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Nandini, MPH @nandini0306.bsky.social · 3d

When bias becomes a diagnosis, care disappears!

Stigmatizing language in medical records can mean the difference between care & neglect.
For Children with #LongCOVID, these labels replace investigation with dismissal.

Sign & share the Petition:
chng.it/7ZSzLXnp5n

Sign the Petition

Demand Federal Action on Biomedical Care for Children Living with Long COVID

chng.it

Nandini, MPH @nandini0306.bsky.social · 5d

How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n

Sign the Petition

Demand Federal Action on Biomedical Care for Children Living with Long COVID

chng.it

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Nandini, MPH @nandini0306.bsky.social · 7d

A parent's intuition is often a child's silent voice. It's time Our health care system starts listening.

Sign the petition: chng.it/T4yHRxPX6S

kevinmd.com/2025/07/why-...

Why listening to parents’ intuition can save lives in pediatric care

The article explores how clinicians can integrate intuition, particularly that of parents, with scientific reasoning to improve diagnostic care and strengthen human connection in medical practice.

kevinmd.com

Nandini, MPH @nandini0306.bsky.social · 8d

Which is exactly why we stand united to bring to the forefront issues like Long COVID in children & youth that is NOT a mental health issue but a biomedical one. @cmadocs.bsky.social will be held accountable to respond.

If you are with me- pls sign & share: chng.it/T4yHRxPX6S

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Nandini, MPH @nandini0306.bsky.social · 8d

@markcarneyforpm.bsky.social @cmadocs.bsky.social Where is your voice for Canadians? I did not vote for you to allow this!

Nandini, MPH @nandini0306.bsky.social · 8d

This is what I thought it was going to be. Sadly, it was a political agenda that was directed instead of listening to the public. I am ashamed to see @cmadocs.bsky.social who claim to be the Docs speaking in the interest of the people,instead taking orders from the minister.

Nandini, MPH @nandini0306.bsky.social · 9d

CMA Town Hall: A Conversation with the Health Minister - a virtual discussion on Oct. 2nd at 6:30 pm ET

An important opportunity to raise awareness and advocate for Children living with Long COVID.

events.cma.ca/ereg/index.p...

CMA town hall: A conversation with the health minister

Please email us at <a href="mailto:[email protected]?subject=CMA%20town%

events.cma.ca

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Nandini, MPH @nandini0306.bsky.social · 8d

@cmadocs.bsky.social @markcarneyforpm.bsky.social if the health of Canadian children & adults & seniors is important to you then your moral duty is to address what is NOT being discussed & what is vital to hear.

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Nandini, MPH @nandini0306.bsky.social · 8d

@cmadocs.bsky.social many of us tried to bring attention to your leadership and health minister the most important issues in health but you conveniently brushed everything off by focusing more on what's advantageous to you. @markcarneyforpm.bsky.social

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Nandini, MPH @nandini0306.bsky.social · 8d

@cochranecanada.bsky.social @cfpc-cmfc.bsky.social @cmadocs.bsky.social @doctorsofbc.bsky.social

www.ahajournals.org/doi/10.1161/...

Prevalence and Clinical Impact of Postural Orthostatic Tachycardia Syndrome in Highly Symptomatic Long COVID | Circulation: Arrhythmia and Electrophysiology

BACKGROUND: The incidence of postural orthostatic tachycardia syndrome (POTS) in long COVID has been a growing concern since the first cases were reported in 2021. The aim of this study was to assess ...

www.ahajournals.org

Nandini, MPH @nandini0306.bsky.social · 8d

October is #DysautonomiaAwarenessMonth💙
Many children with #LongCOVID live with Dysautonomia- a complex, disabling illness.

The CLCN Petition launches are the perfect time, calling for safe, evidence-based biomedical care across Canada.

Sign & Share: chng.it/7ZSzLXnp5n
#CLCN #AdvocacyMeetsResearch

Sign the Petition

Demand Federal Action on Biomedical Care for Children Living with Long COVID

chng.it

1

Nandini, MPH @nandini0306.bsky.social · 9d

An important read! Our future generation is now suffering because of this. When opinions are not grounded in science and assumptions are made because 'they are just kids and they bounce back' ...

bioengineer.org/new-study-in...

New Study Indicates Children’s Risk of Long COVID Could Double Following

A groundbreaking new study, published in the prestigious journal The Lancet Infectious Diseases, has unveiled compelling evidence regarding the increased risk of long COVID in children and adolescents

bioengineer.org

Nandini, MPH @nandini0306.bsky.social · 9d

CMA Town Hall: A Conversation with the Health Minister - a virtual discussion on Oct. 2nd at 6:30 pm ET

An important opportunity to raise awareness and advocate for Children living with Long COVID.

events.cma.ca/ereg/index.p...

CMA town hall: A conversation with the health minister

Please email us at <a href="mailto:[email protected]?subject=CMA%20town%

events.cma.ca

1 1

Nandini, MPH @nandini0306.bsky.social · 10d

@cmadocs.bsky.social @cpas-official.bsky.social @cfpc-cmfc.bsky.social @markcarneyforpm.bsky.social

Canadian Covid Society @cancovsoc.bsky.social · 10d

The beginning of Fall is back to school – but children with long Covid face missed classes & ongoing symptoms. Their voices drive research & care. CLCN needs 500 signatures to bring this Petition to Parliament. Sign now: chng.it/7ZSzLXnp5n #LongCovidChildren #CLCN #ActNow

Graphic with a blue background and a mint green backpack with pencil crayons, pens and a cellphone in the front pocket, and folders peeking out of the main compartment.

