Kristin
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wecanthrivepd.bsky.social
Kristin
@wecanthrivepd.bsky.social
Dx’d #Parkinsons 2020. 🥊 Psychologist 🧠 Doing my best to thrive! 💯 💯 This account is focused on and follows Parkinson’s-related and medical/health content. Here to learn ✏️ and to give and receive support 🦋🦋🦋.
Pinned
I want to share my starter pack of Parkinson's Peeps! Please write me if you'd like to be added. go.bsky.app/UPQMXtK
Reposted by Kristin
I want to share my starter pack of Parkinson's Peeps! Please write me if you'd like to be added. go.bsky.app/UPQMXtK
November 14, 2024 at 6:34 PM
Will this impact any #Parkinsons research?
Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on ALL purchasing — including supplies for their ongoing research to treat cancer, Alzheimer’s, heart disease and many infectious diseases.
Scientists at NIH can’t purchase supplies for their studies after Trump administration pauses outside communications | CNN
Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on all purchasing, including supplies f...
www.cnn.com
January 26, 2025 at 1:57 PM
Reposted by Kristin
Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on ALL purchasing — including supplies for their ongoing research to treat cancer, Alzheimer’s, heart disease and many infectious diseases.
Scientists at NIH can’t purchase supplies for their studies after Trump administration pauses outside communications | CNN
Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on all purchasing, including supplies f...
www.cnn.com
January 26, 2025 at 1:48 PM
Reposted by Kristin
Reposted by Kristin
Join us online next Wednesday for Empowerment Through Movement! 💪 This webinar will be focused on practical, evidence-based strategies to integrate movement into your daily life.

Register for free: Parkinson.org/events/2025/Jan15WW
Empowerment Through Movement
Join us for an empowering session focused on practical, evidence-based strategies to integrate movement into your daily life.
www.parkinson.org
January 10, 2025 at 7:00 PM
Reposted by Kristin
"Guillaume (PWP) hopes that it may be able to slow the progression of the condition."
parkinsonseurope.org/2024/12/13/p...
Person with Parkinson’s is developing new drug treatment - Parkinson's Europe
Frenchman with Parkinson’s Guillaume Brachet is working 70 hours a week to develop a new Parkinson’s drug treatment
parkinsonseurope.org
January 6, 2025 at 12:34 PM
Reposted by Kristin
This warms my heart, and I'm sure everyone in the Parkinson's community. An inspiration. And bonus, a Canadian :-) yes! @mjfoxfoundation.bsky.social
January 4, 2025 at 8:11 PM
This is so well deserved. No one has used his or her celebrity better than Michael J. Fox has.

Thank you, Michael, from all of us with #Parkinsons. We love you. ❤️❤️❤️

bsky.app/profile/moll...
Michael J. Fox receives the Presidential Medal of Freedom for his advocacy in Parkinson’s research.
January 5, 2025 at 12:30 PM
Interesting #TEDtalk by a MDS about the interaction of mind and body. #Parkinsons #MovementDisorders youtu.be/XtSNBqC1z18
It’s All in Your Head: Challenging Dualism in Health Care | Dr. Sarah Lidstone | TEDxUofT
YouTube video by TEDx Talks
youtu.be
December 30, 2024 at 11:49 PM
Reposted by Kristin
5th person to be cured of HIV

“Today, researchers announced the Dusseldorf patient still has no detectable virus in his body, even after stopping his HIV medication four years ago.”
5th person confirmed to be cured of HIV
Researchers are announcing that a 53-year-old man in Germany has been cured of HIV.
abcnews.go.com
December 11, 2024 at 7:19 AM
I've been spending time in the #Parkinsons community on #Reddit. It's a great place to ask questions and give answers. Enjoying the more active engagement. (Plus joining other communities, too, like my city and state, and TV shows I like, lol.)
December 11, 2024 at 12:56 AM
Reposted by Kristin
Why not use cycling wheelchairs for Parkinson's and beyond? Check out this video by Okada and colleagues in the Movement Disorders Clinical Practice. No person with Parkinson's should ever be 'left behind.' Love the added exercise component.
movementdisorders.onlinelibrary.wiley.com/doi/10.1002/...
December 7, 2024 at 12:39 PM
Reposted by Kristin
Disabled people: In case of emergency YOU SHOULD HAVE MORE THAN 1 BAG PREPARED

👝 Bedside bag - items you need if you are trapped in or near your bed. Meds, supplies, snacks, water.

🎒Carry on bag- items you need to keep on your person. Wallet, meds, med supplies.
December 6, 2024 at 8:33 PM
Reposted by Kristin
It is such an honor to have two of my best friends in the world as literal giants in the Parkinson’s field. Jumping and with a cowboy hat I still can’t measure up to their brilliance. Here is to a new roadmap for Parkinson.
December 6, 2024 at 5:05 PM
Ellie @pdmama.bsky.social just saw the video you posted to YouTube about the Beech Band. Is this for real? Do the effects persist? Pretty amazing. youtu.be/D1ck6k3mTJM?...
Testing the @beechbandon peak dose aggressive #parkinsons #dyskinaesia #parkinsonsdisease #yopd
YouTube video by PD Mama
youtu.be
December 6, 2024 at 3:43 PM
Is Carl Beech on here? I don’t think he is yet. I just saw this amazing video he posted to FB of the Beech Band which he is developing. It helps with dyskinesia & speech & more. #Parkinsons #ParkinsonsDisease www.facebook.com/share/r/15JX...
Redirecting...
www.facebook.com
December 6, 2024 at 3:39 PM
Reposted by Kristin
Why is there a crisis approaching for Parkinson's disease? Well, have a look at the formula. The number of cases is exploding and the costs are skyrocketing. Pair that with a decreasing number of available specialists. Key note this morning for the combined Parkinson Foundation/PSG meeting,
December 5, 2024 at 3:07 PM
Reposted by Kristin
It's Older Driver Safety Awareness Week! 🚘

The ability to drive with Parkinson's depends on a one’s specific symptoms & the presence of other age-related changes. We're here to help you evaluate your driving ability: Parkinson.org/living-with-parkinsons/management/activities-daily-living/driving
December 4, 2024 at 1:00 PM
Reposted by Kristin
Discover Your Bluesky
Digital Persona – Let our AI analyze your posts, roast your takes, and reveal what your posting history says about you (spoiler: probably too much time online 🤓).
Blueskyroast.com

~~~~~

I don't think one Wordle post a day is that heavy, but I'll accept the rest of my roast 😆
December 2, 2024 at 1:20 AM
Reposted by Kristin
Mandatory listening: A fascinating & wonderful 'Stimulating Brains' podcast episode from @andreashorn.org interviewing Mark McAuley & Susan Boehnke on patient-led #Parkinsons research, patient-centered care & neuroscience education
stimulatingbrains.org/63-mark-mcau...
November 23, 2024 at 9:04 PM
Reposted by Kristin
Mark McAuley is a successful CEO but also has Parkinson's Disease and DBS. To learn more about it, he started a research project in Susan Boehnke's course at Queens University. A fantastic journey about patient-led research and fantastic science education…!

stimulatingbrains.org/63-mark-mcau...
November 20, 2024 at 3:29 AM