Chronic
@chronicaction.bsky.social
Arts, Comedy & Science Social Justice Campaign for chronic illness, chronic pain & disability
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TV once made designated drivers mainstream, and 'Will & Grace' changed hearts on marriage equality. Now an effort is underway to get caregiving on screens — and perhaps influence paid family leave policy.
19thnews.org/2025/10/holl...
19thnews.org/2025/10/holl...
Can Hollywood do for paid leave what Congress hasn’t?
TV once made designated drivers mainstream, and 'Will & Grace' changed hearts on marriage equality. Now an effort is underway to get caregiving on screens — and perhaps influence paid family leave pol...
19thnews.org
October 23, 2025 at 7:45 AM
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July 9, 2025 at 11:19 AM
The term co-production first came from the book ‘No More Throwaway People’ by human rights lawyer, political speech writer and civil rights activist Edgar Cahn. This seems particularly fitting for the welfare cuts bill. 🙏 @vickyfoxcroft
(1/2) In today’s debate on the UC & PIP Bill I emphasised the importance of genuine co-production.
I welcome the Government’s confirmation today that no changes to PIP will be made until the Timms review has been completed in full partnership with disabled people.
I welcome the Government’s confirmation today that no changes to PIP will be made until the Timms review has been completed in full partnership with disabled people.
July 2, 2025 at 3:00 PM
The term co-production first came from the book ‘No More Throwaway People’ by human rights lawyer, political speech writer and civil rights activist Edgar Cahn. This seems particularly fitting for the welfare cuts bill. 🙏 @vickyfoxcroft
We’re so proud to be one of the 138 disability groups backing this
www.theguardian.com/politics/202...
#cutscutscuts #disabilitycuts #stopthecuts #takingthepip
www.theguardian.com/politics/202...
#cutscutscuts #disabilitycuts #stopthecuts #takingthepip
No 10 plan to avert Labour welfare rebellion in chaos amid division over scale of concessions
MPs including select committee chairs express doubts that concessions agreed last week go far enough
www.theguardian.com
July 1, 2025 at 5:35 PM
We’re so proud to be one of the 138 disability groups backing this
www.theguardian.com/politics/202...
#cutscutscuts #disabilitycuts #stopthecuts #takingthepip
www.theguardian.com/politics/202...
#cutscutscuts #disabilitycuts #stopthecuts #takingthepip
We’re delighted to have contributed a poem to this zine. A copy will be held at the @wellcomecollection from today. It’s timed with the second reading of the UC & PIP Bill
Thanks to @disabledpeopleagainstcuts groups working together and arti0xox
#cutscutscuts #stopthecuts #disabilitybenefits
Thanks to @disabledpeopleagainstcuts groups working together and arti0xox
#cutscutscuts #stopthecuts #disabilitybenefits
July 1, 2025 at 11:13 AM
We’re delighted to have contributed a poem to this zine. A copy will be held at the @wellcomecollection from today. It’s timed with the second reading of the UC & PIP Bill
Thanks to @disabledpeopleagainstcuts groups working together and arti0xox
#cutscutscuts #stopthecuts #disabilitybenefits
Thanks to @disabledpeopleagainstcuts groups working together and arti0xox
#cutscutscuts #stopthecuts #disabilitybenefits
It is an established fact that the MRC has a secret file on ME that contains records and correspondence since at least 1988, which, co-incidentally, is about the time that Simon Wessely began to deny the existence of ME.
www.investinme.org/Article-358%...
www.investinme.org/Article-358%...
Invest in ME - The Medical Research Council’s Secret Files on ME/CFS
www.investinme.org
June 30, 2025 at 7:19 PM
It is an established fact that the MRC has a secret file on ME that contains records and correspondence since at least 1988, which, co-incidentally, is about the time that Simon Wessely began to deny the existence of ME.
www.investinme.org/Article-358%...
www.investinme.org/Article-358%...
Fantastic and necessary article by @richardburgon.bsky.social 🙏
Dear PM, thanks for the welfare concessions, but I still won’t vote for your bill. Scrap the whole thing | Richard Burgon
www.theguardian.com/commentisfre...
Dear PM, thanks for the welfare concessions, but I still won’t vote for your bill. Scrap the whole thing | Richard Burgon
www.theguardian.com/commentisfre...
June 30, 2025 at 6:07 PM
Fantastic and necessary article by @richardburgon.bsky.social 🙏
Dear PM, thanks for the welfare concessions, but I still won’t vote for your bill. Scrap the whole thing | Richard Burgon
www.theguardian.com/commentisfre...
Dear PM, thanks for the welfare concessions, but I still won’t vote for your bill. Scrap the whole thing | Richard Burgon
www.theguardian.com/commentisfre...
Movement, heart rate and post exertional symptom exacerbation /malaise
In this video, Dr. David Putrino discusses the nuanced relationship between movement, heart rate variability ( #HRV), and post-exertional malaise ( #PEM) in people living with complex chronic illnesses like #ME/CFS, Long Covid, Fibromyalgia, and Chronic Lyme Disease.
youtu.be/pfoxIWgmWrM?...
youtu.be/pfoxIWgmWrM?...
