Lightnews — Scholar-powered news

The Zebra Alliance Community @thezebraalliance.bsky.social · 5h

Up next 😉 Occipital Neuralgia 🧠
Symptoms include:
• Continuous aching, burning, and throbbing pain
• Shocking sensations starting at the base of the head > radiating to the scalp
• May feel pain behind one eye
• Light movements like brushing hair can trigger discomfort
• The pain resembles migraines

Occipital Neuralgia

Occipital Neuralgia is a condition in which the occipital nerves, the nerves that run through the scalp, are injured or inflamed. This causes headaches

www.aans.org

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Reposted by The Zebra Alliance Community

The Zebra Alliance Community @thezebraalliance.bsky.social · 3d

We stay away from politics for the most part, but our home state has been taken to SCOTUS over our Conversion Therapy Ban.
If you are trans or are an ally, PLEASE, everyone, BOMBARD SCOTUS WITH PHONE CALLS & EMAILS TO NOT OVERTURN THE BAN. 🏳️‍⚧️🙏🏳️‍🌈🙏🏳️‍⚧️
#transgender #LGBTQ #LGBTQIA #SupremeCourt #Colorado

Supreme Court’s conservative majority prepared to rule against conversion therapy ban | CNN Politics

A majority of the Supreme Court signaled Tuesday it is prepared to rule against Colorado’s ban on “conversion therapy” for minors, with several justices signaling they agree with a licensed counselor ...

www.cnn.com

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The Zebra Alliance Community @thezebraalliance.bsky.social · 11h

When I was in my early 20s, I had Medicaid - Planned Parenthood was one of the few health providers that took it. Without PP: No OBGYN or GP. No Prenatal Care. No Postnatal Care. No Cervical Cancer Treatment. No Mental Health assistance. > @ppfa.org is SO much more than abortions: They are NEEDED! ⚕️

Planned Parenthood @ppfa.org · 11h

Abortion rights are not only crucial to our physical health, but also key to our mental well-being. No one should have to live in fear and worry over not having control over their own bodies.

On #WorldMentalHealthDay, let's advocate for the right to abortion care.

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The Zebra Alliance Community @thezebraalliance.bsky.social · 11h

Get rid of the [ ] and it should work 😀👍

We have been boycotting Meta Apps since Jan. Can't support Zuckerberg. ... we miss Meta at times - mainly IG - but we need to stand our ground for our beliefs and those being (indirectly) hurt by Zuck. ... It's the only reason we came to Bluesky🤫🙃🙂

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The Zebra Alliance Community @thezebraalliance.bsky.social · 12h

One more reason to get your Measles Vaccination 👇

CT Rare Advocate @rarectadvocate.com · 9d

Subacute Sclerosing Panencephalitis (SSPE) is a rare, progressive, fatal brain disorder from a persistent measles virus infection, usually occurring years after the initial measles infection.

Learn more www.encephalitis.info

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

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The Zebra Alliance Community @thezebraalliance.bsky.social · 12h

We want to address RFK comments on circumcision + autism studies: "Kennedy was probably referring to a 2013 study of eight countries and a 2015 study from Denmark...Scientists last yr found no evidence supporting the claim that circumcision leads to autism or any other adverse psychological effects"

RFK, Jr., Cites ‘Truly Appalling’ Studies to Tie Autism to Circumcision and Tylenol

Studies suggesting circumcision rates are linked with autism are “riddled with flaws”

www.scientificamerican.com

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The Zebra Alliance Community @thezebraalliance.bsky.social · 12h

"Mary Brunkow, Fred Ramsdell & Shimon Sakaguchi ... Nobel Prize in Physiology/Medicine 2025 for their ... discoveries relating to peripheral immune tolerance. The laureates identified the immune system’s security guards, regulatory T cells, which prevent immune cells from attacking our own body" 👏💐

Nobel Prize in Physiology or Medicine 2025

The Nobel Prize in Physiology or Medicine 2025 was awarded jointly to Mary E. Brunkow, Frederick J. Ramsdell and Shimon Sakaguchi "for their discoveries concerning peripheral immune tolerance"

www.nobelprize.org

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The Zebra Alliance Community @thezebraalliance.bsky.social · 13h

Add to the read a book and turn off TV: Put away tech an hour before bed - phone, computer, tablet, etc. 📱😴

yoda from star wars is holding a cell phone in his hand and says `` put phone down you will '' .

Alt: yoda from star wars is holding a cell phone in his hand and says `` put phone down you will '' .

media.tenor.com

The Zebra Alliance Community @thezebraalliance.bsky.social · 13h

"A thunderclap headache is a rare type of headache that’s extremely painful and comes on suddenly. It can be a sign of blood vessel issues or bleeding in your brain. Because of this, a thunderclap headache requires immediate medical attention."
Have you had a #ThunderclapHeadache?

