Lightnews — Scholar-powered news

Penn FTD Center @pennftdc.bsky.social · 1d

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

1

Penn FTD Center @pennftdc.bsky.social · 2d

The Penn FTD Center spoke with the Caregiver Conference keynote speaker Linde Jacobs for a highlight to her background, Cure MAPT FTD, and her advocacy journey. Read the October blog post now at the link in our bio!

Register now for the Penn FTD Center Caregiver Conference!

1

Penn FTD Center @pennftdc.bsky.social · 5d

We understand that care management can be tough. This October Care Management Monday, we are sharing tips on managing compulsive behaviors.

📍Check out our website for more information on Support & Resources

1

Penn FTD Center @pennftdc.bsky.social · 8d

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

1

Penn FTD Center @pennftdc.bsky.social · 8d

PhD candidate at the UPenn’s School of Nursing Lauren Fisher has been awarded a grant to support her dissertation study examining how empathy loss in bvFTD influences caregiver stress by contextualizing quantitative results in the lived experiences of caregivers.

Congrats Lauren! 🎉

Penn FTD Center @pennftdc.bsky.social · 12d

Penn FTD Center Staff Highlight 🌟

Quinn Hlava, MRA is a Senior Clinical Research Coordinator who works on observational research, specifically the ALLFTD study and various imaging studies.

📍Read more details on Quinn in the blog post! Link in our bio!

2

Penn FTD Center @pennftdc.bsky.social · 14d

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

Assistant Director Lyles Clark provides an overview of research at the Penn FTD Center.

Click on the link in our bio to watch now! #endFTD

1

Penn FTD Center @pennftdc.bsky.social · 15d

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

This afternoon, Clinical Research Project Manager Emily Xie provides an introduction into observational research.

Click on the link in our bio to watch now! #endFTD

1

Penn FTD Center @pennftdc.bsky.social · 16d

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

This morning, Clinical Research Coordinators Riya & Alex provide an overview on clinical trials.

Click on the link in our bio to watch now! #endFTD

1

Penn FTD Center @pennftdc.bsky.social · 17d

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

Genetic Counselor Laynie Dratch provides details on genetics in FTD.

Click on the link in our bio to watch now! #endFTD

2

Penn FTD Center @pennftdc.bsky.social · 18d

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information!

Nurse Practitioner Gillian Bradley provides caregiver strategies for symptom management. Click on the link in our bio to watch now! #endFTD

2 2

Penn FTD Center @pennftdc.bsky.social · 22d

World FTD Awareness Week takes place September 21-27, 2025! We will be sharing informational videos throughout the entire week to highlight different areas of expertise here at the center.

You can join the movement by following @theaftd.bsky.social
#endFTD

1 4

Penn FTD Center @pennftdc.bsky.social · 25d

Registration is now open for the 2025 Penn FTD Center’s Annual Caregiver Conference!

📆 Monday, November 3, 2025
⏱ 8am-4:30pm
📍Smilow Center for Translational Research

Click the link in our bio for the link to register for the conference!

We hope to see you in November!

1 2

Penn FTD Center @pennftdc.bsky.social · 28d

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

1

Penn FTD Center @pennftdc.bsky.social · Sep 10

The Unexpected Journey by Emma Heming Willis is out now! Lauren Massimo, Co-Director of the Penn FTD Center, contributed to The Unexpected Journey!

Emma provided an exclusive highlight for the Penn FTD Center. Read more at the link in our bio and on our website!

1 1

Penn FTD Center @pennftdc.bsky.social · Sep 8

We understand that care management can be tough. This September Care Management Monday, we are sharing tips on cognitive examinations.

📍Check out our website for more information on Support & Resources

1 1

Penn FTD Center @pennftdc.bsky.social · Sep 5

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

Penn FTD Center @pennftdc.bsky.social · Sep 4

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?

Make sure you are following the Penn FTD Center on all your social platforms.

📍All of our social media accounts can be found at the link in our bio!

1

Penn FTD Center @pennftdc.bsky.social · Aug 28

🎙️ Our amazing genetic counselor Laynie Dratch was featured on the DNA Dialogues podcast to share insights from the recent publication: “Patient-reported outcomes for remote and in-person visits for genetic counseling in adult neurology.”

👉Listen now at the link in our bio!

4

Penn FTD Center @pennftdc.bsky.social · Aug 27

Penn FTD Center Staff Highlight 🌟

Jessica Legaspi, MS manages the center's observational studies primarily focusing on the ALLFTD and CReATe ALS studies.

📍Read more details on Jessica in the blog post! Link in our bio!

Penn FTD Center @pennftdc.bsky.social · Aug 18

In our August blog, Penn FTD Center Clinical Research Coordinator Samantha Dengel interviews a spouse of a research participant to shed light on what it is like to care for and love someone with FTD and amplify caregiver voices.

Find the blog post at the link in our bio!

2

Penn FTD Center @pennftdc.bsky.social · Aug 15

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!

📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials

Click the website link for more!

1

Penn FTD Center @pennftdc.bsky.social · Aug 13

📰 Are you subscribed to the Penn FTD Center newsletter?

Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

2

Penn FTD Center @pennftdc.bsky.social · Aug 6

In this month’s Research Roundup, Postdoctoral Fellow Sheina Emrani, PhD outlines how researchers are studying whether neuroinflammation worsens cognitive outcomes during life in patients with frontotemporal lobar degeneration (FTLD).

📍Read now at the link in our bio or by visiting our website!

1

Penn FTD Center @pennftdc.bsky.social · Aug 4

We understand that care management can be tough. For August Care Management Monday, we are sharing tips on managing habits related to hiding, hoarding, and losing items.

📍Check out our website for more information on Support & Resources