ARRE Foundation
12 following
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National Organization for Rare Disorders (NORD)
National Organization for Rare Disorders (NORD)
@nordrare.bsky.social
Rare Disease Clinical Trial Network
Rare Disease Clinical Trial Network
@rarediseasectn.bsky.social
Maddie Gillentine, PhD
Maddie Gillentine, PhD
@maddiegillentine.bsky.social
Anne O'Donnell-Luria
Anne O'Donnell-Luria
@anneotation.bsky.social
The Rare Disease Data Repository
The Rare Disease Data Repository
@therddr.bsky.social
Gaurav Varshney
Gaurav Varshney
@varshneylab.bsky.social
Syngap Research Fund
Syngap Research Fund
@curesyngap1.bsky.social
Clement Chow
Clement Chow
@clementychow.bsky.social
CRID - Unique Patient ID for rare disease clinical research
CRID - Unique Patient ID for rare disease clinical research
@thecrid.bsky.social
Coalition to Cure CHD2
Coalition to Cure CHD2
@curechd2.bsky.social
FamilieSCN2A Foundation
FamilieSCN2A Foundation
@scn2a.bsky.social
Bluesky
Bluesky
@bsky.app