Thunderclap Headache: What It Is, Causes & Symptoms

A thunderclap headache is an extremely painful headache that comes on suddenly. It can be a sign of brain bleeding and is considered a medical emergency.

my.clevelandclinic.org

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The Zebra Alliance Community @thezebraalliance.bsky.social · 1d

Vestibular Migraines can be a combo of these symptoms:
Vertigo (dizziness)
Unsteadiness / Loss of Balance
Nausea + Vomiting
Sensitivity to Light, Smell + Noise
Sensitivity to Motion
+ Throbbing Headache

Vestibular Migraine

Vestibular migraine can cause vestibular or balance symptoms with or without an actual headache. Vestibular migraine isn’t fully understood, but seems to result from overlapping pathways that modulate...

www.hopkinsmedicine.org

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The Zebra Alliance Community @thezebraalliance.bsky.social · 1d

This!!! There is SO much that effects Public Health. A lot of people have little to no understanding. Please share @yalesph.bsky.social post below so we can educate as many as possible 🩵👇🩵

Yale School of Public Health @yalesph.bsky.social · 1d

Public health is like cake. Cake has layers. Public health has layers. And when we stack the layers of public health – think combining sanitation + nutrition + medical treatments + vaccines + addressing social & environmental factors that impact health – we get to enjoy more birthday cakes.

1/9 🧵🧵

PUBLIC HEALTH: A LAYER CAKE that leads to
more birthdays
How the layers of sanitation, nutrition, treatments, and vaccines all work together to reduce sickness and death from infectious disease —>
@YaleSPH x @Your_Local_Epidemiologist x @ScienceWhizLiz x @ScienceWithAnni x @DrHigginsMd x @DrScottHadland

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The Zebra Alliance Community @thezebraalliance.bsky.social · 1d

If someone hasn't experienced Vertigo, it is so difficult for them to have any understanding of how life altering it can be 😞

a black and white dog are sitting next to each other in a field .

Alt: a black and white dog are sitting next to each other in a field hugging each other "Sending hugs"

media.tenor.com

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The Zebra Alliance Community @thezebraalliance.bsky.social · 1d

This goes to show what happens when religion is taken out of the equation, and human health is made the priority 😍 ... Will Mr. Trump, World Leaders, and the Middle East take note and learn from these Israelis and Palestinians? All we can do is hope.
#raredisease #gaucherdisease #healthcare

Rare Disease Advisor @rarediseaseadvisor.bsky.social · 2d

Shaare Zedek’s Gaucher unit is the largest of its kind in the world and treats patients of both Israeli and Palestinian-Arab backgrounds.

Read the full feature here➡️: https://bit.ly/3KNdPBX

#RareDisease #GaucherDisease #MedSky #RareSky

In Israel, World's Largest Gaucher Clinic Treats Both Jewish and Arab Patients

Shaare Zedek’s Gaucher unit is the largest of its kind in the world and treats patients of both Israeli and Palestinian-Arab backgrounds.

bit.ly

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The Zebra Alliance Community @thezebraalliance.bsky.social · 1d

The vertigo (feeling) 😵‍💫🤪🫶

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The Zebra Alliance Community @thezebraalliance.bsky.social · 2d

DYK: October is Dysautonomia Awareness Month 🩵
If you live w a form of #Dysautonomia, what is one thing you wish people knew about what its like to live w it? 🫶
Dysautonomia is one of the, "It's not rare. It's just rarely diagnosed." Though, things are improving w education 🤗
#ANSdysfunction #POTS

Dysautonomia Awareness Month is observed globally in October to educate the public and provide support for individuals affected by dysautonomia, a condition affecting the autonomic nervous system's ability to regulate involuntary bodily functions, like heart rate and blood pressure. Started by Dysautonomia International in 2012, the month encourages activities like "lighting it up turquoise," requesting government proclamations, and seeking media coverage to increase understanding and support.
(Google)

The seven most common symptoms:
Difficulty Standing Still
Fatigue
Lightheadedness
Nausea and Other GI Symptoms
Brain Fog and Mental Clouding
Palpitations or Chest Discomfort
Shortness of Breath or Difficulty Breathing
But there are more symptoms.
The organ systems most commonly affected in dysautonomias are neurological, pulmonary, cardiovascular, urinary, gastrointestinal, secretomotor and pupillomotor.
(Info from the Dysautonomia Project. Info Graphic is from Cleveland Clinic.)

