Carrie Anna McGinn
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carriemcginn.bsky.social
Carrie Anna McGinn
@carriemcginn.bsky.social
3.4K followers 2.4K following 39 posts
Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec

#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
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carriemcginn.bsky.social
🆘 Save Our Support Systems 👫
🆘 Save Our Science 🔬
🆘 Save Our Society 🌍

I am in solidarity with meactnet.bluesky.social protestors in DC & #pwME at home for #MillionsMissing 2025.

There are #NoTreatmentsNoCures for #MyalgicEncephalomyelitis & #LongCovid.

#DisabilitySOS #MECFS #MECFSAwarenessDay
Illustration of the Statue of Liberty drowning underwater. It's written: "#MEAction #MillionsMissing SOS. I am one of the 2025 #MillionsMissing. Save our Support Systems, Save our Science, Save our Society."
May 13, 2025 at 1:54 AM
carriemcginn.bsky.social
#MEAwareness #MEAwarenessDay #MEAwarenessMonth #MECFSAwareness #MECFSAwarenessDay #MECFSAwarenessMonth #MEAwarenessDay2025 #MECFSAwarenessDay2025 #MyalgicEncephalomyelitis #MECFS #pwME

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Picture of a woman with long dark hair sitting outdoors in a travel electric wheelchair. She has sunglasses on her head and she is wearing a blue long sleeve shirt that says "Still sick, still fighting. There's a caption on the left half of the picture that says, "Half of people with Long COVID develop Myalgic Encephalomyelitis (ME)... including me. Since the pandemic, millions of new people worldwide have developed ME, a complex, chronic, multisystem and disabling illness with no treatments and no cure. We need better clinical care, and high-quality research to find treatments and cures and to get back to our full lives we miss so much. Please mask up to avoid catching unnecessary infections which put you at high risk of joining the #MillionsMissing from their lives due to ME."
May 12, 2025 at 6:37 AM
carriemcginn.bsky.social
People with #MECFS need better clinical care and high-quality research to find treatments and cures and to get back to our full lives we miss so much.

Please mask up to avoid infections which put you at high risk of joining the #MillionsMissing from their lives due to ME.

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Picture of a woman with long dark hair sitting outdoors in a travel electric wheelchair. She has sunglasses on her head and she is wearing a blue long sleeve shirt that says "Still sick, still fighting. There's a caption on the left half of the picture that says, "Half of people with Long COVID develop Myalgic Encephalomyelitis (ME)... including me. Since the pandemic, millions of new people worldwide have developed ME, a complex, chronic, multisystem and disabling illness with no treatments and no cure. We need better clinical care, and high-quality research to find treatments and cures and to get back to our full lives we miss so much. Please mask up to avoid catching unnecessary infections which put you at high risk of joining the #MillionsMissing from their lives due to ME."
May 12, 2025 at 6:37 AM
carriemcginn.bsky.social
May 12th is International #MEAwarenessDay.

Half of people with Long COVID develop #MyalgicEncephalomyelitis (ME)... including me.

Since the pandemic, millions of new people worldwide have developed #MECFS, a complex, chronic, multisystem and disabling illness with no treatments and no cure.

1/
Picture of a woman with long dark hair sitting outdoors in a travel electric wheelchair. She has sunglasses on her head and she is wearing a blue long sleeve shirt that says "Still sick, still fighting. There's a caption on the left half of the picture that says, "Half of people with Long COVID develop Myalgic Encephalomyelitis (ME)... including me. Since the pandemic, millions of new people worldwide have developed ME, a complex, chronic, multisystem and disabling illness with no treatments and no cure. We need better clinical care, and high-quality research to find treatments and cures and to get back to our full lives we miss so much. Please mask up to avoid catching unnecessary infections which put you at high risk of joining the #MillionsMissing from their lives due to ME."
May 12, 2025 at 6:37 AM