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sharectd.bsky.social
SHARE CTD
@sharectd.bsky.social
87 followers 19 following 33 posts
A European research network on "Sharing and Re-using clinical trial data to maximise impact."
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · 11d
#PeerOnSky Article 2! "Meta-analysis of individual participant data: rationale, conduct, and reporting" by Riley et al. (2010). IPD boosts power for subgroups and adjusts for confounders. Read: doi.org/10.1136/bmj.... What challenges do you face in IPD meta-analyses? #OpenScience #MetaAnalysis
Meta-analysis of individual participant data: rationale, conduct, and reporting
The use of individual participant data instead of aggregate data in meta-analyses has many potential advantages, both statistically and clinically. Richard D Riley and colleagues describe the rational...
doi.org
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · 11d
A must read work from our network. 👍
floriannaudet.bsky.social
Florian Naudet @floriannaudet.bsky.social · 19d
"A New Hope: SHARE-CTD trilogy concludes with data reuse"
The @sharectd.bsky.social project concludes its "trilogy" with a guide to clinical trial data reuse. In this chapter, @giulia-varvar.bsky.social introduces principles to support effective data reuse.

restores.univ-rennes.fr/highlights/n...
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · Aug 18
🔬 #PeerOnSky starts! “Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing” by Mello et al. (2018). They found participants value data sharing for science, but worry about privacy breaches. A 2018 perspective still relevant today! Does this reflect current views? #DataEthics
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · Aug 18
🎉 Hello all! Welcome to #PeerOnSky! It stands as 'Peer discussion on the Sky'. We will dive into cutting-edge research, sparking discussion on BlueSky using the articles discussed within our network. We’ll kick off with a 2018 gem on clinical trial data sharing. #OpenScience #Research #JournalClub
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · Aug 18
a must read article for the week!
floriannaudet.bsky.social
Florian Naudet @floriannaudet.bsky.social · Aug 10
New paper in @jclinepi.bsky.social led by my super cool PhD student @kahin-tai.bsky.social with the SHARE-CTD (@sharectd.bsky.social) crew. It is the 2nd paper in a “JCE trilogy” on data sharing by SHARE-CTD: the 1st one addressed the topic in broad terms, and the third will focus on data reuse.
Key Concepts in Clinical Epidemiology: FAIRification of Biomedical Research Data
The FAIR guiding principles promote Findability, Accessibility, Interoperability, and Reuse of data to enhance data management and stewardship. In biomedicine, particular ethical, legal, and technical...
www.jclinepi.com
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · Jul 18
We worked heavily on coding and biostats exercises, and balanced it out with 'rainy' BBQ evening, City tours, and German/Italian feasts. Datathon1 had it all! 😍Big thanks to the organisers and all participants! #hackathon #OpenScience #ClinicalResearch #biostatistics
BBQ under the rain class dynamics Gottingen City tour! Group presentation
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · Jul 18
🌧️ Just wrapped Datathon1 at UMC Göttingen, from 07 to 11 July! Part of SHARE-CTD, this in-person event brought doctoral students, PIs, and lecturers together for clinical trials, biostats, and data mgmt. Check the Vibes! #SHARECTD #Datathon #Research #biostatistics
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · Jun 2
The paper @mrcctu.bsky.social offers 8 principles: proactively share results, give participants a choice, make it timely & accessible, involve patients in planning, and more. It’s a call to honor participants’ roles in research. So important for trust! #PatientVoice #OpenScience What do you think?
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · Jun 2
💬 Participants deserve to know! This Trials paper (doi.org/10.1186/s130...) pushes for sharing clinical trial results with participants—because their contributions matter. From a patient’s view, it’s about respect & transparency. Let’s dive in! #ClinicalTrials #Transparency #ShareCTD
Sharing clinical trial results with participants: important, expected and possible - Trials
Participants in clinical trials should be pro-actively offered the results of trials in which they have participated. This should be done in a way that is accessible and understandable for all partici...
