Lydia Makaroff
@makaroff.bsky.social
📍Cambridge, UK | she/her | Chief Executive, Multiple Sclerosis International Federation. Patient advocacy, non-profit leadership, healthcare policy, & public health 🌍. Enjoys Mars rovers 🚀, bookcrossing 📚, & birdwatching 🦜.
Got an exercise bike gathering dust? 🚴♀️
I’m riding 50km in May with the Indoor Pedallers to support MS research.
Every kilometre counts. No pressure.
Join us here: www.themay50k.com/fundraisers/...
#TheMay50K #IndoorCycling
I’m riding 50km in May with the Indoor Pedallers to support MS research.
Every kilometre counts. No pressure.
Join us here: www.themay50k.com/fundraisers/...
#TheMay50K #IndoorCycling
April 28, 2025 at 3:57 PM
Got an exercise bike gathering dust? 🚴♀️
I’m riding 50km in May with the Indoor Pedallers to support MS research.
Every kilometre counts. No pressure.
Join us here: www.themay50k.com/fundraisers/...
#TheMay50K #IndoorCycling
I’m riding 50km in May with the Indoor Pedallers to support MS research.
Every kilometre counts. No pressure.
Join us here: www.themay50k.com/fundraisers/...
#TheMay50K #IndoorCycling
A real pleasure to meet @rohangreenland.bsky.social in London this morning, fresh off the plane from Oz 🦘. Grateful to have him on the Board of the #MultipleSclerosis International Federation as we chatted about challenges & solutions over breakfast ☕ 🌏 #MSCommunity #MSAwareness
April 17, 2025 at 11:01 AM
A real pleasure to meet @rohangreenland.bsky.social in London this morning, fresh off the plane from Oz 🦘. Grateful to have him on the Board of the #MultipleSclerosis International Federation as we chatted about challenges & solutions over breakfast ☕ 🌏 #MSCommunity #MSAwareness
WELCOME TO #TheMay50K! I put on my red t-shirt for the first time, and we had our first team training day in London! Roll, walk or run 50K this May to support people living with #MultipleSclerosis 💙 themay50k.com
March 5, 2025 at 9:53 AM
WELCOME TO #TheMay50K! I put on my red t-shirt for the first time, and we had our first team training day in London! Roll, walk or run 50K this May to support people living with #MultipleSclerosis 💙 themay50k.com
I deleted my #Twitter today. 😢😡 Joined in 2008 as user #14,857,473, back when @Replies was new, #FailWhale was frequent, #iPhone3G was launched, & #ThisWeekInTech was my go-to podcast. Grateful for my 5,598 followers, but it's time. Used helloquittex.com to find friends on Bluesky. #GoodBye 👋
February 28, 2025 at 4:06 PM
I deleted my #Twitter today. 😢😡 Joined in 2008 as user #14,857,473, back when @Replies was new, #FailWhale was frequent, #iPhone3G was launched, & #ThisWeekInTech was my go-to podcast. Grateful for my 5,598 followers, but it's time. Used helloquittex.com to find friends on Bluesky. #GoodBye 👋
Trying out a Recumbent Cross Trainer, which helps people with #MultipleSclerosis stay active with low-impact exercise. It’s designed to improve strength, balance, & health. The Italian MS Society is publishing important research on the best rehab approaches. Grateful to learn from them! #MSRehab
February 28, 2025 at 9:38 AM
Trying out a Recumbent Cross Trainer, which helps people with #MultipleSclerosis stay active with low-impact exercise. It’s designed to improve strength, balance, & health. The Italian MS Society is publishing important research on the best rehab approaches. Grateful to learn from them! #MSRehab
The Italian MS Society’s #SentiComeMiSento workshops help us all understand invisible MS symptoms. Tools include TENS machines for tremors, scratched glasses for optic neuritis, gloves for sensory loss, and weights for fatigue. These simulations build awareness of MS challenges. #MSAwareness
February 25, 2025 at 7:49 PM
The Italian MS Society’s #SentiComeMiSento workshops help us all understand invisible MS symptoms. Tools include TENS machines for tremors, scratched glasses for optic neuritis, gloves for sensory loss, and weights for fatigue. These simulations build awareness of MS challenges. #MSAwareness
👟 Visiting the Associazione Italiana Sclerosi Multipla (Italian MS Society) today, I was able to hold a pair of The SMeakers - sneakers that share the words of Cristina, Federico, and Rachele, who all live with MS.
