Two Faces of MS πŸ’‹
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twofacesofms.bsky.social
Two Faces of MS πŸ’‹
@twofacesofms.bsky.social
190 followers 20 following 110 posts
A little about MS & a lot about the adventure of life's journey along the way. #MultipleSclerosis Proud, liberal, humanitarian, nearly 30 years working in healthcare, open to patient speaking engagements https://twofacesofms.com/
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And as of today this "free" healthcare has cost me $12,534 (so far) with 2.5 months left in the year. This is the very definition of insane; banging our heads against the wall and expecting a different outcome. I blame both sides of the aisle for this gross display of capitalism. 1/2
Let me tell you about the business of health insurance in this country.

I am a single person LLC consultant.

I have had insurance on / off through the NYS ACA for years. It’s the most expensive exchange in the country when you don’t qualify for subsidies. 1/8
NY We need your voice! There’s a petition calling on Gov Hochul to act now & protect vaccine access for all NYers. Vaccine gap means some ppl may not get the care they need. Access should not depend on zip code or $. Our community’s health is stronger when everyone is included.
Sign & share w NYers
Tell Governor Hochul: Act Now to Protect Vaccine Access for All New Yorkers
Governor Hochul has taken an important step by extending Executive Order 52 for another 30 days, allowing pharmacists to keep administering COVID-19 vaccines until November 5. But that 30-day extensio...
actionnetwork.org
It was going to be modeled after Switzerland’s insurance system, which I used for four years. It would have been amazing. But MoscowMitch said NOPE. I hope he drops dead on live TV.
We need our Dem electeds to finally fucking pass the NY Health Act. It was first introduced in 1992. So when they tell us they support everyone having health ins & then refuse a floor vote, it tells me all I need to know. We’ve had all 3 branches for how many years now?
$250 fucking million on a gold plated ballroom and I’m staring down not having health instance next year.
Out of one side of their mouth Democrats say, "of course everyone should have healthcare" and then they do NOTHING about moving us to actual coverage for all. I'm so incredibly angry. 2/2
And as of today this "free" healthcare has cost me $12,534 (so far) with 2.5 months left in the year. This is the very definition of insane; banging our heads against the wall and expecting a different outcome. I blame both sides of the aisle for this gross display of capitalism. 1/2
Let me tell you about the business of health insurance in this country.

I am a single person LLC consultant.

I have had insurance on / off through the NYS ACA for years. It’s the most expensive exchange in the country when you don’t qualify for subsidies. 1/8
The kicker? Seeing single payer up close this year? It works and everyone should have it. And healthcare should be a right of birth not a privilege for only the wealthy. 8/8
To top it off the catastrophic plan no longer exists and the cheapest plan is now $675pm with barely any coverage.

I know I have it better than a lot of people, but I also live with two diseases. For the first time in my life, in 2026, I won’t have health insurance. 7/8
With everything that’s happened this year personally, and the sheer amount of government workers being laid off, the competition is fierce. I have several prospects and I’m working on some long term opportunities, but there’s no income timeline at all. 6/8
Today begins 2026 open enrollment for NYS and I was told, even though I meet the income threshold, that I no longer qualify for either Medicaid OR financial assistance. 5/8
The NYS system read it as such and said I qualified for Medicaid, which was shocking. I called the state to make sure I did the application correctly. They assured me that they dealt with consultants in my position all the time and said it’s fine and I was approved. 4/8
At the time I filled out the application in November 2024 I was technically β€œunemployed” (e.g. between contracts) and waiting for more client work. 3/8
Last year I was resigned to having only catastrophic for 2025 @ $330 per month with a $10k deductible. I’m paying so much OOP anyway, might as well keep it in my account for as long as possible. 2/8
Let me tell you about the business of health insurance in this country.

I am a single person LLC consultant.

I have had insurance on / off through the NYS ACA for years. It’s the most expensive exchange in the country when you don’t qualify for subsidies. 1/8
We need single payer health insurance in the U.S. 1/2

open.substack.com/pub/drjessic...
People truly don’t get that even if you have health insurance through your employer, you will be paying more. We could easily have single payer in the U.S.
For a myriad of reasons, we need to be able to get medicines from whatever pharmacy we choose.

And imagine how many companies are getting a cut along the way, with the developer at the top setting the price. 3/3
Then if it's a speciality drug, no idea why they're treated differently, the PBM sends the script to the specialty pharmacy.

If the speciality pharmacy doesn't screw it up, you get your meds (they screw up a lot)
Whether speciality or not, meds (all meds) can be altered by temps (hot & cold). 2/3