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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 7h

#DidYouKnow? St. James's Hospital in Dublin is the only centre in Ireland conducting gene therapy clinical trials for haemophilia. Its Clinical Research Facility runs investigator-led and industry trials.

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 1d

Join Susanne Molin Friis in this new webinar on creating comfort and reducing anxiety for children and adolescents undergoing medical procedures.
🎥 Watch it now: academy.eahad.org/eahad/2025/p...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 2d

#EAHADVacancy 📢 EAHAD invites its members to apply for joining the Executive Committee. Take part in shaping EAHAD’s vision and advancing collaboration in haemophilia and allied disorders across Europe! 🗓️ Application deadline: 14 November 2025
Learn more and apply here: www.eahad.org/call-for-app...

Call for Applications: EAHAD Executive Committee

The European Association for Haemophilia and Allied Disorders is inviting all active members to apply for up to six (6) positions on its Executive Committee. To apply to join the Executive Committee, ...

www.eahad.org

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 8d

#EAHADVacancy 🩸 EAHAD is inviting haemophilia specialists to apply for one open position on its von Willebrand Disease Working Group for a three-year term starting February 2026! 🔗 Apply today: www.eahad.org/call-for-app...

Call for Applications: EAHAD von Willebrand Disease Working Group

The European Association for Haemophilia and Allied Disorders is inviting haemophilia specialists to apply for one (1) post on its von Willebrand Disease Working Group. The position is for a

www.eahad.org

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 8d

🎓 Travel Grants are now open! Are you an early-career physician, researcher, or allied health professional? Apply for the EAHAD 2026 Travel Grants to cover registration, travel and accommodation costs: kntn.ly/c7ba8a17

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 9d

🚨 We are happy to announce that we have established our Nomination Committee!
Its role is to ensure a transparent and fair process for electing Executive Committee members, reviewing all proposals from our membership against clear criteria.
Learn more 👉 www.eahad.org/introducing-...

Introducing the EAHAD Nomination Committee

We are pleased to announce the establishment of the EAHAD Nomination Committee, a new body created to ensure a fair, transparent, and structured process for electing members of the EAHAD

www.eahad.org

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 10d

Registration for EAHAD 2026 opens this October! Join the global haemophilia and allied disorders community in Dublin from 3 - 6 February to connect with colleagues and learn about the latest advances in the field.🩸eahadcongress.com/

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 13d

In this new episode of Meet the Author Interview, Maj Friberg Birkedal, Chair of the EAHAD Nurses Committee, shares insights on how the Neria™ Guard infusion set may ease pain and distress for children receiving emicizumab. 🎧 Listen here: open.spotify.com/episode/6HOi...

Meet the Author Ep. 8: A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children

open.spotify.com

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 14d

Our latest E-learning module 18 walks you through a practical, multidisciplinary approach to managing haemophilic arthropathy with Roberta Gualtierotti and Jacopo Acquati Lozej. 🎥 Now available on the #EAHADAcademy: academy.eahad.org/eahad/2025/e...

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 15d

Showcase your impact at EAHAD 2026! Explore sponsorship opportunities & connect with the global haemophilia and allied disorders community ➡️ eahadcongress.com/sponsorship/

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 16d

Don’t forget to take the survey! Your input will directly shape future training, improve patient conversations, and support shared decision-making in haemophilia care. 👉 Have your say today: www.surveymonkey.com/r/FCF5K57

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · Aug 12

🧬Gene therapy is advancing #haemophilia care, but what do HCPs need to feel confident in using it? Take our Europe-wide survey to share your experience, knowledge & info needs regarding haemophilia #genetherapy 👉 Your perspective matters: www.surveymonkey.com/r/FCF5K57

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 17d

📰 Care for Glanzmann’s thrombasthenia still varies widely across Europe. A new publication from the EAHAD Glanzmann Thrombasthenia Working Group highlights areas of agreement and where further alignment is needed. Read more on the Haemophilia Journal 🔗 onlinelibrary.wiley.com/doi/10.1111/...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 20d

