Kayli Jamieson
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wanderingkayli.bsky.social
Kayli Jamieson
@wanderingkayli.bsky.social
4.9K followers 380 following 42 posts
@wandering on Instagram ✍🏻
Disabled with Long Covid 44+ months
Long COVID Researcher @sfu-fhs.bsky.social
Master’s Student @sfucmns.bsky.social writing on biopolitics & Long COVID

kaylijamieson.notion.site/research
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wanderingkayli.bsky.social
Kayli Jamieson @wanderingkayli.bsky.social · Nov 12
Bluesky intro post! Hello! I’m Kayli, a longhauler of almost 3 years, writing a MA Thesis on #LongCOVID & biopolitics. I also help conduct some studies on Long COVID in B.C.
Some of you may know me from IG, where I try to make learning about COVID science accessible via infographics.
#BCCOVID
Mixed Asian/White woman wearing a black respirator, red plaid blazer, white collared shirt, gray pleated skirt and red Mary Janes. Posing holding onto a sticker that reads Long COVID is chronic, masking is iconic, by Berlin Buyers Club. Background is of grassy park with trees and vendors of clean air festival.
wanderingkayli.bsky.social
Such an honour to be a part of this episode in my favourite podcast with such an incredible production team! I shared a few findings from my Thesis research on news discourses on COVID. Amazing insights from @juliadoubleday.bsky.social & narration from host Daniella really tie it all together 🦠
sharpflower.bsky.social Da(N95)iella @sharpflower.bsky.social · 10d
How has the media contributed to manufacturing consent for COVID to be “over” (and the decline of public health in general)? New episode ft. @juliadoubleday.bsky.social and @wanderingkayli.bsky.social as well as some comments from former COVID-19 Technical Lead at the WHO, Dr. Maria Van Kerkhove
sharpflower.bsky.social Da(N95)iella @sharpflower.bsky.social · Oct 30
In the editing room! 🎙️ Bad Press: how the media manufactures consent in the era of COVID. Public health is often in the news but it’s not always covered well. Power influences the narratives we hear from outlets and journalists. Coming soon w/ Julia Doubleday + Kayli Jamieson. Don’t miss it! 🩷💚💀
November 28, 2025 at 9:23 PM
Reposted by Kayli Jamieson
mark-ungrin.bsky.social
The 3rd annual Canadian Long COVID symposium wrapped up yesterday. It was a great meeting, and I got some nice news at the end!

PDF of the poster is here: www.dropbox.com/scl/fi/e8wh6...

MP3 of a 5-minute verbal overview is here: www.dropbox.com/scl/fi/ej0lw...
A photo of a projection screen reading "Long COVID Web Impact Poster Awards: 1. Mark Ungrin 2. Kayli Jamieson 3. Kriti Agarwal 4. Jill Cameron This poster contains too much text to fit in the ALT text box, or to condense to a meaningful summary that would fit. The full text is accessible in the PDF linked directly from the post.
October 22, 2025 at 5:05 PM
Reposted by Kayli Jamieson
voicesoflcovidpod.bsky.social
Museum of Vancouver Long Covid exhibit launch #longcovidawareness
October 5, 2025 at 1:24 AM
Reposted by Kayli Jamieson
kayleebyers.bsky.social
Today we launched the Living with Long COVID exhibition @museumofvan.bsky.social. In 2023 we conducted a study in which we heard from longhaulers that this invisible illness needs more awareness and attention. This exhibition was co-created with longhaulers to do just that. On view until March 2026
sfu-fhs.bsky.social SFU Faculty of Health Sciences @sfu-fhs.bsky.social · Oct 3
A new exhibition at the @museumofvan.bsky.social, co-produced by FHS, invites visitors into the often-invisible world of those living with the life-altering effects of COVID-19.

The exhibit runs from Oct 4, 2025 to March 22, 2026

🔗: bit.ly/4pUPA4V

#SFU #SFUResearch #MOV #LongCOVID #KT #KM
/1
A fragmented photo of an adult covering their face with their hands, surrounded by a sea of bottle containing supplements and medications. Text reads: "Living with Long Covid: On view from October 4, 2025 – March 22, 2026 at the Museum of Vancouver" A series of logos are featured showing the organizations who contributed to this exhibit financially or in-kind: Museum of Vancouver Project Partners: SFU Faculty of Health Sciences, Post-COVID-19 Interdisciplinary Clinical Care Network – Provincial Health Services Authority Institutional Partners: City of Vancouver, British Columbia Arts Council with the BC Government Funding Partners: Pacific Public Health Foundation, Michael Smith Health Research BC
October 5, 2025 at 4:35 AM
Reposted by Kayli Jamieson
chantzy.bsky.social
It was standing room only at today's Living with Long Covid exhibit at the @museumofvan.bsky.social!