“Movement is life, even when it takes unexpected paths.”
💙 #MSAwareness
“Movement is life, even when it takes unexpected paths.”
💙 #MSAwareness
February 24, 2025 at 4:24 PM
👟 Visiting the Associazione Italiana Sclerosi Multipla (Italian MS Society) today, I was able to hold a pair of The SMeakers - sneakers that share the words of Cristina, Federico, and Rachele, who all live with MS.
“Movement is life, even when it takes unexpected paths.”
💙 #MSAwareness
“Movement is life, even when it takes unexpected paths.”
💙 #MSAwareness
Reposted by Lydia Makaroff
📢 Save the Date! 🎉 The 5th World Bladder Cancer Patient Forum is happening in Brussels on October 13-14, 2025! 🇧🇪
A key moment for the global #bladdercancer community to connect, share insights, and drive change. Registrations open in spring 2025 - stay tuned for updates!
👉 ow.ly/8qz250UV5aE
A key moment for the global #bladdercancer community to connect, share insights, and drive change. Registrations open in spring 2025 - stay tuned for updates!
👉 ow.ly/8qz250UV5aE
February 6, 2025 at 5:17 PM
📢 Save the Date! 🎉 The 5th World Bladder Cancer Patient Forum is happening in Brussels on October 13-14, 2025! 🇧🇪
A key moment for the global #bladdercancer community to connect, share insights, and drive change. Registrations open in spring 2025 - stay tuned for updates!
👉 ow.ly/8qz250UV5aE
A key moment for the global #bladdercancer community to connect, share insights, and drive change. Registrations open in spring 2025 - stay tuned for updates!
👉 ow.ly/8qz250UV5aE
I am looking for online interactive workshops on communication, collaboration, or connection - any recommendations? I learn best in live sessions, not pre-recorded modules.
#Workshops #InteractiveLearning #Communication #Collaboration #LiveWorkshops #SkillBuilding #OnlineLearning
#Workshops #InteractiveLearning #Communication #Collaboration #LiveWorkshops #SkillBuilding #OnlineLearning
February 11, 2025 at 12:04 PM
I am looking for online interactive workshops on communication, collaboration, or connection - any recommendations? I learn best in live sessions, not pre-recorded modules.
#Workshops #InteractiveLearning #Communication #Collaboration #LiveWorkshops #SkillBuilding #OnlineLearning
#Workshops #InteractiveLearning #Communication #Collaboration #LiveWorkshops #SkillBuilding #OnlineLearning
Reposted by Lydia Makaroff
🚨 Love science, advanced data analysis, and making a real impact? 🚨
We're hiring! 📊🌍
My team is looking for a 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗔𝗱𝘃𝗶𝘀𝗼𝗿 and an 𝗘𝗽𝗶𝗱𝗲𝗺𝗶𝗼𝗹𝗼𝗴𝘆 𝗔𝗱𝘃𝗶𝘀𝗼𝗿
Join us!
msf.lu/en/oradvisor...
msf.lu/en/conseille...
@msf.ca @amrishbaidjoe.bsky.social #medsky #episky #aidsky #idsky
We're hiring! 📊🌍
My team is looking for a 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗔𝗱𝘃𝗶𝘀𝗼𝗿 and an 𝗘𝗽𝗶𝗱𝗲𝗺𝗶𝗼𝗹𝗼𝗴𝘆 𝗔𝗱𝘃𝗶𝘀𝗼𝗿
Join us!
msf.lu/en/oradvisor...
msf.lu/en/conseille...
