun 19

I better see all the white + families helping carpool and get these kids to their games and tournaments for their parents who may be afraid to go.

Karyn Bishof @kbishof.bsky.social · Jun 18

From our friend Allison, from what was once the Office for Long COVID. 💜 open.substack.com/pub/inneruni...

A Love Letter to Long COVID

and a plea for collective grieving

open.substack.com

Karyn Bishof @kbishof.bsky.social · Jun 18

Florida:

Sooooo where are we all getting our saline from? What insurance / manufacturing companies are back up and running and able to supply post hurricane that took out facility? I need a port but that comes with fluids and apparently it’s still an issue. Honestly at about life or death point.

Karyn Bishof @kbishof.bsky.social · Jun 16

Annnnd I’m getting a port and home heath services. 😔

Karyn Bishof @kbishof.bsky.social · May 22

This bill (waysandmeans.house.gov/wp-content/u...) now heads to the Senate.

We must act now.

CALL TO ACTION:
Contact your U.S. Senators TODAY. Demand they vote NO on this bill and reject any cuts to the vital programs millions rely on.

Contact your senator today
www.senate.gov/senators/sen...

waysandmeans.house.gov

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Karyn Bishof @kbishof.bsky.social · May 22

215 republicans voted FOR the bill
214 democrats voted AGAINST the bill

In the end, just two Republicans — Reps. Thomas Massie (Ky.) and Warren Davidson (Ohio) — opposed the legislation. House Freedom Caucus Chair Andy Harris (R-Md.) voted “present.”

PASSED: The One, Big, Beautiful Bill Moves One Step Closer to President Trump’s Desk – Ways and Means

waysandmeans.house.gov

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Karyn Bishof @kbishof.bsky.social · May 22

These proposed cuts aim to offset the bill’s estimated $3.8 trillion cost over the next decade, which includes extending 2017 tax cuts and increasing defense and border security spending.

Some provisions could have unintended consequences for the Affordable Care Act.