I was moved to tears by some of the personal stories on display. Such a great event
Long Covid researcher and activist Kayli Jamison speaks at today's Long Covid launch event at the Museum of Vancouver Selfie at event wearing a white headstrap zimi mask with purple flowers One of the stories that resonated - "I was able to venture out for an ice cream cone with a friend this day. I don't feel comfortable eating in restaurants or going to bars like most people my age. Spring and summer are nice beaches they give me more options to spend time outdoors with fewer people around - which means I get to see the people I love more often. Even short moments like this help me feel a little more like a "normal" 24 year old again Some of the personal stories on display. A combo of text and pictures artistically laid out on white walls with brightly coloured orange and yellow backgrounds
October 5, 2025 at 2:09 AM
Reposted by Kayli Jamieson
moriartylab.bsky.social
Canadian COVID Forecast: Sep 13 - Sep 26, 2025
Severe: NL, PEI, SK
Very high: CAN, AB, BC, MB, NB, North, NS, ON
High: QC
Moderate: none

About 1 in 81 people in Canada are CURRENTLY infected.
This image shows gauges with the September 13-26, 2025 COVID Forecast scores for Canada, the provinces, & territories. From left to right: Canada: 13.4 - VERY HIGH Alberta: 14.8 - VERY HIGH British Columbia: 14.1 - VERY HIGH Manitoba: 14.4 - VERY HIGH New Brunswick: 14.6 - VERY HIGH Newfoundland and Labrador: 15.8 - SEVERE North: 14.1 - VERY HIGH Nova Scotia: 14.7 - VERY HIGH Ontario: 14.9 - VERY HIGH Prince Edward Island: 15.6 - SEVERE Quebec: 9.8 - HIGH Saskatchewan: 15.1 - SEVERE A text box reads: "The COVID Forecast is calculated from 3 equally weighted categories: 1) Current infections and spread; 2) Healthcare system impact; 3) Mortality. Within each category, there is one sub-category for trends over the most recent week (Trends) and one sub-category for current parameter values relative to a specified baseline (Current values). Trends and current values are weighted equally when determining the final score for a category. All Forecast input data and sources are available here (https://datastudio.google.com/embed/u/0/reporting/42b886cf-d661-488e-b7d8-5c5836b55ab6/page/p_2yqs028mwc). Past Forecast scores are available in the table below. Forecast scores are grouped into 4 ranges: MODERATE (1 to <5, white), HIGH (6 to <10, yellow), VERY HIGH (10 to <15, orange), SEVERE (>15, red)."
September 16, 2025 at 6:47 PM
Reposted by Kayli Jamieson
taylorlorenz.bsky.social
Breakthrough study: COVID-19 reactivates dormant breast cancer, triggering deadly metastasis. Cancer survivors who got COVID had 4.5× higher cancer-related deaths and 1.4× greater breast cancer. MASK UP!! Protect yourself from Covid, which is airborne
Respiratory viral infections awaken metastatic breast cancer cells in lungs - Nature
Mouse models show that respiratory infections from viruses such as influenza and SARS-CoV-2 can trigger metastasis of dormant breast cancer cells in the lungs, a finding supported by epidemiological d...
www.nature.com
July 30, 2025 at 11:05 PM
wanderingkayli.bsky.social
It’s not too late to complete your submission for our #LongCOVID photovoice exhibit at the Museum of #Vancouver, debuting this fall! Open Canada-wide to any self-identified #longhauler 18+. Upload your photos by June 1 here: www.surveymonkey.ca/r/YourPhotos
Poster with black and yellow text against blue background and a photo-film-like strip displaying examples of submissions such as medication, an Apple Watch of high heart rate, flowers, and a symptom crash. Submission prompt titles are: starting the day, middle of the day, lowlight, healthcare moment, end of the day, and highlight. Poster text with camera icon says: Your Life, Your Photos, Your Story. A Day in the Life of a Longhauler. Share your Long COVID story at the museum of Vancouver! "A Day in the Life of a Longhauler" is a photography project that captures the daily life of individuals living with Long COVID to enhance visibility, reduce stigma, and advocate for improved support. Whether you have a Long COVID diagnosis or are dealing with long-term symptoms following a COVID-19 infection, we invite you to share up to six photos from your everyday life which will be showcased at the Museum of Vancouver in the Fall of 2025.QR code for submission. Logos from Simon Fraser University, OH-HI Science CoLab, Museum of Vancouver, Post-COVID-19 Interdisciplinary Clinical Care Network, and Michael Smith Health Research BC. French version of poster. See English alt-text (sorry) Punjabi version of poster. See English alt-text (sorry) Chinese (simplified) version of poster. See English alt-text (sorry)
May 20, 2025 at 8:59 PM
Reposted by Kayli Jamieson
toshiakima.bsky.social
Droplet dogmatists deny that COVID is an airborne contagion for similar reasons why miasmatists once denied cholera is waterborne. If spread by droplets, then mitigation can be decentralised and passed on to “individual responsibility”.
April 1, 2025 at 1:53 AM
Reposted by Kayli Jamieson
ryantennant.ca
Grateful to everyone who helped coordinate our Long COVID awareness event at #UWaterloo today and to the Faculty of Health Dean's Advisory Committee on Equity, Diversity, Inclusion, and Anti-Racism for supporting us! It was so nice gathering with everyone on campus.