@msf.ca @amrishbaidjoe.bsky.social #medsky #episky #aidsky #idsky
Operational Research Advisor (f,m,x) — Association d'aide médicale humanitaire — Médecins Sans Frontières Luxembourg
A one-year contract with the possibility of extension
Based in Luxembourg
msf.lu
February 10, 2025 at 8:52 AM
🚨 Love science, advanced data analysis, and making a real impact? 🚨
We're hiring! 📊🌍
My team is looking for a 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗔𝗱𝘃𝗶𝘀𝗼𝗿 and an 𝗘𝗽𝗶𝗱𝗲𝗺𝗶𝗼𝗹𝗼𝗴𝘆 𝗔𝗱𝘃𝗶𝘀𝗼𝗿
Join us!
msf.lu/en/oradvisor...
msf.lu/en/conseille...
@msf.ca @amrishbaidjoe.bsky.social #medsky #episky #aidsky #idsky
We're hiring! 📊🌍
My team is looking for a 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗔𝗱𝘃𝗶𝘀𝗼𝗿 and an 𝗘𝗽𝗶𝗱𝗲𝗺𝗶𝗼𝗹𝗼𝗴𝘆 𝗔𝗱𝘃𝗶𝘀𝗼𝗿
Join us!
msf.lu/en/oradvisor...
msf.lu/en/conseille...
@msf.ca @amrishbaidjoe.bsky.social #medsky #episky #aidsky #idsky
Thinking about #PaidAds today. 🤔 Looking to reach the broader #MultipleSclerosis community. Which platforms should I focus on? 📢💙 #LinkedIn, #Instagram, #Facebook, #YouTube, #Reddit, #GoogleAds, #Nextdoor, #PatientsLikeMe… Any others I should consider? Drop your thoughts! ⬇️ #MSCommunity #Advertising
February 10, 2025 at 7:42 AM
Thinking about #PaidAds today. 🤔 Looking to reach the broader #MultipleSclerosis community. Which platforms should I focus on? 📢💙 #LinkedIn, #Instagram, #Facebook, #YouTube, #Reddit, #GoogleAds, #Nextdoor, #PatientsLikeMe… Any others I should consider? Drop your thoughts! ⬇️ #MSCommunity #Advertising
Flashback to when we met this magnificent great horned owl in Vancouver Canada in 2007. #superbowl
February 9, 2025 at 2:22 PM
Flashback to when we met this magnificent great horned owl in Vancouver Canada in 2007. #superbowl
Sunday reset. ☁️📂🌿 The sky is grey, but it is decent weather for #decluttering 🧹, #filing 📁, and #weeding 🌱 - clearing out the old to make space for the new. A slow, quiet reset before the week begins. How do you reset? ✨ #SundayVibes
February 9, 2025 at 10:01 AM
Sunday reset. ☁️📂🌿 The sky is grey, but it is decent weather for #decluttering 🧹, #filing 📁, and #weeding 🌱 - clearing out the old to make space for the new. A slow, quiet reset before the week begins. How do you reset? ✨ #SundayVibes
I'm off to the #RaspberryPi store today to begin the next phase of my #SmartHome adventure. Attempting to link up #GoogleNest accessories with #AppleHome. I'm feeling a little intimidated, so I'm glad I have friends on call and the internet at my fingertips. Like all things, one step at a time 🤓
February 8, 2025 at 11:36 AM
I'm off to the #RaspberryPi store today to begin the next phase of my #SmartHome adventure. Attempting to link up #GoogleNest accessories with #AppleHome. I'm feeling a little intimidated, so I'm glad I have friends on call and the internet at my fingertips. Like all things, one step at a time 🤓
#FridayThoughts 💅 What should my next #manicure be? 🌍What are my goals as a new Chief Executive working in #GlobalHealth? ☕ Do I need #coffee? 💙 What does it mean to represent the #MultipleSclerosis movement when I am not living with the disease? 🧊Will I ever manage to solve a #RubiksCube on my own?
February 7, 2025 at 9:34 AM
#FridayThoughts 💅 What should my next #manicure be? 🌍What are my goals as a new Chief Executive working in #GlobalHealth? ☕ Do I need #coffee? 💙 What does it mean to represent the #MultipleSclerosis movement when I am not living with the disease? 🧊Will I ever manage to solve a #RubiksCube on my own?
