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When is it time to say "when" for an MS treatment?

The MS Wire @themswire.bsky.social · Aug 16

Is there an age at which there’s no point in using an #ms disease modifying treatment? Here’s my opinion. open.substack.com/pub/edtobias...
#multiplesclerosis

Using disease modifying therapies to treat older people, like me, who have multiple sclerosis isn’t a simple choice.

Empowering people affected by MS to live their best lives

The MS Wire @themswire.bsky.social · Jul 25

A new study to measure MS fatigue using an app is looking for participants, and - get this - the upper age limit is 89! I wish other researchers would include multiples clerosis seniors.

www.nationalmssociety.org/how-you-can-...
#MS #disability #multiplesclerosis

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.

www.nationalmssociety.org

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The MS Wire @themswire.bsky.social · Jul 18

A clinical trial of an oral med to counter #multiplesclerosis spasticity is recruiting. 48 centers spanning half a dozen countries. edtobias.substack.com/publish/post...

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The MS Wire @themswire.bsky.social · Jul 16

BrainHQ is a web-based program designed to improve the brain's processing speed. I gave it a test to see if it might help some of my #multiplesclerosis symptoms. #disability #cognition

open.substack.com/pub/edtobias...

Using BrainHQ to try to improve my MS brain

BrainHQ is a web-based program designed to improve the brain's processing speed. I gave it a test to see if it might help some MS symptoms.

Can lab animals be replaced by AI?

The MS Wire @themswire.bsky.social · May 30

The FDA is starting to replace lab animals with AI. Is it the right thing to do? #multiplesclerosis #disability #research open.substack.com/pub/edtobias...

The headline on the news release that dropped into my in-box recently read: “FDA Announces Plan to Phase Out Animal Testing Requirement for Monoclonal Antibodies and Other Drugs.”

This MS research left me wondering "why?"

The MS Wire @themswire.bsky.social · May 12

This MS research left me wondering "why?"
open.substack.com/pub/edtobias...

Have you ever looked at a multiple sclerosis (MS) research paper and thought “why in the world did they waste time and money on that?” I read one of those reports the other day, about MS fatigue and l...

On New Website, Trump Declares Lab Leak as ‘True Origins’ of Covid

The MS Wire @themswire.bsky.social · May 2

Ham radio friends - I'm excited to report the second addition of my guide to Morse code operating, "DITS and DAHS," is now available on Amazon as both a paperback and an e-book. Lots of good info about learning the code and improving your CW operating. www.amazon.com/DITS-DAHS-AB... #hamradio #morse

The MS Wire @themswire.bsky.social · Apr 21

Want solid info about COVID-19? You can’t get it from the covid dot gov website anymore. www.nytimes.com/2025/04/18/s...

The White House has thrown its weight behind the lab leak theory, an idea that has divided intelligence agencies.

www.nytimes.com

Did I find a simple solution to my zinging MS pain?

The MS Wire @themswire.bsky.social · Mar 26

Zing, went some MS pain. #multiplesclerosis #pain open.substack.com/pub/edtobias...

It was 3:20 in the morning when my leg jolted me awake, zinging with pain.

The MS Wire @themswire.bsky.social · Feb 8

Thanks for the repost

NIH cuts billions of dollars in biomedical funding, effective immediately

The MS Wire @themswire.bsky.social · Feb 8

I have no doubt that #multiplesclerosis research will be among the research that will take a hit from this. If you are in the U.S. it’s time to call your members of Congress and tell them to put an end to this craziness. www.washingtonpost.com/health/2025/...

The move halts a large slice of money for most universities and research institutions virtually overnight, imperiling vital research in everything from cancer to heart disease.

www.washingtonpost.com

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The MS Wire @themswire.bsky.social · Jan 31

Love this game. Play it almost every day.