www.ctvnews.ca/kitchener/vi...
Long COVID Awareness Silent Walk
A group is taking steps to make the community aware of a condition called Long COVID. CTV’s Jeff Pickel explains.
www.ctvnews.ca
March 27, 2025 at 11:03 PM
Reposted by Kayli Jamieson
ryantennant.ca
Some selfies from today’s Long COVID Awareness booth at #UWaterloo!

Today we were joined by a representative from MaskBlocWR and CanadaMasq (who kindly donated CA-N95s for our Care Kits). 😷

Stay tuned for our walk at noon on Thursday! We’ll also livestream it on Instagram @care_coalition_uw
A group of people wearing white N95s and and teal long COVID t shirts standing around a table with gift bags and a long COVID banner sign A group of people wearing white N95s and and teal long COVID t shirts standing around a table with gift bags and a CanadaMasq banner sign
March 25, 2025 at 7:32 PM
Reposted by Kayli Jamieson
brownecfm.bsky.social
1. Perhaps the most damaging blowback from the response to Covid-19 in 2020 and 2021 is the mainstreaming of a public health ideology that is rooted in a dangerous combination of survivorship bias, nostalgia, and the naturalistic fallacy.
March 25, 2025 at 8:46 PM
Reposted by Kayli Jamieson
luckytran.com
Trump’s CDC is cancelling $11 billion in COVID funding allocated to health departments and nonprofits, claiming the grants are no longer necessary because the pandemic is over.

This is wrong. COVID is a continuing threat and millions have Long COVID. We still need to do more to mitigate its harms.
March 25, 2025 at 9:09 PM
Reposted by Kayli Jamieson
erictopol.bsky.social
In <24 hours, Covid funding is DOGEd across HHS, CDC, NIH as if it and Long Covid didn't exist and there is no worry for future pandemics
www.science.org/content/arti...
www.nbcnews.com/health/healt...
www.science.org/content/arti...
March 25, 2025 at 10:30 PM
Reposted by Kayli Jamieson
toshiakima.bsky.social
This is why I say the pandemic is just beginning (as a crisis of chronic disease). Instead of ending it with science-based intervention, we think emoting how “over it” we feel suffices.
science.org Science Magazine @science.org · Mar 25
Exclusive: Science has learned that grant termination letters went out last night to principal investigators of 29 awards made by NIAID, including nine grants that were part of a program hoping to deliver antiviral drugs to prevent future pandemics. scim.ag/4iVm7mY
Saying ‘pandemic is over,’ NIH institute starts cutting COVID-19 research
Grant terminations halt research on improving vaccinations and preventing future pandemics
scim.ag
March 25, 2025 at 10:33 PM
Reposted by Kayli Jamieson
chromatowski.bsky.social
Tweet from Michael Lin, MD PhD @michaelzlin Our NIH grant to discover coronavirus antiviral meds was terminated today. With this grant, we had developed a better SARSCoV2 inhibitor than Paxlovid, and we recently discovered an improved drug that looks better than Pfizer's own second-generation inhibitor. Attached is a screenshot of a research paper’s title page: An orally bioavailable SARS-CoV-2 main protease inhibitor exhibits improved affinity and reduced sensitivity to mutations MICHAEL WESTBERG YICHI SU AND MICHAEL Z. LIN (D +19 authors Authors Info & Affiliations SCIENCE TRANSLATIONAL MEDICINE • 13 Mar 2024 • Vol 16, Issue 738 • DOI: 10.1126/scitransimed.adi0979 6:05 PM • Mar 25, 2025 • 3,400 Views
March 25, 2025 at 10:49 PM
Reposted by Kayli Jamieson
exceedhergrasp1.bsky.social
Folks, very bad news for #LongCOVID. Deep breath.

