Alex Haagaard (they/them)
@alexhaagaard.bsky.social
Opinions = mine
Shouting into the void about chronic illness, philosophy of medicine and design.
If I want advice, I'll ask for it.
If I want to hear about the merits of a biopsychosocial framework, my account has been hacked.
Shouting into the void about chronic illness, philosophy of medicine and design.
If I want advice, I'll ask for it.
If I want to hear about the merits of a biopsychosocial framework, my account has been hacked.
Reposted by Alex Haagaard (they/them)
"He pulled out an intake form...
Through clenched teeth I hissed, “I am having 12/10 pain, sir.”
He wrote 2/3 priority category"
Please read this from @chisaraokwu.bsky.social who recounts her experience as a Black patient & physician with undiagnosed pain: www.midnightandindigo.com/brief-histor...
Through clenched teeth I hissed, “I am having 12/10 pain, sir.”
He wrote 2/3 priority category"
Please read this from @chisaraokwu.bsky.social who recounts her experience as a Black patient & physician with undiagnosed pain: www.midnightandindigo.com/brief-histor...
A Brief History of Pain | .CHISARAOKWU.
This essay by Black woman writer .CHISARAOKWU. recounts her experience as a patient and physician dealing with undiagnosed pain.
www.midnightandindigo.com
March 23, 2025 at 11:29 PM
"He pulled out an intake form...
Through clenched teeth I hissed, “I am having 12/10 pain, sir.”
He wrote 2/3 priority category"
Please read this from @chisaraokwu.bsky.social who recounts her experience as a Black patient & physician with undiagnosed pain: www.midnightandindigo.com/brief-histor...
Through clenched teeth I hissed, “I am having 12/10 pain, sir.”
He wrote 2/3 priority category"
Please read this from @chisaraokwu.bsky.social who recounts her experience as a Black patient & physician with undiagnosed pain: www.midnightandindigo.com/brief-histor...
Reposted by Alex Haagaard (they/them)
If they only knew how complicated our lives were/ are with all the lifestyle changes we've adopted in order to ease and improve our lives of chronic illness. But they tend to get annoyed every time they do get a glimpse bc we need their help with it.
Everyone: you know, if you just made some lifestyle changes you'd feel a lot better
Chronically ill person *starts using fragrance-free products, going to bed before 9pm and getting groceries delivered*
Everyone: not like that
Chronically ill person *starts using fragrance-free products, going to bed before 9pm and getting groceries delivered*
Everyone: not like that
March 24, 2025 at 12:42 AM
If they only knew how complicated our lives were/ are with all the lifestyle changes we've adopted in order to ease and improve our lives of chronic illness. But they tend to get annoyed every time they do get a glimpse bc we need their help with it.
Everyone: you know, if you just made some lifestyle changes you'd feel a lot better
Chronically ill person *starts using fragrance-free products, going to bed before 9pm and getting groceries delivered*
Everyone: not like that
Chronically ill person *starts using fragrance-free products, going to bed before 9pm and getting groceries delivered*
Everyone: not like that
March 24, 2025 at 12:22 AM
Everyone: you know, if you just made some lifestyle changes you'd feel a lot better
Chronically ill person *starts using fragrance-free products, going to bed before 9pm and getting groceries delivered*
Everyone: not like that
Chronically ill person *starts using fragrance-free products, going to bed before 9pm and getting groceries delivered*
Everyone: not like that
tfw you start adding a review cycle to your emails and chat messages to add contractions and minor grammar errors so people don't interpret your autism as condescension
March 23, 2025 at 4:31 PM
tfw you start adding a review cycle to your emails and chat messages to add contractions and minor grammar errors so people don't interpret your autism as condescension
Post a ficitional character who you think would be an antivaxxer.
Hard mode: No villains
Hard mode: No villains
March 19, 2025 at 11:54 PM
Post a ficitional character who you think would be an antivaxxer.
Hard mode: No villains
Hard mode: No villains
Today in wild algorithmic ableism:
did you know that if you request a refund through certain food delivery apps, they use an algorithm to decide how much you're entitled to based on your initial description of the problem, and the agent can't adjust that to account for basic human logic?
did you know that if you request a refund through certain food delivery apps, they use an algorithm to decide how much you're entitled to based on your initial description of the problem, and the agent can't adjust that to account for basic human logic?
March 19, 2025 at 11:03 PM
Today in wild algorithmic ableism:
did you know that if you request a refund through certain food delivery apps, they use an algorithm to decide how much you're entitled to based on your initial description of the problem, and the agent can't adjust that to account for basic human logic?
did you know that if you request a refund through certain food delivery apps, they use an algorithm to decide how much you're entitled to based on your initial description of the problem, and the agent can't adjust that to account for basic human logic?
Reposted by Alex Haagaard (they/them)
⏰Free, virtual session on March 20th for all members of the #HealthResearch team.