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The Zebra Alliance Community @thezebraalliance.bsky.social · 2d

The New Studies coming out about hEDS (Hypermobile EDS) = People think the numbers coming out are for EDS across the bd, not knowing the studies address #hEDS or that there are 13 types of #EDS 🩵🦓🩵
It is time to share as much information as possible! The confusion is going to get worse if we don't 🤪

What is EDS? - The Ehlers Danlos Society

www.ehlers-danlos.com

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The Zebra Alliance Community @thezebraalliance.bsky.social · 2d

Another that affects vision without pain, Silent Migraines, also called Acephalgic Migraines:
www.verywellhealth.com/silent-migra...
While less common, these are not considered a rare disease.

"What to know about silent migraines" info graphic. Follow link in post to find out the same info that is in the photo.

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The Zebra Alliance Community @thezebraalliance.bsky.social · 2d

"An ocular migraine is an episode of (partial) vision loss in one eye, usually lasting less than one hour and is associated with a headache."

Ocular migraine

Ocular migraines are typically caused by reduced blood flow or spasms of blood vessels in the retina or behind the eye. Ocular migraines is an episode of vision loss in one eye, usually lasting less t...

www.aoa.org

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The Zebra Alliance Community @thezebraalliance.bsky.social · 2d

"The ... hypothesis is that people who experience #AbdominalMigraine have overly sensitive nervous systems — specifically the primary sensory + central spinal neurons... Researchers think that certain genetic, psychosocial + environmental factors may make someone vulnerable to this hypersensitivity"

Abdominal Migraine: What It Is, Causes, Symptoms & Treatment

Abdominal migraine is a form of migraine that causes episodes of moderate to severe abdominal (belly) pain. It mainly affects children, especially girls.

my.clevelandclinic.org

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The Zebra Alliance Community @thezebraalliance.bsky.social · 2d

For those who do not know what a Hemiplegic Migraine: migrainetrust.org/understand-m...

The word Hemiplegic means Paralysis on one side of the body.

Symtpoms: Head to https://migrainetrust.org/understand-migraine/types-of-migraine/hemiplegic-migraine/#page-section-1

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The Zebra Alliance Community @thezebraalliance.bsky.social · 2d

OMG! We are SO sorry you had to experience that!!! 🩵🫂🩵 So glad you made it out the other side!!! 🩵💓🩵

The Zebra Alliance Community @thezebraalliance.bsky.social · 3d

We stay away from politics for the most part, but our home state has been taken to SCOTUS over our Conversion Therapy Ban.
If you are trans or are an ally, PLEASE, everyone, BOMBARD SCOTUS WITH PHONE CALLS & EMAILS TO NOT OVERTURN THE BAN. 🏳️‍⚧️🙏🏳️‍🌈🙏🏳️‍⚧️
#transgender #LGBTQ #LGBTQIA #SupremeCourt #Colorado

Supreme Court’s conservative majority prepared to rule against conversion therapy ban | CNN Politics

A majority of the Supreme Court signaled Tuesday it is prepared to rule against Colorado’s ban on “conversion therapy” for minors, with several justices signaling they agree with a licensed counselor ...

www.cnn.com

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The Zebra Alliance Community @thezebraalliance.bsky.social · 3d

For real 💨😭🤪

#RareDiseases:
#HemiplegicMigraine
Migraine With Brainstem Aura
#AbdominalMigraine
#OcularMigraine (founder of TZA gets these)
#VestibularMigraine
#ThunderclapHeadaches
#OccipitalNeuralgia (founder of TZA gets these)
And there's more.

#headaches #migraines #chronicillness #chronicpain

"My body is a machine that turns thin air into a migraine"

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The Zebra Alliance Community @thezebraalliance.bsky.social · 3d

Too many don't understand why Universal Healthcare is important. Perfect e.g. millions w #ChronicIllness don't work because of being unreliable, and deemed "unemployable". Many wait decades for diagnosis, and even then, can they afford treatment? This needs to be dealt with 🩵🦓🩵

#EDS #raredisease

"When celebrities announce their chronic illness, I feel more seen but mostly I wish they'd say they're able to resume their careers because they accessed diagnoses and treatment that less influential & especially more marginalized people wait decades for or never get"

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The Zebra Alliance Community @thezebraalliance.bsky.social · 4d

#MentalHealth Alert:
If your adolescent child uses Character.AI, PLEASE read this article and uninstall the app + block the website 👉 AI is not being safely used, especially when it comes to our children and predators.

Heads Up: Roblox is another app to uninstall (and block) from your kids devices.

Colorado family sues AI chatbot company after daughter's suicide: "My child should be here"

The Social Media Victims Law Center has filed three lawsuits against chatbot platform Character.AI. Two of them are in Colorado.

www.cbsnews.com

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