myEndometriosis
@myendometriosis.bsky.social
Advocating for endometriosis awareness 🎗️|
Stories and global updates regarding endo & other gynaecological conditions | 1 in 10 | U.K. |
Stories and global updates regarding endo & other gynaecological conditions | 1 in 10 | U.K. |
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Something that i think more people need to hear, is that #endometriosis is a #disability ‼️
Reposted by myEndometriosis
Can you help us with our research? We'd like to understand more about the uncertainty that people can experience whilst going through fertility treatment (e.g. IVF, IUI) or fertility problems (e.g. PCOS, Endometriosis). More info below! ⬇️ nclpsych.eu.qualtrics.com/jfe/form/SV_...
November 22, 2024 at 2:01 PM
Can you help us with our research? We'd like to understand more about the uncertainty that people can experience whilst going through fertility treatment (e.g. IVF, IUI) or fertility problems (e.g. PCOS, Endometriosis). More info below! ⬇️ nclpsych.eu.qualtrics.com/jfe/form/SV_...
We are being failed. Those with #Gynaecological conditions deserve better.
#NHS #InvisibleIllness #Endo #PCOS #Disability
#NHS #InvisibleIllness #Endo #PCOS #Disability
After covid, I became allergic to my own estrogen and progesterone. It took me 77 weeks to see gynecology. And that was after months of waiting and tests to work out what was wrong.
My life was on hold from May 2021 to September 2023. Over 120 weeks before I could live again.
My life was on hold from May 2021 to September 2023. Over 120 weeks before I could live again.
I've seen how waiting for treatment can ruin women's lives. This is how Labour can keep its promise to help them | Ranee Thakar
November 22, 2024 at 2:55 AM
We are being failed. Those with #Gynaecological conditions deserve better.
#NHS #InvisibleIllness #Endo #PCOS #Disability
#NHS #InvisibleIllness #Endo #PCOS #Disability
Over the space of 8 years I’ve had 6 transvaginal ultrasounds, 5 showed nothing.
But one showed deeply infiltrative #endometriosis.
ALL it took was an endometriosis consultant who is trained in transvaginal ultrasound to diagnose me within 5 minutes.
#Medsky #Medicine #Gynaecology #Health
But one showed deeply infiltrative #endometriosis.
ALL it took was an endometriosis consultant who is trained in transvaginal ultrasound to diagnose me within 5 minutes.
#Medsky #Medicine #Gynaecology #Health
November 22, 2024 at 2:10 AM
Over the space of 8 years I’ve had 6 transvaginal ultrasounds, 5 showed nothing.
But one showed deeply infiltrative #endometriosis.
ALL it took was an endometriosis consultant who is trained in transvaginal ultrasound to diagnose me within 5 minutes.
#Medsky #Medicine #Gynaecology #Health
But one showed deeply infiltrative #endometriosis.
ALL it took was an endometriosis consultant who is trained in transvaginal ultrasound to diagnose me within 5 minutes.
#Medsky #Medicine #Gynaecology #Health
“I feel like I’m being stabbed by a thousand tiny men”
A great article from a linguistic perspective delving into the challenges #women face describing #endometriosis pain, the role of metaphors, and how tools like metaphor menus could bridge communication gaps between patients & doctors.
A great article from a linguistic perspective delving into the challenges #women face describing #endometriosis pain, the role of metaphors, and how tools like metaphor menus could bridge communication gaps between patients & doctors.
November 22, 2024 at 1:25 AM
“I feel like I’m being stabbed by a thousand tiny men”
A great article from a linguistic perspective delving into the challenges #women face describing #endometriosis pain, the role of metaphors, and how tools like metaphor menus could bridge communication gaps between patients & doctors.
A great article from a linguistic perspective delving into the challenges #women face describing #endometriosis pain, the role of metaphors, and how tools like metaphor menus could bridge communication gaps between patients & doctors.
Fellow #Endometriosis sufferers, were you #diagnosed through invasive techniques (e.g., laparoscopy) or non-invasive methods (like transvaginal ultrasound or #MRI)?
November 22, 2024 at 1:05 AM
Fellow #Endometriosis sufferers, were you #diagnosed through invasive techniques (e.g., laparoscopy) or non-invasive methods (like transvaginal ultrasound or #MRI)?