🧬The EAHAD GT Trials Database has just been updated!🔍Dive into the latest clinical trial results in #haemophilia and allied disorders! Our database is freely available and publicly accessible, making it your go-to source for cutting-edge information: eahadgtd.mdsas.com

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 21d

Watch the latest e-learning module with Roberta Gualtierotti and Jacopo Acquati Lozej on non-surgical management of hemophilic arthropathy: pain, synovitis, and osteochondral damage. 🎥 Now available on the #EAHADAcademy: academy.eahad.org/eahad/2025/e...

Module 18: Non-surgical management of haemophilic arthropathy by Faculty Speakers

EAHAD Academy; Speakers F. Sep 10 2025; 4183408;

academy.eahad.org

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 23d

#DidYouKnow? The National Coagulation Centre at St. James’s Hospital in Dublin, home of EAHAD 2026 President Prof. Niamh O’Connell, is driving haemophilia research with precision data on bleeding risks.

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 24d

We're happy to see that @isth.org is engaging with the broader community on priority areas for new clinical guidelines. We also appreciate reading this letter signed by so many experts in our field, welcoming this opportunity for collaboration. Together, we can achieve so much more!

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 27d

We are excited to share that our news doesn’t stop here! Join us in welcoming Isidora Laur Vukovic as our new Project Coordinator, who will lead and oversee our EAHAD Working Groups.

📧 You can reach Isidora at [email protected]

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 27d

🩺 Reminder for healthcare professionals and patients! The VRCFD Working Group is still collecting responses for its survey on very rare coagulation factor deficiencies. Your insights are crucial to improving understanding and care:
www.eahad.org/about-eahad/...

Very Rare Coagulation Factor Deficiencies Working Group

Formed in March 2024, the Working Group aims to extend our knowledge of patients with very rare coagulation factor deficiencies with focus on demographics, clinical bleeding phenotype, laboratory phen...

www.eahad.org

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 28d

The EAHAD 2026 AHP Day programme is live! Explore the sessions and prepare for the latest in haemophilia science and care: eahadcongress.com/allied-healt...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · Sep 8

Stay up to date with EAHAD 2026 by subscribing to our Congress newsletter. Sign up on our homepage to get the latest news and announcements ➡️ eahadcongress.com/

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · Sep 5

We're delighted to welcome Noa Kabera as EAHAD's new Project Coordinator. She will support our projects, with a focus on EUHASS, as well as other initiatives advancing care & collaboration in haemophilia and allied disorders.

📧 [email protected]

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · Sep 4

📰 Check the recently published article “Gap Analysis Investigating Healthcare Professionals’ Skills and Knowledge for Pain Management in Haemophilia - A Qualitative Study”. 🔗 onlinelibrary.wiley.com/doi/10.1111/... @haemophilia.bsky.social

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · Sep 3

🎧 New Podcast Alert! Join us for the latest "Meet the Author Interview" with Maj Friberg Birkedal, Chair of the EAHAD Nurses Committee, discussing how the Neria™ Guard infusion set may help reduce pain and distress for children receiving emicizumab. Tune in now: open.spotify.com/episode/6HOi...

Meet the Author Ep. 8: A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children

open.spotify.com

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · Sep 2

🚨Abstract submissions for EAHAD 2026 are now open! Share your research with leading experts in haemophilia and bleeding disorders before 27 October ➡️

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Reposted by EAHAD - European Association for Haemophilia and Allied Disorder

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · Aug 12

🧬Gene therapy is advancing #haemophilia care, but what do HCPs need to feel confident in using it? Take our Europe-wide survey to share your experience, knowledge & info needs regarding haemophilia #genetherapy 👉 Your perspective matters: www.surveymonkey.com/r/FCF5K57

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