Lightnews — Scholar-powered news

Dr. Emily Drake

@ekdrake.bsky.social

560 followers 740 following 390 posts

Assistant #Professor, Mount Allison University 🇨🇦 • #CancerResearcher • Co-Founder #AYACSM • 🌎 #Speaker • Consultant • Knowledge Mobilization • #Kmb • #PalliativeCare #PallOnc • Views my own • Follow on Instagram! EmilyDrake.ca (She/Her)

Posts Media Videos Starter Packs

Pinned

Dr. Emily Drake @ekdrake.bsky.social · Jan 19

✅ I started an #AYACSM (Adolescent and Young Adult Cancer Societal Movement) starter pack!

⭐ This is the beginnings of gathering all of us around the globe 🌍 who are involved in #AYACancer work/advocacy

💡 Please share and let me know who you would like to have added!

go.bsky.app/Vfp4JWE

#AYACSM - Adolescent and young adult cancer

Join the conversation

go.bsky.app

16 13 32

Dr. Emily Drake @ekdrake.bsky.social · 11d

Cheering you on!! #ASTRO25

Reposted by Dr. Emily Drake

Nichole Miner @ebpadvocate.bsky.social · Sep 10

Thank you for having me! I'm so glad I got to do this.

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

@ebpadvocate.bsky.social thank you so much for guest moderating this evening and for the time and care you put into your questions! #AYACSM

1 1

Reposted by Dr. Emily Drake

Nichole Miner @ebpadvocate.bsky.social · Sep 10

BURNOUT! #AYACSM

I learned the hard way. Burn out is very real, and very physical. My thyroid stopped working about 6 months after we got through the thick of it.

1 2

Reposted by Dr. Emily Drake

Nichole Miner @ebpadvocate.bsky.social · Sep 10

These are great tips! #AYACSM

1 2

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

@ebpadvocate.bsky.social thank you so much for guest moderating this evening and for the time and care you put into your questions! #AYACSM

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

Thank you to everyone who joined in on the conversation. Your time, posts and comments are appreciated and important!

We are looking for guest moderators for 2025 – please let me know if you are interested!

Please tune in Tuesday, October 7th @ 8PM ET for the next #AYACSM chat!

1 3

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

Here's another piece I wrote for #AYACSM as well. It was my first #blog for the @huffpost.com

www.huffpost.com/entry/cancer...

Avoid Burnout: 7 Tips for Caregivers of Young Adult Cancer Patients and Survivors

Caring for a person with cancer can be extremely rewarding, but it can be exhausting as well. A diagnosis of cancer during adolescence and young adulthood interrupts a person's life and comes at a tim...

www.huffpost.com

1 2

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

Here is a blog I wrote a few years ago for parents:

blogs.bmj.com/adc/2018/03/...

#AYACSM #OncSky

Guest Blog: 5 Tips Parents/Caregivers Can Use to Help Make Cancer Less Painful for Kids: #KidsCancerPain - ADC Online Blog

Pain is one of the most distressing symptoms children living with cancer experience. It can be caused by the disease, procedures and side effects of medication. Pain can be pervasive and impact every ...

blogs.bmj.com

2 1 1

Reposted by Dr. Emily Drake

Nichole Miner @ebpadvocate.bsky.social · Sep 10

Last question of the evening:

Q4 What are your best self-care tips for caregivers during treatment and after? #AYACSM

1 1 2

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

What do parents think of this? #AYACSM

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

Okay - I didn’t realize that this was happening. I haven’t heard of this in Canada 🇨🇦 so I appreciate you keeping me up with the US #AYACSM

1 1

Reposted by Dr. Emily Drake

Nichole Miner @ebpadvocate.bsky.social · Sep 10

HIPAA, I think liability issues across organizations, hospitals want things done in different ways than what the outside organizations are doing. #AYACSM

1 1 1

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

Oh, is that changing? How come that’s happening? #AYACSM

1 1

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

#AYACSM 👇

Nichole Miner @ebpadvocate.bsky.social · Sep 10

I was trying to keep it to 1 post lol

But yes, better access to outside resources as well. Though I know a lot of hospitals are clamping down on that.

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

I think one piece would be sharing resources and support services that can help #AYACSM

1 1

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

This is true! We are trying to rebuild the #AYACSM chats here on this platform, so if people see these posts at a later time and want to add to the conversation please feel free to!

Reposted by Dr. Emily Drake

Nichole Miner @ebpadvocate.bsky.social · Sep 10

Q3: How can providers and systems better support parents of AYA patients? #AYACSM

Anyone can jump in on any question as well!

3 1 2

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

#AYACSM 👇

Christina Huang @chrhuang.medsky.social · Sep 10

I’m not on the diagnostic side, so it’s hard for me to say. Specialty societies also try to adapt by responding to population based studies—adjusting their screening guidelines to younger ages, populations that may be at greater risk, etc

Reposted by Dr. Emily Drake

Christina Huang @chrhuang.medsky.social · Sep 10

1 3

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

Thank you for that answer @chrhuang.medsky.social!! Advocacy and story telling are so central to moving the needle ahead for #AYACSM

Reposted by Dr. Emily Drake

Nichole Miner @ebpadvocate.bsky.social · Sep 10

#AYACSM answer to Q2

Christina Huang @chrhuang.medsky.social · Sep 10

Just being there at appointments and taking in all of the info! Asking the questions! And outside of the clinic—as patient advocates at medical specialties…people need to know their stories!

1 1 1

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

Yes - the founder of @cervivor.bsky.social, Tamika Felder, has done an incredible amount of global advocacy that has led to the uptake of the HPV vaccine around the world. #AYACSM

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

#AYACSM 👇

Christina Huang @chrhuang.medsky.social · Sep 10

Well, to be honest I’m not sure it’s that doctors are better at working up symptoms: in the modern era we have less and less time with patients. I think what’s really driving it is improvement in testing—new blood tests, advanced imaging. But I think medical education improves every year

Dr. Emily Drake @ekdrake.bsky.social · Sep 10

#AYACSM 👇

Nichole Miner @ebpadvocate.bsky.social · Sep 10

I do yes, everyone is different. I have found some nurses like a high degree of control, and some are happy to hand off as much as possible. It's also helped me learn when to give up control, or speak up more.

Reposted by Dr. Emily Drake

Nichole Miner @ebpadvocate.bsky.social · Sep 10

seconded! #AYACSM

1 1 1