Alex TLC
28 following
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Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance
@pathfindersnma.bsky.social
James Poulter
James Poulter
@japoulter.bsky.social
Target Darts
Target Darts
@targetdarts.bsky.social
bridgebiopharma.bsky.social
bridgebiopharma.bsky.social
@bridgebiopharma.bsky.social
UK Glia Network
UK Glia Network
@ukglia.bsky.social
Together for Short Lives
Together for Short Lives
@tog4shortlives.bsky.social
Cambridge Rare Disease Network
Cambridge Rare Disease Network
@camrare.bsky.social
Cambridge Clinical Mitochondrial Research Group
Cambridge Clinical Mitochondrial Research Group
@mitocamb.bsky.social
European Reference Network - MetabERN
European Reference Network - MetabERN
@ernmetabern.bsky.social
ERDERA
ERDERA
@erdera.bsky.social
Society for Endocrinology
Society for Endocrinology
@socendocrinology.bsky.social
Carers UK
Carers UK
@carers-uk.bsky.social
NHS
NHS
@nhs.uk
Muscular Dystrophy UK
Muscular Dystrophy UK
@mdukcharity.bsky.social
Medics for Rare Disease
Medics for Rare Disease
@medicsforrare.bsky.social
RARE Revolution insider®
RARE Revolution insider®
@rarerevinsider.bsky.social
Addison's Disease Self Help Group (ADSHG)
Addison's Disease Self Help Group (ADSHG)
@addisonsdisease.bsky.social
Alder Hey
Alder Hey
@alderhey.nhs.uk
Global's Make Some Noise
Global's Make Some Noise
@makesomenoise.com
JustGiving
JustGiving
@justgiving.bsky.social
RAREvolution
RAREvolution
@rarevolution.bsky.social
dazzle4rare.bsky.social
dazzle4rare.bsky.social
@dazzle4rare.bsky.social
The Lily Foundation
The Lily Foundation
@lilyfoundation.bsky.social
Disabled Children's Partnership
Disabled Children's Partnership
@dcpcampaign.bsky.social
Genomics England
Genomics England
@genomicsengland.bsky.social
Neurological Alliance of Scotland
Neurological Alliance of Scotland
@neuroalscotland.bsky.social
Amsterdam Leukodystrophy Center
Amsterdam Leukodystrophy Center
@amsterdamleuko.bsky.social
Bluesky
Bluesky
@bsky.app