This #MigrainAwarenessWeek, @themigrainetrust.bsky.social have published new research which shows that poor understanding of migraine has devastating implications for careers and personal lives of those with condition.
Read more here: bit.ly/3IwqNDr

We are kicking off #MigraineAwarenessWeek with our brand-new campaign film which illustrates what #MigraineMeans for many of the one in seven people living with the condition. youtu.be/19x0y14g8iI

We are delighted to welcome Aberdeen Independent MS (AIMS) as our newest member.

Find out more about their work in their leaflet below⬇️ or check out their website ➡️https://www.youraims.org/

@cerebralpalsyscot.bsky.social are hosting their annual conference on 8 October 2025.

Find out more and register your free place here: cerebralpalsyscotland.org.uk/whats-on/ann...

Delighted to announce Shelley Gray, member of the Scottish Human Rights Commission, will be joining our AGM on 24 Sept as our guest speaker. Shelley will cover the work of the commission, what taking a 'human rights-based approach' to policy means and how we can use human rights in the third sector.

It was fantastic to attend the Cross Party Group on Brain Tumours at The Scottish Parliament yesterday afternoon.
Thank you to @braintumourrsch.bsky.social for inviting us. We look forward to working together to improve patient access to clinical trials & life saving treatment options in Scotland.

On Thursday 4 September, we will be meeting the Minister for Public Health and Women's Health, @jennimintomsp.bsky.social to discuss the outstanding elements of the #neuroframework2020-2025 and the importance of a specific ongoing strategy for neurological conditions.

Charlotte's story reinforces the recommendations from our report (Today's Challenge, Tomorrow's Hope) of the critical need for co-ordination of care, better system awareness of neurological conditions and investment in neurology services to reduce diagnostic delays.
www.bbc.co.uk/news/article...

We're looking forward to sharing our #2026holyroodmanifesto with our policy group at our next meeting which is coming up on 27th August. The meeting will be chaired by Rachel Edwards, CEO of @epilepsyconnect.bsky.social

We are looking for new trustees to join our board!

To be eligible, you must work or be an accredited voluntary representative for a member charity.

Please get in touch with Hester at [email protected] for more information.

Applications will close on the 27 August.

❗️📢 Key genetic differences found in people with ME/CFS

Read more on DecodeME’s website 👇

www.decodeme.org.uk/initial-dna-...

#DecodeMEResults #DecodeME #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis

The Management Team are delighted to announce DecodeME’s initial DNA results & discuss what this means for #pwME & future research.

A huge thanks to all our participants for giving their time, energy & DNA to the project.

Learn more about our findings: shorturl.at/XOVJ1

1 in 3 carers who responded to the My Neuro Survey said that they are unable to manage their own health and wellbeing, with over half (53%) living with a long-term health condition of their own.

Our new report outlines three key recommendations for Scot Govt to improve support: bit.ly/44U5umC

69% of carers who responded to the My Neuro Survey said that mental health services were not meeting their child's needs.

A further one in five children cannot access any mental health support at all.

This is unacceptable.

Read our reccomendations here: bit.ly/4lwLdud

Could you be a NAoS trustee?

Applications are now open for candidates to join our board.

To be eligible you must work for a NAoS member charity.

For more info on how to apply, get in touch with us at [email protected].

Applications close: Wed 27 August

Two thirds of adults living with a neurological condition in Scotland who responded to the My Neuro Survey say life is difficult to cope with and their condition has an impact on their mental health.

Read our recommendations for Scot Govt to better support the neuro community here: bit.ly/44U5umC

Following the publication of our report, 'Today's Challenge, Tomorrow's Hope', the Scotsman has published an op-ed by NAoS Programme Director, Alice Struthers, on the urgent need to prioritise investment into neurological services and support.

www.scotsman.com/news/opinion...

Did you see us on BBC Scotland at Seven last night?

Alice and Donald were raising awareness of our new report which reveals that 2 in 3 adults with neurological conditions are struggle to cope and unpaid carers at breaking point.

Catch the interview on iPlayer at 13.36 mins: bit.ly/4530r3l

“Better support could help people live healthier, more productive lives. It’s like being stuck in purgatory.”

Donald has dystonia — his story shows why we need urgent investment in neurology. Read more www.dailyrecord.co.uk/news/scottis...

#TodaysChallengeTomorrowsHope #VitalSupportNeeded

We've made front page news! 👏

Our newly published report, 'Today's Challenge, Tomorrow's Hope', reveals how Scotland’s ‘invisible’ patients and carers are falling between the cracks.

Read the full article here:

www.heraldscotland.com/news/2529755...

NEW: Scotland’s ‘invisible’ patients and carers are falling through the cracks.

2 in 3 adults with a neurological condition struggle to cope — carers are at breaking point.

It’s time for real action.

Read our report here ➡️ bit.ly/4eCQfme

#Neurology #Scotland #UnpaidCarers #NAoS

We're onto our third full members' meeting of 2025 and we're looking forward to welcoming Gillian Neil from East Lothian Health & Social Care Partnership for a discussion about the relocation of the inpatient neuro-rehab unit at the #AstleeAinslee hospital in Edinburgh

For #MillionsMissing 2025 in #Scotland, we're raising a red alert 🚨 Spread the word!
The Scottish Budget pledged £4.5m for ME specialist support - the clock is ticking to spend it.

Email your MSPs & join us @parliament.scot or support online.
Info & template email: www.meaction.net/2025/04/27/m...