Author | Lightnews

Parkinson's Australia @parkinsonsaus.bsky.social · 6h

Download the FREE YOPX app to get articles like these and notifications about what is happening in Australia (e.g. clinical trials, NDIS consultations, Surveys, webinars & more): youngonsetparkinsons.org.au/resources/

Resources Archive - Young Onset Parkinson's Exchange

youngonsetparkinsons.org.au

Parkinson's Australia @parkinsonsaus.bsky.social · 4d

If you, or someone you know, is moving to Support at Home, please note that the new Aged Care Act comes into effect tomorrow 1/11/25. More info about service agreements and the transition to Support at Home www.health.gov.au/resources/co...

www.health.gov.au

Parkinson's Australia @parkinsonsaus.bsky.social · 5d

youtube.com/post/UgkxkKT... #Volunteers needed for an RMIT, Melbourne study. Anyone living with Parkinson's is encouraged to help out. Details in YouTube post.

Post from Parkinson's Australia - YouTube

Volunteers needed to participate in a study on Computerised Assessment and monitoring of Parkinson's disease symptoms. Are you over 18 years of age, have bee...

youtube.com

Parkinson's Australia @parkinsonsaus.bsky.social · 14d

NDIS is reviewing Smart Home Appliances & Exercise Physiology as funding items. If you live with Young Onset Parkinson’s and use these, speak up before 9 Nov! Your voice changed things before, let’s do it again here: consultations.health.gov.au/evidence-adv... #NDIS

NDIS Evidence Advisory Committee Consultation September2025 - Australian Government Department of Health, Disability and Ageing - Citizen Space

The site lists consultations that are run by the Department of Health, Disability and Ageing. On this site you can find, share or take part in consultations.

consultations.health.gov.au

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Parkinson's Australia @parkinsonsaus.bsky.social · 15d

Young #carers aged 12 to 25 who help care for a parent with Parkinson’s may be eligible for a $4,000 bursary to support their education.
Apply by 7 Nov 2025
hubs.la/Q03PfQK_0

Parkinson's Australia @parkinsonsaus.bsky.social · Sep 18

If you or someone you love is noticing changes that don’t feel quite right, don’t wait. Learn more about early signs, early intervention strategies and support options on our website.
#Parkinsonsdiagnosis #YOPD #whatsyourstory

Michael's story:
www.smh.com.au/lifestyle/he...

Michael knew something wasn’t right. His diagnosis knocked him for six

A life-changing illness threw his life into disarray and sent him into a mental health spiral. Finding a way to live with it has helped Michael recover the joy.

www.smh.com.au

Parkinson's Australia @parkinsonsaus.bsky.social · Sep 1

As an Accessible Product Design Alliance member, we’d love to hear about your experiences with HOME AND GARDEN CARE PRODUCTS. What makes them hard to open, use, or store? And what changes would make them easier? Please share your thoughts in this short survey: forms.gle/o91Hogto8Ep7...

Parkinson's Australia @parkinsonsaus.bsky.social · Aug 29

Our April 2025 Parkinson's Australia National Conference (#PANC) Videos are out now in case you missed it, and mark your calendars for May 2027 for PANC 2027! info.parkinsons.org.au/panc-2025-vi...

PANC 2025 - Conference Videos out now!

info.parkinsons.org.au

Parkinson's Australia @parkinsonsaus.bsky.social · Aug 28

Parkinson’s doesn’t follow a straight line; neither should your care. Dr Mischley unveiled eye-opening insights from thousands of users worldwide, but said we need more Australians in the mix. Watch the #PANC25 talk on YouTube @parkinsonsaus. Track your symptoms with the PRO-PD app hubs.la/Q03FLPbk0

Parkinson Symptom Tracking (PRO-PD App)

The PRO-PD turns vague, fluctuating symptoms into a numerical, trackable, shareable PD severity score. Use it to set goals & communicate with your physicians.

hubs.la

Parkinson's Australia @parkinsonsaus.bsky.social · Aug 3

Did you hear the news? Parkinson's Australia had the honour of sharing the stories of those whose lives had been changed by participating in the VYALEV® trial, as well as those of family and friends who had also witnessed the changes in their loved ones. info.parkinsons.org.au/vyalev?hs_pr...

Parkinson's Australia @parkinsonsaus.bsky.social · Jul 30

Empower your journey from diagnosis onward with our LIVE WELL WITH PARKINSON'S booklet. All ten topics are designed to help you craft a personalised care plan and keep enjoying the things you love.

Download your copy now: www.parkinsons.org.au/wp-content/u...
#LiveWell #ParkinsonsAustralia

Parkinson's Australia @parkinsonsaus.bsky.social · Jul 18

Download or update your app today. Take a look & do the survey.

App Store: apps.apple.com/us/app/young...

Google Play: play.google.com/store/apps/d...

Participate in our YOPX Users survey for a chance to win.
Go to: sv0d8.share.hsforms.com/2Z3xjaA-bQIW... Be Quick! Survey closes August 8th.

