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Smart Patients @smartpatients.bsky.social · 2d

At Smart Patients, every new connection matters. You’re part of a community that believes no one should face illness alone.

Welcome to a place where stories are shared, questions are answered, and strength grows together.

www.smartpatients.com

Smart Patients @smartpatients.bsky.social · 2d

I am listening to the whispers my body tried to hide.
I am more than the silence liver cancer tried to keep me in.

Read our I Am...More than Liver Cancer: https://ow.ly/ioGs50X72Z8

Thanks to https://ow.ly/Qoqn50X72Z7 for ongoing support to liver research!

#IAmSeries #LiverCancerAwareness

Liver Central - Reinventing Liver Cancer Education

Welcome to Liver Central, The Global Liver Institute hub for research and care resources.

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Smart Patients @smartpatients.bsky.social · 3d

We know you are all heroes for asking tough questions, working through the struggles and uncertainty, and showing up in hospital rooms or on late-night message boards.

Yesterday was #NationalHeroDay. We admire your capes, bravery and resilience as a Smart Patients is a hero.

#SmartPatients

Smart Patients @smartpatients.bsky.social · 5d

We’re proud to continue celebrating our partnership with https://ow.ly/4t6T50X3Ouu ! No one should face serious illness without access to treatment options. If medicine exists, but a patient can’t access it, is that really progress?
https://ow.ly/k5rL50X3Ous

#EveryoneOrg #SmartPatients

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Smart Patients @smartpatients.bsky.social · 5d

We are looking forward to doing more to support caregivers and families with the resources and community they need together to manage pediatric cancer with our new partner!

Smart Patients @smartpatients.bsky.social · 6d

Today is Child Health Day! No better way to honor it than by launching our partnership with MyChild’sCancer, an organization dedicated to making lifesaving information on childhood cancers available to parents and doctors.

Please join us: https://ow.ly/qGjW50X3W3b
#MyChild'sCancer #SmartPatients

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Smart Patients @smartpatients.bsky.social · 7d

Liver cancer creeps in with aches, fatigue, dizziness; symptoms that don't feel urgent until the pattern made sense.

Read the latest in our I Am series and see why you are never just a number: https://ow.ly/ezrz50X4Ee2

#IAmSeries #OctoberIs4Livers #SmartPatients

Smart Patients @smartpatients.bsky.social · 9d

Recovery doesn’t end when you leave the hospital. The real work begins when you have to rebuild strength, mobility, and confidence in daily life.

At Smart Patients, we remind each other that recovery is physical, emotional, and deeply personal.
www.smartpatients.com

#SmartPatients #RehabMatters

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Smart Patients @smartpatients.bsky.social · 10d

Thanks to our partners who worked tirelessly to build ovarian cancer awareness: Below The Belt Women's Cancer Outreach, Georgia Ovarian Cancer Alliance - GOCA, NormaLeah Ovarian Cancer Initiative, Ovations ForThe Cure, St. Louis Ovarian Cancer Awareness, & Women of Teal.
Read more: ow.ly/ZNZp50X3RAQ

What I Wish I Had Known About Ovarian Cancer — Smart Patients

This story is written in the first person, but it is not the story of one woman alone. It is a composite drawn from the voices of many Smart Patients members who have shared what they wish they had kn...

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Smart Patients @smartpatients.bsky.social · 11d

Age is not just a number. In Japan, they dedicate a national holiday, Respect for the Aged Day (Keirō no Hi), to honor the experience and contributions of older adults.

What a beautiful idea to celebrate those who’ve come before us.

#InternationalDayOfOlderPersons #SmartPatients

Smart Patients @smartpatients.bsky.social · 12d

Support isn’t a luxury—it’s a lifeline. That's why we are partnering with the Pancreatic Cancer Action Network to create 2 free, trusted online communities for people facing pancreatic cancer.

Press release with more details: pancan.org/press-releas...

#PanCAN #SmartPatients #PancreaticCancer

Smart Patients @smartpatients.bsky.social · 13d

We are proud to partner with Everyone.org, an organization dedicated to making medicines accessible to people around the world.

Treatment & community shouldn’t depend on where you live.

We invite you to learn more and join the conversation today: ow.ly/NMhv50X1EIo

#EveryoneOrg #SmartPatients

Smart Patients @smartpatients.bsky.social · 16d

Thank you to one of our Smart Patients members for reminding us that it’s World FTD Awareness Week.

This is why awareness matters: when families and patients speak up, they drive visibility, accelerate research toward better diagnoses, treatments, and—someday—a cure.
#FTDAwareness #SmartPatients

Smart Patients @smartpatients.bsky.social · 17d

Truth: We don’t think about our lungs until they stop working the way they should.

Query: If every breath is precious, why do we wait until it’s hard to breathe to pay attention?

On World Lung Day, we salute our community and partners.

#WorldLungDay #SmartPatients #LCFA #LungCancerConnection

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Smart Patients @smartpatients.bsky.social · 18d

Aging comes with all kinds of surprises. Laughter and support is needed. Thank you to all the caregivers and our partners, like Family Caregiver Alliance!

