Betsy Pilon
@betsypilon.bsky.social
Working to improve outcomes for neonatal & pediatric-acquired hypoxic brain injury. Powered by hope and coffee.
Current advocacy spice level:
🌶️🌶️🌶️🌶️/🌶️🌶️🌶️🌶️🌶️
#HopeforHIE #NeoSky #NeuroSky #PatientAdvocacy
Current advocacy spice level:
🌶️🌶️🌶️🌶️/🌶️🌶️🌶️🌶️🌶️
#HopeforHIE #NeoSky #NeuroSky #PatientAdvocacy
SELECT ITEMS FROM HOPE FOR HIE'S CAFEPRESS STORE ARE 50% OFF TODAY! Grab some swag!
www.cafepress.com/profile/Hope...
@hopeforhie.org
www.cafepress.com/profile/Hope...
@hopeforhie.org
November 28, 2025 at 7:10 PM
SELECT ITEMS FROM HOPE FOR HIE'S CAFEPRESS STORE ARE 50% OFF TODAY! Grab some swag!
www.cafepress.com/profile/Hope...
@hopeforhie.org
www.cafepress.com/profile/Hope...
@hopeforhie.org
First ever @hopeforhie.org leadership summit ✅
October 12, 2025 at 4:53 PM
First ever @hopeforhie.org leadership summit ✅
Soaking up every moment of bonus summer. The water is holding at 74/75.
October 1, 2025 at 11:31 AM
Soaking up every moment of bonus summer. The water is holding at 74/75.
When the little one gets the whole wakeboarding thing like a champ. Perfect end to a manic Monday.
July 15, 2025 at 3:10 AM
When the little one gets the whole wakeboarding thing like a champ. Perfect end to a manic Monday.
10 years ago was really the start of my advocacy journey and finding a taste of success. The article below was published in July 2015 on the #NICHD website, elevating HIE awareness to a bigger audience.
Read it below:
go.usa.gov/3fp3M
Read it below:
go.usa.gov/3fp3M
July 14, 2025 at 8:10 PM
10 years ago was really the start of my advocacy journey and finding a taste of success. The article below was published in July 2015 on the #NICHD website, elevating HIE awareness to a bigger audience.
Read it below:
go.usa.gov/3fp3M
Read it below:
go.usa.gov/3fp3M
Abandoned truck and trailer at our neighborhood boat ramp. 😆
July 12, 2025 at 12:51 PM
Abandoned truck and trailer at our neighborhood boat ramp. 😆
Discovery of the VapoRub inventor whilst in Greensboro, NC.
June 19, 2025 at 1:25 AM
Discovery of the VapoRub inventor whilst in Greensboro, NC.
Happy Father’s Day to this absolutely stellar human.
June 15, 2025 at 5:35 PM
Happy Father’s Day to this absolutely stellar human.
Morning sunrise in paradise. 🌅
April 20, 2025 at 5:40 PM
Morning sunrise in paradise. 🌅
New swag for #PAS2025 — catch @hopeforhie.org in the advocacy area Friday night!
🧠☀️🎉
#NeoSky #NeuroSky #NewbornBrains #NICU
🧠☀️🎉
#NeoSky #NeuroSky #NewbornBrains #NICU
April 16, 2025 at 6:55 PM
New swag for #PAS2025 — catch @hopeforhie.org in the advocacy area Friday night!
🧠☀️🎉
#NeoSky #NeuroSky #NewbornBrains #NICU
🧠☀️🎉
#NeoSky #NeuroSky #NewbornBrains #NICU
We are at the “it feels like the eternal winter in the Lion, Witch and the Wardrobe” phase of Michigan spring.
🥶🥶🥶🥶🥶
Working under the heated blanket today.
🥶🥶🥶🥶🥶
Working under the heated blanket today.
April 10, 2025 at 3:23 PM
We are at the “it feels like the eternal winter in the Lion, Witch and the Wardrobe” phase of Michigan spring.
🥶🥶🥶🥶🥶
Working under the heated blanket today.
🥶🥶🥶🥶🥶
Working under the heated blanket today.
Well over 100 people protesting our local Tesla dealership. ✊
April 3, 2025 at 10:53 PM
Well over 100 people protesting our local Tesla dealership. ✊
Ocean mammal palate cleanser.
April 3, 2025 at 3:22 AM
Ocean mammal palate cleanser.
#HIEawarenessmonth is in its TENTH YEAR -- how??? Why???
Because there was NO awareness, advocacy, or support for HIE families before families and leader in @hopeforhie.org stepped up for a community that historically had been excluded from #NICU advocacy, QI, representation, research and more.
Because there was NO awareness, advocacy, or support for HIE families before families and leader in @hopeforhie.org stepped up for a community that historically had been excluded from #NICU advocacy, QI, representation, research and more.
April 2, 2025 at 2:12 AM
#HIEawarenessmonth is in its TENTH YEAR -- how??? Why???
Because there was NO awareness, advocacy, or support for HIE families before families and leader in @hopeforhie.org stepped up for a community that historically had been excluded from #NICU advocacy, QI, representation, research and more.
Because there was NO awareness, advocacy, or support for HIE families before families and leader in @hopeforhie.org stepped up for a community that historically had been excluded from #NICU advocacy, QI, representation, research and more.
Friday night sunlight. 🌅
March 28, 2025 at 11:41 PM
Friday night sunlight. 🌅
I’ve been coming to this place since I was an infant with snowbird grandparents. I have such a love/loathe for FL.
Enjoy a picture looking out past the Pink Palace into the Gulf of Mexico.
Enjoy a picture looking out past the Pink Palace into the Gulf of Mexico.
March 24, 2025 at 9:14 PM
I’ve been coming to this place since I was an infant with snowbird grandparents. I have such a love/loathe for FL.
Enjoy a picture looking out past the Pink Palace into the Gulf of Mexico.
Enjoy a picture looking out past the Pink Palace into the Gulf of Mexico.
When the school therapy dog forces her head in your lap during the IEP… Daisy Mae just gets me. 😂🐾
The IEP went very well, but it always brings extra anxiety.
The IEP went very well, but it always brings extra anxiety.
March 18, 2025 at 11:04 PM
When the school therapy dog forces her head in your lap during the IEP… Daisy Mae just gets me. 😂🐾
The IEP went very well, but it always brings extra anxiety.
The IEP went very well, but it always brings extra anxiety.
For anyone in or around #NYC on June 26th, please consider attending and supporting this incredible piece by fellow @hopeforhie.org parent, Laura Sanchez. "Welcome to Holland?" is in reference to a popular poem about raising a child with disabilities.
www.eventbrite.com/e/welcome-to...
www.eventbrite.com/e/welcome-to...
March 13, 2025 at 7:10 PM
For anyone in or around #NYC on June 26th, please consider attending and supporting this incredible piece by fellow @hopeforhie.org parent, Laura Sanchez. "Welcome to Holland?" is in reference to a popular poem about raising a child with disabilities.
www.eventbrite.com/e/welcome-to...
www.eventbrite.com/e/welcome-to...