Learn about writing an effective narrative CV, how to apply #OpenScience principles, and frameworks to measure #ResearchImpact.
Panelist biographies: cihr-irsc.gc.ca/e/54201.html
✅Register: zoom.us/webinar/regi...
Learn about writing an effective narrative CV, how to apply #OpenScience principles, and frameworks to measure #ResearchImpact.
Panelist biographies: cihr-irsc.gc.ca/e/54201.html
✅Register: zoom.us/webinar/regi...
March 17, 2025 at 7:26 PM
⏰Free, virtual session on March 20th for all members of the #HealthResearch team.
Learn about writing an effective narrative CV, how to apply #OpenScience principles, and frameworks to measure #ResearchImpact.
Panelist biographies: cihr-irsc.gc.ca/e/54201.html
✅Register: zoom.us/webinar/regi...
Learn about writing an effective narrative CV, how to apply #OpenScience principles, and frameworks to measure #ResearchImpact.
Panelist biographies: cihr-irsc.gc.ca/e/54201.html
✅Register: zoom.us/webinar/regi...
Reposted by Alex Haagaard (they/them)
these are the names of young Black men who were "found dead" after the Ferguson uprising following the murder of Michael Brown in 2014. Edward Crawford Jr. is in the famous image below. his death was ruled a suicide.
our gov't is not new to silencing activists. the least we can do is remember them.
our gov't is not new to silencing activists. the least we can do is remember them.
March 10, 2025 at 9:27 PM
these are the names of young Black men who were "found dead" after the Ferguson uprising following the murder of Michael Brown in 2014. Edward Crawford Jr. is in the famous image below. his death was ruled a suicide.
our gov't is not new to silencing activists. the least we can do is remember them.
our gov't is not new to silencing activists. the least we can do is remember them.
Reposted by Alex Haagaard (they/them)
This is why you should never, ever follow some random people suggesting the march/protest split up.
I've heard plenty of stories of cop infiltrators doing this and then leading their splinter directly into a kettle.
I've heard plenty of stories of cop infiltrators doing this and then leading their splinter directly into a kettle.
Anyway, some info that’s kinda useful but not 100%. NYPD and cops in general will jump and grab people for stupid shit and provoke needless chaos regardless, but in terms of being able to control a mass of bodies, as long as they stick together, NYPD is pretty much useless.
March 10, 2025 at 11:11 PM
This is why you should never, ever follow some random people suggesting the march/protest split up.
I've heard plenty of stories of cop infiltrators doing this and then leading their splinter directly into a kettle.
I've heard plenty of stories of cop infiltrators doing this and then leading their splinter directly into a kettle.
Reposted by Alex Haagaard (they/them)
I’m not familiar with the influencer realm, but I’ve certainly gotten all that from people in the medical system who really fucking ought to know better.
March 10, 2025 at 10:44 PM
I’m not familiar with the influencer realm, but I’ve certainly gotten all that from people in the medical system who really fucking ought to know better.
Chronic illness influencers: you have to get comfortable ✨️ asking for help ✨️
Average chronically ill person: asks for help
Abled people: Who the fuck do you think you are, you attention-seeking piece of shit???
Average chronically ill person: asks for help
Abled people: Who the fuck do you think you are, you attention-seeking piece of shit???
March 10, 2025 at 9:58 PM
Chronic illness influencers: you have to get comfortable ✨️ asking for help ✨️
Average chronically ill person: asks for help
Abled people: Who the fuck do you think you are, you attention-seeking piece of shit???
Average chronically ill person: asks for help
Abled people: Who the fuck do you think you are, you attention-seeking piece of shit???
