Real treatments and therapy= real progress

2 weeks after the 15th Help apheresis & 1.5 weeks after the 6th #ivig :
My #mecfs kid has been taking part digitally with avatar in 3 school lessons daily from 9.45 on since Thursday & after a break been able to do some homework in the afternoon. This was unthinkable before..

Now with Englisch subtitles
wrote this song for my kid with ##mecfs with her quotes & she sang it & drew for all the sick #longcovidkids

#spn inspired: „where is my hunter? Who‘ll rescue me?“
Please support the #lemonchallengemecfs help to safe our kids
#spnfamily

youtu.be/8Xd6NaCrPnw?...

@lisaberrylive.bsky.social
Please support this good cause

Dear #spnfamily my #kid with #mecfs designed with @idlingintheimpala.bsky.social a cool bag to raise awareness fo fans with #longCovid #mecfs

profits go to #lemonchallengemecfs
to fund research for a cure. 🙏 buy a bag &
#GiveHope
#supernatural
idlingintheimpala.com/en-eur/produ...

Here is the English translation of our song. Sung byy kid with #mecfs #longcovid for all the kids with long COVID. Hope you'll enjoy it. youtu.be/8Xd6NaCrPnw?...

wrote this song for my #mecfs #kid & all the sick kids out there. My Kid sang &did the drawings. Hope your kids like it. 🙏 Share to help spread awareness for #longCovid kids #millionsmissing

youtu.be/8Xd6NaCrPnw?...

And here is another argument for Vit. D. For pations with #longCOVID
youtu.be/ha2mLz-Xdpg?...

And this study I found now, really supports Dr. Gominacs approach that says that a lack of vit. D causes many of the #longCovid #mecta symptoms and that B vitamins and Vit D are much more important than many knew. pubmed.ncbi.nlm.nih.gov/39072958/

Watched this for my sleep disorder. But this nurologist is discribing so many symptoms my #mecfs Kid has & what to do in detail. Great Interview. Worth listening to for all with #mecfs #longcovid
We're doing her rightsleep program now
#nichtgenesen

youtube.com/watch?v=g-Do...

youtube.com/watch?v=V4aG...
My daughter’s #art

#nichtgenesenenkids #nichtgenesen #mecfskids #mecfs #longcovid #longcovidkids #millionsmissing

This it what it feels like, when your child is severely ill. #art by 13 year old Rebecca, who is severely ill with ##longcovid #mecfs. For over a year misdiagnosed #frauenticket #youngartist #kidswithmecfs #nichtgenesen