One of the worst parts of being a dementia caregiver, is having to constantly make horrible but good/necessary decisions - taking the car keys away, taking the phone away and eventually canceling it, installing cameras and door lock in the house, placing them in an assisted living facility, etc:(

I’m mostly sad and pissed off about all the opportunities that Alzheimer’s/ Lewy Body took away from my husband, my daughter, myself, and our family unit.
#alzheimers #lewybody #dementia

I absolutely dislike thinking about myself as a widow, and more knowing myself as a single parent 💔
#alzheimers #lewybody #dementia

Often times, the mornings are the hardest. I should not be alone in the house. We were supposed to maybe go away for a clay residency. Or just hand out together. Go out for dinner, go hiking. Alzheimer’s sucks.
#lewybody #dementia #alzheimers

Matching tattoos as promised years ago.
A month since C passed away on August 12, at 16:16.

16:16 in a numerological and spiritual context, symbolizes new beginnings, the balance of personal ambitions with family life, and a call to maintain a positive mindset to manifest desires.
#alzheimers

So far Alzheimer’s took away my partner and my daughter’s father. We’ve got a puppy and a matching tattoo. Not a fair trade.
#dementia #alzheimers #lewybody

I’m on my way to visit my daughter in college. It’s family weekend. C & I should be going together, that was the plan.
Alzheimer’s got in the way, I’m pissed and heartbroken about it. But life goes on.

#dementia #alzheimers #lewybody

I’m so sorry you are going through this 💔

I hire help when my husband stopped driving. And as soon as incontinence was evident, I made the decision to move him to an assisted living facility.

I also attended a caregiver support group, a great place to learn about resources available.

I wrote 31 thank you notes.
THIRTY ONE!

That’s what it took for me to keep him safe and cared for, to keep my sanity and health, and to maintain some normalcy for my teenage daughter.

After my husband passed away a month ago, I wrote individual thank you notes to every person who supported me caring for him through the years. It included the assisted living facility staff, home caregivers, and the facilitator of the caregiver support group

Like a fiction novel, but it’s not.
My husband passed away on a Tuesday evening, we said farewell to his body at 9pm. And in Wednesday at 7am my daughter and I were on the road to the airport to drop her off at college to start her freshman year.
Intense is an understatement.

Choosing to move to an assisted living facility is the best horrible decision I’ve ever made.
#dementia #alzheimers #lewybody

#alzheimers #lewybody #dementia

While I don’t miss anything from our Alzheimer’s and Lewy Body time, every day I miss more and more my pre-dementia husband 💔

My husband was formally diagnosed with Alzheimer’s in January 2022, and switch to Lewy Body in 2024.
He passed away on August 12, on the eve of my daughter’s departure to start her college journey.
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#dementia #alzheimers #lewybody

I am a dementia survivor. I have many thoughts about it. I hope I find a Spence here to dump those thoughts and hopefully help someone who is going through what my family went through and how we are doing in the way to recovery.
#dementia #alzheimers #lewybody

I don’t have TV at home, so spending a night at a hotel means perusing around channels.
I’m horrified of the amount of medication ads!!

Tiny jewelry dishes 🟥🟧🟨🟩🟦🟪

He has Alzheimer’s :(

Some of the last pieces my husband made are still sitting in the studio. One of these days I will fire and finished them, in a collaboration kind of way.

And in a collaboration kind of way, a made a mold of one of these cups, reimagined, to be made in porcelain, to keep the connection.

About 20 years ago I made these margarita cups, and they have been in my mind for some time now. They were made on the wheel, I’m reimagining them as a slip cast piece.

Three-piece molds are not for the faint of heart.