Watching Season 2 of #Severance, I wonder if embodying my “innie” from 9 to 5 and my “outie” from 5 to 9 would improve balance. Right now, it’s just a work to-do list by day and a home to-do list by night. What would it feel like to truly switch between these parts of myself?
February 6, 2025 at 8:56 AM
Watching Season 2 of #Severance, I wonder if embodying my “innie” from 9 to 5 and my “outie” from 5 to 9 would improve balance. Right now, it’s just a work to-do list by day and a home to-do list by night. What would it feel like to truly switch between these parts of myself?
My rule-loving brain wants to pinpoint the exact moment Winter becomes Spring ❄️➡️🌱 Is it when snowdrops bloom? When frost melts? When elder trees bud? But the soft animal part of me knows that seasons blur & blend, one unfolding into the next. No sharp edges, just change in its own time ✨ #Liminality
February 5, 2025 at 9:11 AM
My rule-loving brain wants to pinpoint the exact moment Winter becomes Spring ❄️➡️🌱 Is it when snowdrops bloom? When frost melts? When elder trees bud? But the soft animal part of me knows that seasons blur & blend, one unfolding into the next. No sharp edges, just change in its own time ✨ #Liminality
I’m new to the #MultipleSclerosis community and eager to learn! 💜🧠
✨💡 If you are #LivingWithMS - what do you wish people without MS understood?
🔬💬 If you work in #MS advocacy, research, or support - what do you wish you had known when you first started?
✨💡 If you are #LivingWithMS - what do you wish people without MS understood?
🔬💬 If you work in #MS advocacy, research, or support - what do you wish you had known when you first started?
February 4, 2025 at 5:30 PM
I’m new to the #MultipleSclerosis community and eager to learn! 💜🧠
✨💡 If you are #LivingWithMS - what do you wish people without MS understood?
🔬💬 If you work in #MS advocacy, research, or support - what do you wish you had known when you first started?
✨💡 If you are #LivingWithMS - what do you wish people without MS understood?
🔬💬 If you work in #MS advocacy, research, or support - what do you wish you had known when you first started?
Reposted by Lydia Makaroff
Thank you.
Right, this is the link you need to give people to access the feed, or they can search the feeds for it. Remembering it HAS to be case sensitive to weed out as much non relevant stuff as possible, so use #MSWeekend #MSFriday or #MS exactly as written here. Any feed issues let me know.
Right, this is the link you need to give people to access the feed, or they can search the feeds for it. Remembering it HAS to be case sensitive to weed out as much non relevant stuff as possible, so use #MSWeekend #MSFriday or #MS exactly as written here. Any feed issues let me know.
August 8, 2024 at 5:25 PM
Thank you.
Right, this is the link you need to give people to access the feed, or they can search the feeds for it. Remembering it HAS to be case sensitive to weed out as much non relevant stuff as possible, so use #MSWeekend #MSFriday or #MS exactly as written here. Any feed issues let me know.
Right, this is the link you need to give people to access the feed, or they can search the feeds for it. Remembering it HAS to be case sensitive to weed out as much non relevant stuff as possible, so use #MSWeekend #MSFriday or #MS exactly as written here. Any feed issues let me know.
Winter gnats (Trichocera annulata) have a lifecycle evolved for the cold. Adults males dance in winter to woo females who then lay eggs in damp soil. By spring, larvae hatch & feed on decaying matter, then pupate & metamorphose through autumn, then emerge in the next winter #BugLife #CambridgeUK
February 2, 2025 at 3:06 PM
Winter gnats (Trichocera annulata) have a lifecycle evolved for the cold. Adults males dance in winter to woo females who then lay eggs in damp soil. By spring, larvae hatch & feed on decaying matter, then pupate & metamorphose through autumn, then emerge in the next winter #BugLife #CambridgeUK
Reposted by Lydia Makaroff
↘️ Our Planning Committee met yesterday to consider a number of planning applications for #Cambridge. Read our update for a quick summary of applications and decisions made by the Committee. www.cambridge.gov.uk/news/2025/01...