29 awarded grants to do with COVID and Long COVID have been rescinded by NIH. 🧪

www.science.org/content/arti...
Science has learned that grant termination letters went out last night to principal investigators of 29 awards made by the National Institute of Allergy and Infectious Diseases (NIAID), including nine grants that were part of a program hoping to deliver antiviral drugs to prevent future pandemics. Other terminated grants involved research to develop improved COVID-19 vaccines and to address Long Covid, the mysterious lingering aftermath of some SARS-CoV-2 infections. “The research is being treated like we already have all the answers we will need in the future and that the current vaccines work well enough and don’t need improvement, which we know is not true,” says an investigator involved with one of the NIAID grants who asked not to be named for fear of retribution. “Some of the studies being canceled were attempting to make a pancoronavirus vaccine, which would hopefully be available the next time a novel coronavirus jumps species into humans.”
March 25, 2025 at 11:13 PM
Reposted by Kayli Jamieson
chantzy.bsky.social
"My friends and family don't believe that I'm sick because I look OK on the outside" ❤️‍🩹

So many heartbreaking stories from this weekend's International Long Covid Awareness Day event at the Vancouver Art Gallery
Colorful pillowcases on display at the Vancouver art gallery sharing messages from long Covid sufferers. March 15, 2025 Jacob age 39 shares: "my friends and family don't believe that I'm sick because I look okay on the outside. They don't understand why I had to leave my job. I miss my old life and the activities I used to enjoy. I need the government to step up and help us!"
March 18, 2025 at 12:06 AM
Reposted by Kayli Jamieson
thesicktimes.org
Demonstrations for International Long COVID Awareness Day have sparked around the globe. We reached out to international organizers for photos from their actions to document the demonstrations and highlight their demands. bit.ly/4im6qFk
Long COVID and ME advocates lied on the ground in Berlin, Germany with signs reading "Half a Decade of Neglect" The advocacy group LCME Billboard and Not Recovered UK handed out leaflets about the Long COVID and ME in Edinburgh, Scotland /Judith Stark The organization Asociación Long COVID Aragón held an in-person demonstration in Aragon, Spain / Asociación Long COVID Aragón Advocates drew attention to International Long COVID Awareness in Melbourne, Australia, by placing a billboard calling for “recognition, research, remedy” on a busy intersection in the city / Pandemic Resistance Inc.
March 15, 2025 at 10:04 PM
Reposted by Kayli Jamieson
broadwaybabyto.bsky.social
This Long Covid Awareness Day, let's look at why people believe they don't know anyone with Long Covid.

We are in the middle of a mass disabling event that most people refuse to acknowledge.