General gynaes are treating endometriosis patients, we need more #specialists in the #NHS.
Sophie’s story: “Doctors attributed her symptoms to phantom pain, and even appendicitis, which led to her having her appendix being unnecessarily removed.”
She was later diagnosed with #endo & #PCOS
Sophie’s story: “Doctors attributed her symptoms to phantom pain, and even appendicitis, which led to her having her appendix being unnecessarily removed.”
She was later diagnosed with #endo & #PCOS
November 22, 2024 at 12:57 AM
General gynaes are treating endometriosis patients, we need more #specialists in the #NHS.
Sophie’s story: “Doctors attributed her symptoms to phantom pain, and even appendicitis, which led to her having her appendix being unnecessarily removed.”
She was later diagnosed with #endo & #PCOS
Sophie’s story: “Doctors attributed her symptoms to phantom pain, and even appendicitis, which led to her having her appendix being unnecessarily removed.”
She was later diagnosed with #endo & #PCOS
PSA to those who suffer from #ChronicIllness 👇
November 21, 2024 at 2:24 AM
PSA to those who suffer from #ChronicIllness 👇
#UnwellWomen by #ElinorCleghorn is my night time read! A great #book which delves into the key topics of how medical research has historically prioritised the male body. With women’s health being profoundly under researched.
#Disability #Medicine #Medsky
#Disability #Medicine #Medsky
November 21, 2024 at 12:02 AM
#UnwellWomen by #ElinorCleghorn is my night time read! A great #book which delves into the key topics of how medical research has historically prioritised the male body. With women’s health being profoundly under researched.
#Disability #Medicine #Medsky
#Disability #Medicine #Medsky
A #BBC article includes the lived experience of #endometriosis through Vicky’s story:
"When I say ‘I’m fine’, I’m in pain," she says. "And when I say ‘I’m in pain’, I’m really in a lot of pain."
The popular press must continue to give a voice to those #struggling with endometriosis 🎗️
"When I say ‘I’m fine’, I’m in pain," she says. "And when I say ‘I’m in pain’, I’m really in a lot of pain."
The popular press must continue to give a voice to those #struggling with endometriosis 🎗️
November 20, 2024 at 10:56 PM
A #BBC article includes the lived experience of #endometriosis through Vicky’s story:
"When I say ‘I’m fine’, I’m in pain," she says. "And when I say ‘I’m in pain’, I’m really in a lot of pain."
The popular press must continue to give a voice to those #struggling with endometriosis 🎗️
"When I say ‘I’m fine’, I’m in pain," she says. "And when I say ‘I’m in pain’, I’m really in a lot of pain."
The popular press must continue to give a voice to those #struggling with endometriosis 🎗️
Reminder: endometriosis is not just a ‘bad period’ 🎗️
November 20, 2024 at 10:00 PM
Reminder: endometriosis is not just a ‘bad period’ 🎗️
I have endometriosis, an #InvisibleIllness, today I feel:
Isolated, misunderstood, existing with an unpredictable body. My plans often get cancelled, and the need to explain the condition and its effects become exhausting, I feel like a burden.
Does anyone else resonate with this?
Isolated, misunderstood, existing with an unpredictable body. My plans often get cancelled, and the need to explain the condition and its effects become exhausting, I feel like a burden.
Does anyone else resonate with this?
November 20, 2024 at 9:51 PM
I have endometriosis, an #InvisibleIllness, today I feel:
Isolated, misunderstood, existing with an unpredictable body. My plans often get cancelled, and the need to explain the condition and its effects become exhausting, I feel like a burden.
Does anyone else resonate with this?
Isolated, misunderstood, existing with an unpredictable body. My plans often get cancelled, and the need to explain the condition and its effects become exhausting, I feel like a burden.
Does anyone else resonate with this?
Enlightening article by @bmj.com.
Really bringing to light how #endometriosis care should not just rely on #surgical management, but should adopt a comprehensive, #multidisciplinary approach that integrates #medical treatments with #psychological support and effective #pain management strategies.
Really bringing to light how #endometriosis care should not just rely on #surgical management, but should adopt a comprehensive, #multidisciplinary approach that integrates #medical treatments with #psychological support and effective #pain management strategies.
"Endometriosis must be reframed as a chronic condition in which many women will have symptoms that persist or recur across their lifespan, even if they have had surgical treatment."