doi.org
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 30
We are optimistic about this momentum! What do you think—can these 6 steps transform data sharing in Germany or globally? Share your views or tag a colleague. @sharectd.bsky.social is here to discuss! #ResearchEthics #OpenAccess #ShareCTD #DataSharing
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 30
The paper highlights barriers: low sharing rates, GDPR uncertainty, & researcher liability. Solutions include integrating data sharing in ethics applications, mainstreaming consent, & creating data clearing offices. A step toward patient benefit! #ClinicalResearch #Transparency
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 30
🔬 New paper alert! BMC study (doi.org/10.1186/s128...) proposes 6 solutions target ethics, registries, & governance to tackles Germany’s clinical data sharing crisis. Only 2% of medical research shares data—time for change! Read on! #OpenScience #DataSharing #ShareCTD
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 21
What's your take on this, guys? @cburgwinkel.bsky.social @giulia-varvar.bsky.social @minoo-matbouriahi.bsky.social @obinwanne.bsky.social @gregpapapostolou.bsky.social
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 21
Huge thanks for the shoutout, @floriannaudet.bsky.social ! 📊 This Nature paper on anonymization in biomedical research is spot-on for our mission at SHARE-CTD. Balancing data sharing with privacy is key—any thoughts on best practices? @kahin-tai.bsky.social @jifanw.bsky.social @yazidoxx.bsky.social
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 21
We enjoyed it too, participating online though. Kudos to the committe and all participants!
sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 21
The study highlights how widely shared datasets like NHANES can be exploited. It is urging better oversight and that trust in data-sharing is key! What safeguards do you think we need? Drop your thoughts below or tag a colleague @plosbiology.org keen to hear your take! #SHARECTD #OpenData #Integrity
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 21
🔍 Fascinating read! This PLOS Biology paper uncovers misuse of the NHANES dataset by potential paper mills—raising red flags on shared data integrity. Not about trials, but a must-discuss for research ethics. Check it: journals.plos.org/plosbiology/... #ResearchEthics #DataIntegrity #OpenScience
Explosion of formulaic research articles, including inappropriate study designs and false discoveries, based on the NHANES US national health database
The combination of AI and national health databases offers opportunities, but may also be exploited by unethical agents. This study shows that there has been an explosion of formulaic research article...
journals.plos.org
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 20
🎉 Today’s the day! ICTD 2025 - Rethinking Clinical Trials: Inclusivity in Practice, co-hosted by ECRIN @ecrin.bsky.social & SCReN in Madrid. How do we turn talk into action for inclusive study design? Tune in online—registration & waitlist are full! ecrin.org/ictd-2025 #ICTD2025 #ClinicalTrials
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 19
What does this mean for researchers? Share your take! Will this checklist item (e.g., Item No. 6) change how you handle trial data? Let’s discuss—tag a colleague or drop your insights below. #ResearchCommunity #OpenAccess #ShareCTD #DataSharing #ClinicalResearch
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 19
Why it matters: Only 57% of French trial results were shared (2012-2022, per STAT News). SPIRIT2025 & CONSORT2025 aim to fix this, aligning with SHARE-CTD’s mission. Better data sharing = reproducible science & public trust. What are your thoughts? #SHARECTD #DataSharing #OpenScience
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 19
🎉 Big news for clinical research! SPIRIT2025 just dropped, adding an Open Science section & a new Item No. 6 on data sharing. This pushes transparency in trials—where & how de-identified data, code, & materials will be accessible. Check it: www.consort-spirit.org #OpenScience #ClinicalTrials
Home | consort-spirit.org
www.consort-spirit.org
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 16
It should be last Thursday! Sorry for the typo. #cheers
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 16
🎉 Kudos to Giulia @giulia-varvar.bsky.social for her speed talk at "Printemps de la Recherche" last Tuesday! She presented about SHARE-CTD, and her project on re-analysis of pivotal trials in Oncology, to Irset’s 350+ pros. A great moment to showcase open science in medicine!🔬
#SHARECTD #OpenScience
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 16
🙌 Big props to our SHARE-CTD scientist featured in STAT News! His insights on boosting clinical trial transparency in France (only 57% results shared, 2012-2022) are key to open science. 🔬 #SHARECTD #OpenScience #ClinicalTrials #DataSharing
floriannaudet.bsky.social
Florian Naudet @floriannaudet.bsky.social · May 15
"French trial sponsors are urged to bolster clinical trial transparency": STAT News covers the recent French report urging that study results be published in a registry. I was very happy to be interviewed and provide some context.
French trial sponsors are urged to bolster clinical trial transparency
A French government working group recommended a sweeping plan to publicize study data and issue guidelines for reporting results on a timely basis.
www.statnews.com
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sharectd.bsky.social
SHARE CTD @sharectd.bsky.social · May 14
For those of you who are interesed, please join and register
floriannaudet.bsky.social
Florian Naudet @floriannaudet.bsky.social · May 4
In partnership with RestoRes and Embrace, LORIER’s monthly webinars address key issues for reproducible health research, including data sharing, reproducibility, and meta-research. This series, starting in June 2025, features international experts.

restores.univ-rennes.fr/highlights/l...
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