Text reads: "Back to school... but not for all children. The Children’s Long Covid Network (CLCN) honors the voices of children living with long Covid and demands urgent awareness, care and action. Join them by signing the CLCN petition calling for immediate biomedical evaluation and equitable care for children across Canada."

An inset image of a tablet with the petition is in the lower right corner.

Reposted by Nandini, MPH

Canadian Covid Society @cancovsoc.bsky.social · 10d

The beginning of Fall is back to school – but children with long Covid face missed classes & ongoing symptoms. Their voices drive research & care. CLCN needs 500 signatures to bring this Petition to Parliament. Sign now: chng.it/7ZSzLXnp5n #LongCovidChildren #CLCN #ActNow

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Reposted by Nandini, MPH

Canadian Covid Society @cancovsoc.bsky.social · 10d

Le début de l’automne rime avec rentrée scolaire, mais les enfants atteints de CL font face à des cours manqués et à des symptômes persistants. Leur voix oriente la recherche et les soins. 500 signatures sont nécessaires pour présenter la pétition au Parlement. Signez ici : chng.it/7ZSzLXnp5n

Sur un fond bleu et vert menthe se trouve un sac à dos dans la poche avant duquel dépassent des crayons de couleur, des stylos et un téléphone cellulaire. Des pochettes de travail dépassent du compartiment principal du sac.

Le texte indique : « C'est le retour à l'école... mais pas pour tous les enfants. Le REACL honore la voix des enfants atteints de covid longue et appelle de manière urgente à la sensibilisation, aux soins et à l’action. Joignez-vous à lui et signez sa pétition réclamant une évaluation biomédicale immédiate de tous les enfants et adolescents atteints de covid longue au Canada, et l’obtention de soins équitables. »

Une image d'une tablette affichant la pétition apparaît dans le coin inférieur doit.

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Nandini, MPH @nandini0306.bsky.social · 10d

Là où la défense des intérêts rencontre la recherche et où la voix des enfants guide nos actions, nous lançons une pétition appelant le gouvernement fédéral à agir pour assurer des soins biomédicaux à tous les jeunes atteints de #COVIDLongue.
Signez et partagez : www.change.org/p/demand-fed...

Sign the Petition

Demand Federal Action on Biomedical Care for Children Living with Long COVID

www.change.org

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Nandini, MPH @nandini0306.bsky.social · 10d

Fall brings kids back to school– but many with Long Covid are still fighting symptoms and missing out. Their voices shape research & care.
Sign and share to help CLCN reach 500 signatures and bring this petition to Parliament.

Sign now: chng.it/7ZSzLXnp5n
#LongCovidChildren #CLCN #ActNow

Sign the Petition

Demand Federal Action on Biomedical Care for Children Living with Long COVID

chng.it

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Nandini, MPH @nandini0306.bsky.social · 11d

Today, on National Day for Truth and Reconciliation, I pause to honor the Survivors. I also hold space for all children facing complex struggles today.

Reconciliation means caring for truth, healing, and a better future for all.

Every Child Matters. 🧡

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Nandini, MPH @nandini0306.bsky.social · Sep 2

longcovidresourcescanada.ca/albertas-edu...

Alberta’s Education Crisis is Also a Health Crisis, And It’s Putting Kids at Lifelong Risk - Long Covid Resources Canada

longcovidresourcescanada.ca

Nandini, MPH @nandini0306.bsky.social · Aug 29

You can comment on the comment box below the article once you read it.

Nandini, MPH @nandini0306.bsky.social · Aug 29

Concerning article below about Somatic disorders Functional neurological disorders sent to all BC doctors from This Changed My Practice which is heavily associated with UBC CPD and the UBC Therapeutics Initiative Group

thischangedmypractice.com/ssd-fnd/

Somatic symptom disorders and functional neurological disorders | This Changed My Practice (TCMP) by UBC CPD

This article aims to provide a structured approach to somatic symptom disorder and functional neurological disorder presentations, with a hope of supporting clinical care, reducing stigma and improvin...

thischangedmypractice.com

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Nandini, MPH @nandini0306.bsky.social · Aug 17

Relentlessly trying to ensure LC is real in Canadian children and we are not to stop until someone does something.

archive.ph/2025.08.17-1...

archive.ph

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Nandini, MPH @nandini0306.bsky.social · Jul 31

An invisible toll, a silent crisis of misunderstood symptoms.

www.newsweek.com/disabling-ch...

'Disabling' chronic illness in children not taken seriously: Experts

"This is a public health crisis for children. And it demands action," Long Covid Families said in its promotion of the condition's awareness week.

www.newsweek.com

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Reposted by Nandini, MPH

Mark Ungrin @mark-ungrin.bsky.social · Jul 17

An important read for anyone in Canada with #longCOVID.

As a scientist with relevant expertise I have attempted to engage with this process several times, directly and through the public comment system. The lack of interest in input from outside the EBM bubble reported here was also my experience.

Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning” - The Sick Times

Guidelines recommend exercise and therapy as treatments, following attempted influence from Paul Garner.

thesicktimes.org

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Nandini, MPH @nandini0306.bsky.social · Jul 8

thesicktimes.org/2025/07/08/e...

Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning” - The Sick Times

The guidelines recommend exercise and therapy as Long COVID treatments. Despite his attempts, Paul Garner had no influence on the process.

thesicktimes.org