When we face the truth & stop denying reality, we can save lives:
I Don't Know Anyone With Long Covid
Yes. You do. This Long Covid Awareness Day I want to talk about the reasons why many people don't realize they have Long Covid, as well as why others choose to hide their diagnosis.
www.disabledginger.com
March 15, 2025 at 10:57 PM
wanderingkayli.bsky.social
Incredibly drained after today, but it was fantastic being able to attend a local event for Long COVID Awareness Day! Thank you so much to the organizers at @longcovidcan-co.bsky.social & @cancovsoc.bsky.social 🩵💙 Pillowcases were laid out at Vancouver Art Gallery of longhauler stories. Emotional😭
6 photo collage of 200 pillowcases being laid out at Vancouver art gallery of handwritten patient stories. Attendees with umbrellas and a selfie of Kayli in a white N95, wearing teal and black and a long covid ribbon button. Poster reads: 5 years of long COVID. Cure long COVID now! 6 photo collage grid. One is of a tote bag that reads long covid is chronic masking is iconic with various long covid themed stickers. Another is a patient story handwritten onto a pillowcase. 2 photos are of an art piece, a gown of longhauler faces printed all over it and handwritten symptoms on the gown’s train, reading at the end “I’m sorry there’s nothing more we can do for you.” A poster reads: Living with Ongoing Neurological Gastrointestinal & Cardiovascular Issues. Very Incapacitating & Distressing. Acronym for Long COVID. A photo of the crowd watching a guest speaker.
March 15, 2025 at 11:16 PM
Reposted by Kayli Jamieson
emilyartist.ca
Tomorrow is Long Covid Awareness day, and I'll be performing this poem for the LC Awareness even in downtown Vancouver, outside the Vancouver Art Gallery. Sometime just after 11am, March 15. It's not over.
www.youtube.com/watch?v=0GvR...
#art #longcovid #contemporaryart #sciart
(dis)robe: Hospital Gown, Wearable Art by Emily van Lidth de Jeude
YouTube video by emilyvanartist
www.youtube.com
March 14, 2025 at 10:57 PM
Reposted by Kayli Jamieson
nousaerons.bsky.social
Great paper on Airborne Transmission Risk Assessment in a classroom, an office, a ward, an ICU. Findings:
- FFP2 respirators cut the viral dose by a factor of 13.
- An 8h exposure in a poorly ventilated office can equate to the risk of a 15 mn face-to-face.
royalsocietypublishing.org/doi/10.1098/...
An integrated airborne transmission risk assessment model for respiratory viruses: short- and long-range contributions | Journal of The Royal Society Interface
This study presents an advanced airborne transmission risk assessment model that integrates both short- and long-range routes in the spread of respiratory viruses, building upon the CERN Airborne Mode...
royalsocietypublishing.org
February 26, 2025 at 3:25 PM
wanderingkayli.bsky.social
Big Announcement! Share Your Story & Be Part of an Exhibit at the Museum of Vancouver! 📸
My team is excited to announce the Fall 2025 launch of “A Day in the Life of a Longhauler,” a Photovoice project and exhibit.

Canadian longhaulers, submit by April 30: www.surveymonkey.ca/r/YourPhotos
Poster with black and yellow text against blue background and a photo-film-like strip displaying examples of submissions such as medication, an Apple Watch of high heart rate, flowers, and a symptom crash. Submission prompt titles are: starting the day, middle of the day, lowlight, healthcare moment, end of the day, and highlight. Poster text with camera icon says: Your Life, Your Photos, Your Story. A Day in the Life of a Longhauler. Share your Long COVID story at the museum of Vancouver! "A Day in the Life of a Longhauler" is a photography project that captures the daily life of individuals living with Long COVID to enhance visibility, reduce stigma, and advocate for improved support. Whether you have a Long COVID diagnosis or are dealing with long-term symptoms following a COVID-19 infection, we invite you to share up to six photos from your everyday life which will be showcased at the Museum of Vancouver in the Fall of 2025. Photo Submissions will remain open until April 30, 2025. Logos from Simon Fraser University, OH-HI Science CoLab, Museum of Vancouver, Post-COVID-19 Interdisciplinary Clinical Care Network, and Michael Smith Health Research BC.
February 24, 2025 at 6:14 PM
Reposted by Kayli Jamieson
juliametraux.bsky.social
I appreciate this response from Ed Yong on why he requests that people mask at his events. www.nytimes.com/2025/02/22/m...
You’ve been clear in saying that Covid has not gone away. You ask people to wear masks at your events. But that attitude is not necessarily where the rest of the world is. How do you think about continuing to take precautions and advising others to do so when it feels as if society has moved on? I do it for a bunch of reasons. Firstly, I have learned that I enjoy not being sick. I know that the cost of long Covid is real and substantial, and I don’t want to run that risk lightly. I also know that I have many friends and people I’m close to who are immunocompromised. So for the sake of the people around me, I also don’t want to get sick. When I do events, I wear a mask for those reasons, and because I know that every time I do a talk, while the vast majority of people in the audience have probably moved on, there are going to be other people who haven’t. I think it makes a huge difference to them to have the person at the front of the stage wear a mask. It tells them, It’s not weird. So I do it for that reason, too. In terms of holding this line at a point when a large swath of society has moved on, I have written a lot about the panic-neglect cycle.
February 23, 2025 at 2:53 AM