June 29, 2025 at 11:37 AM
Movement, heart rate and post exertional symptom exacerbation /malaise
June 29, 2025 at 8:49 AM
June 24, 2025 at 4:35 PM
Millions with virus induced chronic illness have experienced this for years, decades, lifetimes. Many without the treatments and further diagnoses mentioned 👇If believed, longCovid would have far more solutions. We must ensure they’re not sidelined again now these issues are coming to light
Health Central: '5 Years After the Pandemic, Their Battle Against COVID Continues'
'Hospitalizations, job losses, chronic symptoms, and a fight for acceptance: People living with Long COVID share their real-life ups, downs, setbacks, and triumphs'
www.healthcentral.com/condition/co...
'Hospitalizations, job losses, chronic symptoms, and a fight for acceptance: People living with Long COVID share their real-life ups, downs, setbacks, and triumphs'
www.healthcentral.com/condition/co...
4 People With Long COVID Share Their Symptoms, 5 Years Post-Pandemic
Hospitalizations, job losses, chronic symptoms, and a battle for acceptance: People living with long COVID share their real-life ups, downs, setbacks, and triumphs.
www.healthcentral.com
June 23, 2025 at 3:31 AM
Millions with virus induced chronic illness have experienced this for years, decades, lifetimes. Many without the treatments and further diagnoses mentioned 👇If believed, longCovid would have far more solutions. We must ensure they’re not sidelined again now these issues are coming to light
Vital viewing to understand how we are where we are with ME, chronic fatigue syndrome and other chronic illnesses
The so-called Science Media Centre called in PACE "truther" Alan Carson to weigh in on the new Edinburgh study about blood-based biomarkers for ME/CFS. Here's my interview from last year with Guardian columnist George Monbiot on the SMC's shady history: www.youtube.com/watch?v=N1W4...
Interview with Guardian columnist George Monbiot about the London-based Science Media Centre
YouTube video by David M Tuller
www.youtube.com
June 23, 2025 at 2:15 AM
Vital viewing to understand how we are where we are with ME, chronic fatigue syndrome and other chronic illnesses
Termed the biggest medical scandal of 21st century, the chasm between world leading services & UK (and by proxy, several countries) has been a political choice & not a medical necessity. In some cases, blocking pathways to diagnoses of underlying causes & lifesaving treatments.
#ME #cfs #PACEScandal
#ME #cfs #PACEScandal
June 19, 2025 at 5:39 PM
Termed the biggest medical scandal of 21st century, the chasm between world leading services & UK (and by proxy, several countries) has been a political choice & not a medical necessity. In some cases, blocking pathways to diagnoses of underlying causes & lifesaving treatments.
#ME #cfs #PACEScandal
#ME #cfs #PACEScandal
Microplastics and chronic disease
A review of some 3,000 studies implicates microplastics in a variety of serious health problems. These include male & female infertility, colon cancer and poor lung function. The particles also may contribute to chronic pulmonary inflammation, which can increase the risk of lung cancer. 1/
June 19, 2025 at 5:28 PM
Microplastics and chronic disease
“Long COVID and ME/CFS with David Tuller” (62 minutes)
“David Tuller returns to TWiV to discuss RFK Jr. & the trashing of American public health, rituximab & ME/CFS, The Sick Times, the Cochrane Mess, a Norwegian Long Covid trial, effort preference & more”
youtu.be/prA9ICYwwjY
#LongCovid #MEcfs
“David Tuller returns to TWiV to discuss RFK Jr. & the trashing of American public health, rituximab & ME/CFS, The Sick Times, the Cochrane Mess, a Norwegian Long Covid trial, effort preference & more”
youtu.be/prA9ICYwwjY
#LongCovid #MEcfs
TWiV Special: Long COVID and ME/CFS with David Tuller
YouTube video by MicrobeTV
youtu.be
June 19, 2025 at 5:26 PM
The scale of what has been coined the biggest medical scandal of the 21st century is enormous, encompassing numerous conditions. We are long overdue joining the dots
#ME #chronicfatiguesyndrome #EDS #connectivetissuedisorders #MCAS #POTS #fibromyalgia #postviralsyndrome including #longcovid
#ME #chronicfatiguesyndrome #EDS #connectivetissuedisorders #MCAS #POTS #fibromyalgia #postviralsyndrome including #longcovid
Dr Kane calls for investment, but also easier use of off-label therapies on the NHS.
This would be a new policy for some ME organistions, and could be a really wellcome change. Should we wait for RCTs for every drug when there are people in such desperate circumstances?
This would be a new policy for some ME organistions, and could be a really wellcome change. Should we wait for RCTs for every drug when there are people in such desperate circumstances?
June 19, 2025 at 5:16 PM
The scale of what has been coined the biggest medical scandal of the 21st century is enormous, encompassing numerous conditions. We are long overdue joining the dots
#ME #chronicfatiguesyndrome #EDS #connectivetissuedisorders #MCAS #POTS #fibromyalgia #postviralsyndrome including #longcovid
#ME #chronicfatiguesyndrome #EDS #connectivetissuedisorders #MCAS #POTS #fibromyalgia #postviralsyndrome including #longcovid
The latest in our cuts cuts cuts series ✂️
June 19, 2025 at 5:07 PM
The latest in our cuts cuts cuts series ✂️