Why women need better coordination between primary and secondary care
www.bmj.com/content/387/...
Why women need better coordination between primary and secondary care
www.bmj.com/content/387/...
November 20, 2024 at 11:14 AM
Enlightening article by @bmj.com.
Really bringing to light how #endometriosis care should not just rely on #surgical management, but should adopt a comprehensive, #multidisciplinary approach that integrates #medical treatments with #psychological support and effective #pain management strategies.
Really bringing to light how #endometriosis care should not just rely on #surgical management, but should adopt a comprehensive, #multidisciplinary approach that integrates #medical treatments with #psychological support and effective #pain management strategies.
This is one way to put it into perspective... "If all 760,000 #women waiting for #NHS #gynaecological appointments were to stand in a line, the queue would go from London to Exeter". We are being failed.
November 19, 2024 at 7:31 PM
This is one way to put it into perspective... "If all 760,000 #women waiting for #NHS #gynaecological appointments were to stand in a line, the queue would go from London to Exeter". We are being failed.
Kudos to #FlorencePugh for opening up about her journey with #Endometriosis and #PCOS. Building awareness in the media is definitely one step towards battling the ignorance surrounding women’s health. www.dailymail.co.uk/tvshowbiz/ar...
Florence Pugh reveals she had to freeze her eggs at 27
The actress, 28, admitted it was a 'mind-boggling realisation' when she was told she would have to 'get her eggs out quickly' to preserve hopes of having a child in the future.
www.dailymail.co.uk
November 19, 2024 at 6:09 PM
Kudos to #FlorencePugh for opening up about her journey with #Endometriosis and #PCOS. Building awareness in the media is definitely one step towards battling the ignorance surrounding women’s health. www.dailymail.co.uk/tvshowbiz/ar...
Something that i think more people need to hear, is that #endometriosis is a #disability ‼️
November 19, 2024 at 5:53 PM
Something that i think more people need to hear, is that #endometriosis is a #disability ‼️
November 19, 2024 at 5:47 PM
Updates to #NICE Guidelines on #Endometriosis Diagnosis & Management to cut the delays.
So what’s happening?
1) access to early #ultrasound:
recommending transvaginal ultrasound for ALL suspected cases, even if pelvic/abdominal exams appear normal.
So what’s happening?
1) access to early #ultrasound:
recommending transvaginal ultrasound for ALL suspected cases, even if pelvic/abdominal exams appear normal.
November 19, 2024 at 3:42 PM
Updates to #NICE Guidelines on #Endometriosis Diagnosis & Management to cut the delays.
So what’s happening?
1) access to early #ultrasound:
recommending transvaginal ultrasound for ALL suspected cases, even if pelvic/abdominal exams appear normal.
So what’s happening?
1) access to early #ultrasound:
recommending transvaginal ultrasound for ALL suspected cases, even if pelvic/abdominal exams appear normal.
Reposted by myEndometriosis
Where's all my #endometriosis and #MS warriors at? I want to follow you. 💛🧡
So many of you have come over to clearer skies & this makes me happy. I feel like this will be a good place to keep our awareness community going strong.
#chronicillness #chronicpain #womenshealth
So many of you have come over to clearer skies & this makes me happy. I feel like this will be a good place to keep our awareness community going strong.
#chronicillness #chronicpain #womenshealth
November 18, 2024 at 3:06 PM
Where's all my #endometriosis and #MS warriors at? I want to follow you. 💛🧡
So many of you have come over to clearer skies & this makes me happy. I feel like this will be a good place to keep our awareness community going strong.
#chronicillness #chronicpain #womenshealth
So many of you have come over to clearer skies & this makes me happy. I feel like this will be a good place to keep our awareness community going strong.
#chronicillness #chronicpain #womenshealth
After 10 years, I got on the waitlist for my #endo surgery last week. I’m 1 of 630,000 people people (per the #BBC) waiting for #gynaecology treatment / care in the UK. These delays leave many without care, forcing patients to endure unbearable pain and uncertainty.
November 19, 2024 at 12:39 AM
After 10 years, I got on the waitlist for my #endo surgery last week. I’m 1 of 630,000 people people (per the #BBC) waiting for #gynaecology treatment / care in the UK. These delays leave many without care, forcing patients to endure unbearable pain and uncertainty.