January 9, 2025 at 10:35 AM
↘️ Our Planning Committee met yesterday to consider a number of planning applications for #Cambridge. Read our update for a quick summary of applications and decisions made by the Committee. www.cambridge.gov.uk/news/2025/01...
A splash of gold in the chill 🌼 Winter aconites (Eranthis hyemalis) are blooming in our garden. One of the first flowers each year, they are native to Southern France & Italy, and provide early nectar for waking pollinators 🌱✨🐝 #WinterAconite #PollinatorFriendly #NatureInWinter #WinterBlooms
January 31, 2025 at 1:30 PM
A splash of gold in the chill 🌼 Winter aconites (Eranthis hyemalis) are blooming in our garden. One of the first flowers each year, they are native to Southern France & Italy, and provide early nectar for waking pollinators 🌱✨🐝 #WinterAconite #PollinatorFriendly #NatureInWinter #WinterBlooms
Reposted by Lydia Makaroff
Honoured to receive funding from the Charcot Foundation for our research on #proteolysis by myelin-challenged #macrophages in #MultipleSclerosis!
👉 www.fondation-charcot.org/en/winners/2...
Excited to advance our #Research and looking forward to the discoveries ahead! 🔬🤩
#WomenInSTEM #ImmunoSky
👉 www.fondation-charcot.org/en/winners/2...
Excited to advance our #Research and looking forward to the discoveries ahead! 🔬🤩
#WomenInSTEM #ImmunoSky
January 29, 2025 at 4:51 PM
Honoured to receive funding from the Charcot Foundation for our research on #proteolysis by myelin-challenged #macrophages in #MultipleSclerosis!
👉 www.fondation-charcot.org/en/winners/2...
Excited to advance our #Research and looking forward to the discoveries ahead! 🔬🤩
#WomenInSTEM #ImmunoSky
👉 www.fondation-charcot.org/en/winners/2...
Excited to advance our #Research and looking forward to the discoveries ahead! 🔬🤩
#WomenInSTEM #ImmunoSky
Reposted by Lydia Makaroff
Physio tomorrow morning and I have it on good authority she's getting me back (going to try and get me back) on a bike! 🤔 Watch this space folks, I'll be downhilling again before you now it! MS?? Pah, what MS!! 👊🏼💪🏼😂 #LetsDoThis #MS #MultipleSclerosis
January 30, 2025 at 5:29 PM
Physio tomorrow morning and I have it on good authority she's getting me back (going to try and get me back) on a bike! 🤔 Watch this space folks, I'll be downhilling again before you now it! MS?? Pah, what MS!! 👊🏼💪🏼😂 #LetsDoThis #MS #MultipleSclerosis
Reposted by Lydia Makaroff
NEW Dorset Writing Residencies!
📝 For 2 UK writers based in The Midlands or North West who are working class and/or 60+
📝 Sun 22 June to Frid 27 June
📝 Supported by Kit de Waal, our honorary patron
📝 Apply at bridportprize.org.uk/news/residencies-2025/
📝 Application deadline 23:59pm 28 February
📝 For 2 UK writers based in The Midlands or North West who are working class and/or 60+
📝 Sun 22 June to Frid 27 June
📝 Supported by Kit de Waal, our honorary patron
📝 Apply at bridportprize.org.uk/news/residencies-2025/
📝 Application deadline 23:59pm 28 February
January 28, 2025 at 12:03 PM
NEW Dorset Writing Residencies!
📝 For 2 UK writers based in The Midlands or North West who are working class and/or 60+
📝 Sun 22 June to Frid 27 June
📝 Supported by Kit de Waal, our honorary patron
📝 Apply at bridportprize.org.uk/news/residencies-2025/
📝 Application deadline 23:59pm 28 February
📝 For 2 UK writers based in The Midlands or North West who are working class and/or 60+
📝 Sun 22 June to Frid 27 June
📝 Supported by Kit de Waal, our honorary patron
📝 Apply at bridportprize.org.uk/news/residencies-2025/
📝 Application deadline 23:59pm 28 February