Read our story to find great resources: ow.ly/4h8g50X0aEa

Vacation? I Choose Home! — Smart Patients

For Alzheimer’s Awareness and Healthy Aging Month, Smart Patients is lifting the voices of caregivers. This story reflects the reality many face: vacations and outings often bring more stress than rel...

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Smart Patients @smartpatients.bsky.social · 18d

We love building community with @pancan.bsky.social.

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Smart Patients @smartpatients.bsky.social · 19d

Big news! We’re proud to announce a new partnership with the Pancreatic Cancer Action Network (PanCAN). Together, we’re launching a free, trusted online community for people facing pancreatic cancer to connect and learn, find hope and support.

Join today: ow.ly/4b8450WXGIV

#PanCAN #SmartPatients

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Smart Patients @smartpatients.bsky.social · 20d

A big thank you to 1 of Us for helping us spread the word about Smart Patients at the Gail Parkins Memorial Ovarian Cancer Walk & 5k Run! Events like these remind us of the power of community. Together, we build spaces for support, resilience, and hope.

Smart Patients @smartpatients.bsky.social · 23d

On the outside, you might look fine. On the inside, you feel like your skeleton is crumbling. This Blood Cancer Awareness Month, our Smart Patients myeloma community is making the invisible visible. Their stories are raw, practical, and rooted in hope.

Read the full story: ow.ly/p9lV50WX9wm

Hope Grows Stronger When We Share It — Smart Patients

These words aren’t just one person’s alone - they’re stitched together from the stories, questions, and hard-won lessons shared by many people in the Smart Patients multiple myeloma community. What f...

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Smart Patients @smartpatients.bsky.social · 24d

Yesterday was World Patient Safety Day. We revisited a powerful Smart Patients discussion and shared it as a story filled with resources, practical tips, and the voices of patients and caregivers.

No try outs necessary. Read & join the team: ow.ly/TCot50WYiGz

#WorldPatientSafetyDay #SmartPatients

When Patients Speak Up, Hospitals Get Safer — Smart Patients

From bedside notes to good catches, patients are helping make hospitals safer. Here’s what families can do to prevent medical errors.

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Smart Patients @smartpatients.bsky.social · 25d

When we talk about patient safety, it’s often about medical errors or treatment risks. But safety also means something deeply human, such as feeling safe enough to ask questions or having the clarity to know what’s true. At Smart Patients, safety comes from connection.

#WorldPatientSafetyDay

Smart Patients @smartpatients.bsky.social · 26d

You're at a crossroads, your body's changing, and every treatment choice feels like a leap into the unknown. In our latest I Am series story, men with prostate cancer lay it all out.

What’s one truth only someone walking this road would understand?

Read more: ow.ly/Sm0G50WUx1e

I Am…One of Many Men — Smart Patients

For Prostate Cancer Awareness Month, Smart Patients is sharing the voices of men living with prostate cancer. This collective story reflects the shared struggles and strengths of the community—from th...

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Smart Patients @smartpatients.bsky.social · Sep 12

How do you stand up to cancer? We stand every day with patients, caregivers, and families who refuse to let cancer have the last word. Our courageous community asks hard questions, supports each other, and reminds us that no one has to face cancer alone.

#SmartPatients #StandUpToCancer

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Smart Patients @smartpatients.bsky.social · Sep 11

Our partners at the Autoimmune Association are tackling misinformation head-on with a free, virtual summit next week, Sept. 18–19: “Tips for Spotting Misinformation: Separating Red Flags from Green Flags.” Register now: ow.ly/7KHi50WReUt

And read this to prepare: ow.ly/7I0L50WReUr

The Autoimmune Community Summit 2025, Thu, Sep 18th, 2025 @ 11:00 AM Accelevents

Be Informed. Find Support. Feel Empowered. Join us for the Autoimmune Association’s free, virtual, two-day Autoimmune Community Summit—created just for people affected by autoimmune disease. Whether you’re newly diagnosed, supporting a loved one, or navigating life with a long-term condition, you’ll find the support, science, and strategies you need—all in one place. You’ll hear from medical experts, researchers, and real-life patient advocates covering a wide range of topics: symptom management, shared decision making and empowerment, groundbreaking research, mental health, managing multiple autoimmune diseases, and more.Best of all, it’s flexible! Watch sessions live from the comfort of your home or wherever you are, or catch up on-demand later—whatever works for your schedule. Don’t miss this chance to connect, learn, and feel empowered alongside thousands of others in the autoimmune community! When: Thursday, September 18 & Friday, September 19, 11 AM - 3 PM ETWhere: Virtual!Cost: Free! Don’t miss out on this incredible opportunity to get the information, resources, and support you need! Learn more about the Autoimmune Association.

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Smart Patients @smartpatients.bsky.social · Sep 10

If you’ve got breast or chest tissue, you’ve got something worth checking!

It's #SelfExamSeptember and with our partner, the Know Your Lemons Foundation, we invite you to download their app to help start a routine that could save your life.

Feel confident about your breast health: bit.ly/3HievxO

Self-exam App — Know Your Lemons® for Early Detection

Named Top 5 Health and Fitness App! Monthly reminders, self-exam guides, screening plans and more to keep you abreast of changes and create confidence in how to identify and report symptoms

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