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Reposted by ALS Advocacy

Timothy Caulfield @caulfieldtim.bsky.social · 17h

🚨Our new study: Marketing of [BS] stem cell supplements www.cell.com/stem-cell-re... cc @stemcellnetwork.ca

"Marketing portrayed beneficial effect for over 60 diverse ailments..."

"All health claims were expressed with vague, noncausal verbs such as 'supports'..."

Needed: consumer protection!

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ALS Advocacy @alsadvocacy.bsky.social · 1d

Not a math major.

Reposted by ALS Advocacy

Colette Delawalla @cdelawalla.bsky.social · 1d

I’m a mom.
I’m a scientist.
I’m an activist.

I’m not going to stand by while unqualified, Quack, fringe-ass conspiracy theorists make decisions about my family’s health that is going to kill people.

Join me outside of HHS on 10/16 at 3pm.
@standupforscience.bsky.social

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ALS Advocacy @alsadvocacy.bsky.social · 2d

David Jerome Branch #ALSobit www.azcentral.com/obituaries/p...

David Jerome Branch Obituary - The Arizona Republic

Faced with a diagnosis of ALS (Lou Gehrig's Disease) with Frontotemporal Dementia (FTD) - David Jerome Branch reacted as he lived his life, with...

www.azcentral.com

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ALS Advocacy @alsadvocacy.bsky.social · 2d

Wharton wants their degree back.

ALS Advocacy @alsadvocacy.bsky.social · 2d

This is driving me nuts. They’ll pay us to take the drugs?

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Reposted by ALS Advocacy

slangsonsports.bsky.social @slangsonsports.bsky.social · 2d

Emmet Sheehan pitched in a postseason game with “K ALS” on his glove 😭😭😭

Thank you @BCBirdBall for such amazing advocates 🫶

#EndALS

h/t eagle-eyed @tomhaberstroh.bsky.social (no pun intended)

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ALS Advocacy @alsadvocacy.bsky.social · 2d

The groundbreaking shovel biz is the place to invest right now.

ALS Advocacy @alsadvocacy.bsky.social · 2d

I’m not a genius, but I paid attention in arithmetic class. . If you reduce a price 100%, the item costs 0. It’s free. What is all this talk about 600% price reductions?

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Reposted by ALS Advocacy

Timothy McBride @mcbridetd.bsky.social · 2d

HHS employees to be fired as White House enacts mass terminations again www.statnews.com/2025/10/10/h...

HHS employees to be fired as White House enacts mass terminations it blames on shutdown

Federal health employees are being fired as the White House makes good on a promise to terminate federal employees en masse because of the shutdown.

www.statnews.com

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ALS Advocacy @alsadvocacy.bsky.social · 2d

Troy Fields repping ALS Problem Solvers at NEALS meeting... Data on Act for ALS EAPs...

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ALS Advocacy @alsadvocacy.bsky.social · 2d

A big dose of irony here because even outside of a shutdown "the information on this website may not be up to date and the agency may not be able to respond to inquiries."
Go figure.

ALS Advocacy @alsadvocacy.bsky.social · 2d

Time for an evaluation of what has happened related to the action imperatives... and what has not...
nap.nationalacademies.org/download/27739

Login | The National Academies Press

nap.nationalacademies.org

ALS Advocacy @alsadvocacy.bsky.social · 3d

metro.co.uk/2025/10/10/m...

The mistake rugby can't afford to make after Lewis Moody's MND diagnosis

metro.co.uk

ALS Advocacy @alsadvocacy.bsky.social · 3d

And @RollingStone needs a little @limpbroozkit
www.rollingstone.com/culture/cult...

She Got a Terminal Diagnosis. She Turned TikTok Into Her Death Diary

Creator Brooke Eby is bringing people ALS awareness on TikTok with dark humor and a face to remember.

www.rollingstone.com

ALS Advocacy @alsadvocacy.bsky.social · 3d

If you only read one thing today...
www.latimes.com/opinion/stor...

Contributor: How Lou Gehrig's life taught me to fight for Prop. 50

The Trump administration's deadly cuts to medical research show why California must fight back and Democrats must regain control of the federal government.

www.latimes.com

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ALS Advocacy @alsadvocacy.bsky.social · 3d

www.arabnews.pk/node/2618329...

SFDA approves registration of Qalsody for ALS treatment

RIYADH: The Saudi Food and Drug Authority has approved the registration of Qalsody (Tofersen) for the treatment of adults with amyotrophic lateral sclerosis linked to mutations in the SOD1 gene, the S...

www.arabnews.pk

ALS Advocacy @alsadvocacy.bsky.social · 3d

www.biospace.com/press-releas...

Eikonizo Therapeutics Announces Publication in Brain Demonstrating Disease-Modifying Potential of Selective HDAC6 Inhibitors in Preclinical Models of ALS and FTD

www.biospace.com

Reposted by ALS Advocacy

Gregg Gonsalves @gregggonsalves.bsky.social · 3d

Are you in Ohio? Know someone who is? Step up. Let Senator Jon Husted hear from you!

Tara C. Smith @aetiology.bsky.social · 4d

Sharing again for Ohio folks as we will be printing these Husted "thank you" cards early next week for Columbus delivery. I know many folks here have thoughts about his votes re PH & healthcare. Please take 60 seconds to write so we can share them with his staffers, and please share w/ Ohio friends!

Elizabeth Lanphier @ethicselizabeth.bsky.social · 7d

Tell Jon Husted what you think about his track record on health and healthcare in #Ohio. Letters will be printed on note cards and hand delivered to his office on October 15th.