Tfw you realize the joint inflammation was counterbalancing the joint hypermobility 🥲
February 19, 2025 at 12:43 PM
Tfw you realize the joint inflammation was counterbalancing the joint hypermobility 🥲
Reposted by Alex Haagaard (they/them)
Please share your thoughts! We're all hoping to learn from this and to help everyone in this space find ways to more equitably share power in research /end
February 14, 2025 at 4:10 PM
Please share your thoughts! We're all hoping to learn from this and to help everyone in this space find ways to more equitably share power in research /end
Reposted by Alex Haagaard (they/them)
We also share some recommendations to more equitably share power if you're part of a research team that includes patient and public partners .../7
February 14, 2025 at 4:03 PM
We also share some recommendations to more equitably share power if you're part of a research team that includes patient and public partners .../7
Reposted by Alex Haagaard (they/them)
Power between and amongst patient/public partners. Yes, there are layers of power between and amongst patient/public partners and those in their networks that are important to recognize and be aware of .../6
February 14, 2025 at 4:03 PM
Power between and amongst patient/public partners. Yes, there are layers of power between and amongst patient/public partners and those in their networks that are important to recognize and be aware of .../6
Reposted by Alex Haagaard (they/them)
Unstable and changing nature of power. Peoples' abilities and capacities to engage equally depend on the environment in which the work is happening & economic, cultural, social and symbolic capitals .../5
February 14, 2025 at 4:03 PM
Unstable and changing nature of power. Peoples' abilities and capacities to engage equally depend on the environment in which the work is happening & economic, cultural, social and symbolic capitals .../5
Reposted by Alex Haagaard (they/them)
PPI or #PatientEngagement in research as a commodity or product. Some people see PPI as a way to extract experiences from patient/public partners or just validate their own work without really involving patient/public partners at all .../4
February 14, 2025 at 4:03 PM
PPI or #PatientEngagement in research as a commodity or product. Some people see PPI as a way to extract experiences from patient/public partners or just validate their own work without really involving patient/public partners at all .../4
Reposted by Alex Haagaard (they/them)
Power and tokenism. Here we talk about how tokenism can emerge in research collaborations or on teams when power and resources are disproportionately concentrated with one party (i.e., usually the academics).../3
February 14, 2025 at 4:02 PM
Power and tokenism. Here we talk about how tokenism can emerge in research collaborations or on teams when power and resources are disproportionately concentrated with one party (i.e., usually the academics).../3
Reposted by Alex Haagaard (they/them)
The themes about power we discuss are in not ranked or in order of importance and are:
➡️ power and tokenism
➡️ PPI/patient engagement as a commodity or product
➡️ the unstable and changing nature of power
➡️ power between and amongst patient/public partners
More on each below .../2
➡️ power and tokenism
➡️ PPI/patient engagement as a commodity or product
➡️ the unstable and changing nature of power
➡️ power between and amongst patient/public partners
More on each below .../2
February 14, 2025 at 4:01 PM
The themes about power we discuss are in not ranked or in order of importance and are:
➡️ power and tokenism
➡️ PPI/patient engagement as a commodity or product
➡️ the unstable and changing nature of power
➡️ power between and amongst patient/public partners
More on each below .../2
➡️ power and tokenism
➡️ PPI/patient engagement as a commodity or product
➡️ the unstable and changing nature of power
➡️ power between and amongst patient/public partners
More on each below .../2
Reposted by Alex Haagaard (they/them)
📢 Weekend reading on power dynamics in #PatientEngagement in #Research. Preprint (that means not peer reviewed yet) from our team that includes #PatientPartners and research allies and is about 4 themes concerning power on #PPI teams - osf.io/preprints/os... A bit of a 🧵 for you .../1
February 14, 2025 at 4:00 PM
📢 Weekend reading on power dynamics in #PatientEngagement in #Research. Preprint (that means not peer reviewed yet) from our team that includes #PatientPartners and research allies and is about 4 themes concerning power on #PPI teams - osf.io/preprints/os... A bit of a 🧵 for you .../1
Does anyone know if there's an Autistic or autoimmune reason why when you injure yourself it might take about 36 hours for the pain to actually kick in?
It makes sense to me as an Autistic sensory processing thing but also it's relatively new for me...
It makes sense to me as an Autistic sensory processing thing but also it's relatively new for me...
February 15, 2025 at 6:45 PM
Does anyone know if there's an Autistic or autoimmune reason why when you injure yourself it might take about 36 hours for the pain to actually kick in?
It makes sense to me as an Autistic sensory processing thing but also it's relatively new for me...
It makes sense to me as an Autistic sensory processing thing but also it's relatively new for me...
Reposted by Alex Haagaard (they/them)
The most helpful self care instruction I've heard is some random instagram reel explaining it as we're all allocated a human to look after during our time on earth. Self care is just doing what's best for your human like you would for a pet you're responsible for.
February 8, 2025 at 3:30 PM
The most helpful self care instruction I've heard is some random instagram reel explaining it as we're all allocated a human to look after during our time on earth. Self care is just doing what's best for your human like you would for a pet you're responsible for.
Reposted by Alex Haagaard (they/them)
Showers and the related transitions stress him out a bit so we're going to leave it an extra day, since he's poorly.
February 8, 2025 at 3:30 PM
Showers and the related transitions stress him out a bit so we're going to leave it an extra day, since he's poorly.
Reposted by Alex Haagaard (they/them)
A pet human needs nutrition, shelter, rest, bathing, veterinary care, appropriate exercise, a clean and safe enclosure, and appropriate enrichment.
Today my pet human can't breathe too well and should be resting somewhere warm with gentle enrichment activities.
Today my pet human can't breathe too well and should be resting somewhere warm with gentle enrichment activities.
February 8, 2025 at 3:30 PM
A pet human needs nutrition, shelter, rest, bathing, veterinary care, appropriate exercise, a clean and safe enclosure, and appropriate enrichment.
Today my pet human can't breathe too well and should be resting somewhere warm with gentle enrichment activities.
Today my pet human can't breathe too well and should be resting somewhere warm with gentle enrichment activities.