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Parkinson's Australia @parkinsonsaus.bsky.social · Jul 9

Vitamin #B6 Under Review: TGA Responds to Safety Concerns www.parkinsons.org.au/news/vitamin...

Vitamin B6 Under Review: TGA Responds to Safety Concerns - Parkinson's Australia

Parkinson’s Australia is alerting our community to important proposed changes [...]

www.parkinsons.org.au

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Parkinson's Australia @parkinsonsaus.bsky.social · Jul 7

Are you living with Parkinson’s (or Atypical PD), an unpaid carer for someone who is, or a family member? Your insights can help shape a stronger, more responsive future. The confidential and anonymous survey is open throughout July 2025.

👉 Complete it here: t.co/Xx2ONgSfUP t.co/bWxxEXmJZa

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Parkinson's Australia @parkinsonsaus.bsky.social · Jul 4

Download the newly updated Young Onset Parkinson's Exchange app (YOPX app) today from the Apple App Store or Google Play for tips and resources.

- IOS: apps.apple.com/us/app/young...
- Android: play.google.com/store/apps/d...

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Parkinson's Australia @parkinsonsaus.bsky.social · Jul 3

🧠 Join Prof. Richard Bittar, Mon 21 July @ 7:30pm for a free webinar on Deep Brain Stimulation & MR-Guided Focused Ultrasound for Parkinson’s & Essential Tremor. Live Q&A included!
Register: forms.office.com/r/uLc3jWdttY
#ParkinsonsAustralia #MRgFUS #DBS #MovementDisorders #Webinar

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Parkinson's Australia @parkinsonsaus.bsky.social · Jun 30

NEXT Virtual Roundtable WED 9/7 1PM - We’re here to listen to your lived experiences & show you how your voice shapes our advocacy and awareness-raising. Register hubs.la/Q03p9hQd0 #HealthyConversations

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Parkinson's Australia @parkinsonsaus.bsky.social · Jun 24

Volunteers wanted - Share your experiences of products and packaging & products that create daily challenges for millions of Australians with disability.

Sign up today at: hubs.la/Q03szpTg0
We are part of the Accessible Product Design Alliance.
#accessibility #parkinsons #packaging

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Parkinson's Australia @parkinsonsaus.bsky.social · Jun 17

Be like our ambassador, Damien! Join our Parkinson's Australia Lifeblood Team and donate today. Over 8.3 million Australians will need blood in their lifetime.

👥 Join our team: Go to www.lifeblood.com.au/donors/other... > Join existing team > Parkinson's Australia

#donateblood

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Parkinson's Australia @parkinsonsaus.bsky.social · Jun 10

How easy are e-scripts? Watch to find out more... www.youtube.com/watch?v=u4S7...

Electronic Prescriptions Made Simple | Digital Health for Parkinson's Patients

YouTube video by Parkinson's Australia

www.youtube.com

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Parkinson's Australia @parkinsonsaus.bsky.social · Jun 10

We have created easy-to-understand resources that help you take control of your health journey with the Australian Digital Health Agency and their My Health Record, my health app, Electronic Prescriptions, & Cyber Security Tips.

Download today: www.parkinsons.org.au/information-...

Australian Digital Health Project - Parkinson's Australia

The need for a connected healthcare system is greater than ever – one that’s accessible, progressive and secure. Digital health is a vital part of a modern, accessible healthcare system designed to me...

www.parkinsons.org.au

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Parkinson's Australia @parkinsonsaus.bsky.social · Jun 4

What were your early warning signs? Sometimes it starts with smaller handwriting, loss of smell, and trouble sleeping.

Please donate today to help spread the word for earlier diagnoses: hubs.la/Q03q5tSl0

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Parkinson's Australia @parkinsonsaus.bsky.social · May 27

Virtual Roundtable resume on June 3rd with CEO, Olivia Nassaris. Join us for this important conversation, ensuring our advocacy & awareness efforts align with real needs.
🔗 Register Now: sv0d8.share.hsforms.com/2kP5I0G4LRem...
💜 💛#Advocacy #Awareness #HealthyConversations #parkinsonsdisease

Form

sv0d8.share.hsforms.com

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Parkinson's Australia @parkinsonsaus.bsky.social · May 23

www.parkinsons.org.au/banpq/ We are still awaiting the APVMA's decision... #BanPQ

Ban Paraquat in Australia - Parkinson's Australia

Join Parkinson's Australia in the petition to ban paraquat, a chemical linked to Parkinson's, still in use in Australia. Let's take action for a safer future.

www.parkinsons.org.au

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Reposted by Parkinson's Australia

Michael Okun @michaelokun.bsky.social · May 23

Prevention isn’t a pill, it’s policy. Why today's MAHA report matters for Parkinson’s. A deep dive reveals it may be a landmark moment for prevention of neurodegenerative disease(s). Spotlighting environmental chemicals and pesticides as significant risk factors.

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