Copaxone, Glatopa (glatiramer acetate): Drug Safety Communication

The MS Wire @themswire.bsky.social · Jan 23

FDA issues warning about rare, but serious allergic reaction to Copaxone, Glatopa (glatiramer acetate) #MS treatments #multiplesclerosis www.fda.gov/safety/medic....

Treat immediately if symptoms worsen or do not go away shortly after an injection

www.fda.gov

Empowering people affected by MS to live their best lives

The MS Wire @themswire.bsky.social · Jan 21

I can’t tell from your posts if MS is one of your illnesses. If it is, I’d suggest you try to find an MS specialist, who would be much more likely to understand your fatigue.

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The MS Wire @themswire.bsky.social · Jan 21

I’m really sorry about fatigue spoiling things. I’ve been living with it for over 40 years with #ms. It impacted activities with our son and now our grandkids. Are you using any meds, such as modafinil? Have you considered a lightweight scooter for excursions ? #multiplesclerosis #disability

Emberella 🌈 @rev-colleen.bsky.social · Jan 20

On Saturday my daughter and I spent just under 4 hours cleaning out the garage. We worked about an hour at a time then took a 30 minute break. The plan was to treat ourselves to Magic Mountain on Sunday...except I woke feeling like I'd lost an MMA fight and couldn't get out of bed.
#EDS #Fibro

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The MS Wire @themswire.bsky.social · Jan 20

I didn't get past the initial screening for this survey - maybe I'm not anxious or nervous enough - but you might be interested. #multiplesclerosis #ms
www.nationalmssociety.org/how-you-can-...?

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.

www.nationalmssociety.org

Tolebrutinib nears the MS approval finish line - The MS Wire

The MS Wire @themswire.bsky.social · Jan 17

There are some very good tips, here. Even though I just use a scooter, there have certainly been times when the chatter and activity has been “over my head.” And don’t get me started on the people glued to their mobile devices while walking on a sidewalk. #multiplesclerosis

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The MS Wire @themswire.bsky.social · Jan 16

Tolebrutinib on a fast track towards final FDA approval to treat #SPMS. #MS themswire.com/tolebrutinib...

Tolebrutinib is a disease-modifying therapy on the brink of being approved to fight multiple sclerosis. Fingers crossed that it is.

themswire.com

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The MS Wire @themswire.bsky.social · Jan 16

MS study of potential SPMS treatment seeking participants in US. www.nationalmssociety.org/how-you-can-...?

Empowering people affected by MS to live their best lives

The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.

www.nationalmssociety.org

The MS Wire @themswire.bsky.social · Dec 18

Where did you find that great image??

Real people at the check-out make things easier for me - The MS Wire

The MS Wire @themswire.bsky.social · Dec 17

Anyone with #ms who rides a scooter tried a do-it-yourself check-out lately?

themswire.com/real-people-...

Don't you hate self check-out? Shopping while riding my scooter, I certainly do. Do people who design these things ever think about access?

themswire.com

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The MS Wire @themswire.bsky.social · Dec 15

True. Sanofi says the liver concerns in a small number of patients appeared early in treatment and were handled without needing further care. And, of course, some serious side effects have been reported with many of the high efficacy DMTs in use today. They all require a risk/benefit discussion.

Press Release: Tolebrutinib designated Breakthrough Therapy by the FDA for non-relapsing secondary progressive multiple sclerosis

The MS Wire @themswire.bsky.social · Dec 15

Tolebrutinib, an experimental BTK inhibitor, gets FDA’s Breakthrough designation to treat non-relapsing Secondary Progressive #MS
www.sanofi.com/en/media-roo...

Tolebrutinib designated Breakthrough Therapy by the FDA for non-relapsing secondary progressive multiple sclerosis Designation is based on positive results from the HERCULES study in adults with...

www.sanofi.com

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The MS Wire @themswire.bsky.social · Dec 13

A vaccine to protect against norovirus? A Phase 3 clinical trial is seeking volunteers and, for a change, the researchers including older folks.

connect.trialscope.com/studies/1f82...?

Citeline Connect

connect.trialscope.com