Author | Lightnews

Ashleigh Rae @sparklyashleigh.bsky.social · Jun 17

I would NEVER - sushi is amazing

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 17

Can any plus size queens tell me if the anti-wrinkle Hilara pants are plus size friendly?

#plussizefashion

Ashleigh Rae @sparklyashleigh.bsky.social · Jun 16

Allied health providers supporting people with disability are crashing out since the #NDIS pricing review was published last week.

What many are forgetting is these recommendations have not yet been confirmed - until the new price guide drops, we don’t know what will happen.

#auspol

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 12

NDIS is NDIS’ing again and I can’t bring myself to engage with it. I have no more anger I can summon for something I know I should be outraged by.

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 11

I swear Mexican food is the best cuisine - how can you be sad or stressy depressy when there’s Tacos, Burritos, Guacamole… or the mother of all that is good in the world, Queso?!

You can’t.
It’s happy food.

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 11

Haha, at least your cat was thoughtful enough to try and compensate you for it 😂😂

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 10

Anyone else’s cat commandeered your dressing gown/Oodie for the winter?

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 8

Looks and sounds like a glorious selection of winter warmers!

Ashleigh Rae @sparklyashleigh.bsky.social · Jun 7

Im lucky I don’t catch many bugs - but when I do, that’s me out for the count, for weeks, sometimes months.

I’m lucky I have some support to help me through - but many don’t have family or friends to help, or formal services and access to funding for help when they need it.

#auspol #disabled

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 7

Before COVID, I didn’t know I was Autistic, or going blind, or had POTs and Diabetes.

Disability doesn’t come with a nice pamphlet on what to do when you catch a mild bug, or when something upsets your homeostasis. Mostly, you have to wing it and hope it works.

#disability

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 7

I’m coming through the other side of it now, after WEEKS of being bed bound.

It flattened me.

I couldn’t prepare food for myself, most days I couldn’t do more than go to the bathroom.

The fatigue has been extreme, and brain fog.

Mentally, experiencing this has been more than difficult.

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 7

Nothing prepared me for how debilitating a mild cold could be.

A mild cold isn’t mild, when it sets off flares for other conditions and stops your normal medications from working normally.

It takes weeks to recover and return to a semblance of functioning.

#disabled

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 3

1/ I could be wrong - maybe it’s just a bad day - but it certainly seems like millennials are being royally screwed, no matter how high their education or type of work we do - it seems increasingly the only people who have a fair go are those who can draw on generational wealth.

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 3

there’s something I’m wondering if other people in my generation (millennial) are rumbling with, and if so what conclusions you’ve come to:

when will we have a fair crack of anything, and long term stability? How do you build a life without generational wealth?

#auspol

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Ashleigh Rae @sparklyashleigh.bsky.social · Jun 3

My bones are itchy.

The day I’m having.

Itchy bones.

#sensoryhell

Ashleigh Rae @sparklyashleigh.bsky.social · May 27

It’s time to migrate office spaces. I’m not vibing with the room I’ve been working out of for the last 18 months - it’s small, there’s only one power point and the lighting for my broken eyes is less than ideal.

So I’m moving back to my original home office space, where it’s far comfier!

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Ashleigh Rae @sparklyashleigh.bsky.social · May 26

Happy Monday y’all, may your day be appropriately medicated and caffeinated ☕️

Ashleigh Rae @sparklyashleigh.bsky.social · May 22

1/ Reflection is crucial in our roles, it helps us be better at our job - and self care is equally important.

Do what you need to do to process the stressors from this week: journal it, talk with a peer supervisor or therapist, exercise or… have a big ol’ snotty cry sesh (my personal favourite).

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Ashleigh Rae @sparklyashleigh.bsky.social · May 22

If you’re a Support Coordinator or Recovery Coach and this week has sent you over the edge, it’s ok to take a beat to process and feel the feels.

It’s ok to be worried and scared right now, and frustrated.

Take a beat, reflect, then plan your next steps.

#ndis #disability

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Ashleigh Rae @sparklyashleigh.bsky.social · May 22

2/ Im also glad tried and true wisdom (and science) works, even when I don’t want it to - that moving my body does in fact, help keep the Big Sad at bay, and helps me process and release stress.

Much to my annoyance, it dang well works a treat.

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Ashleigh Rae @sparklyashleigh.bsky.social · May 22

1/ I’m thankful I now live in a community where the council makes the effort to ensure parks, shops, roads etc are reasonably accessible - wide, well maintained paths mean I don’t have to expend as much energy worrying about slips, trips and falls when I just need to unwind and empty my mind.

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Ashleigh Rae @sparklyashleigh.bsky.social · May 22

✨WINNING✨
I was absolutely in the Sad Place yesterday, after new changes by NDIS were abruptly implemented.

So… my Support Worker took me for a good long walk - we covered a bit over a kilometre.

This is a BIG distance for me, when there are days when I can’t make a cuppa.

#POTs #disability

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Ashleigh Rae @sparklyashleigh.bsky.social · May 21

Winter for me and other POTs humans is wonderful.

We go from being prisoners in our homes during summer being barely able to get out of our beds, to the best functioning we’re likely to have all year - while freezing out butts off.

#disability #pots

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Ashleigh Rae @sparklyashleigh.bsky.social · May 18

Happy Monday y’all, may your day appropriately medicated and caffeinated 😎

#coffee #goodmorning

Ashleigh Rae @sparklyashleigh.bsky.social · May 10

Foodies, I need your collective wisdom.

I know nothing about wine, but there are so many recipes that call for it.

How do I know I’ve got the right wine, when a recipe just says red or white?

How do I know if I have the right one?

Sincerely,

Confused.

#foodie #cooking #homecook