ELSIhub | CERA
@elsihub.bsky.social
ELSIhub.org is an online hub supporting work in ELSI of genetics & genomics. ELSIhub is managed by the Center for ELSI Resources and Analysis (CERA). https://linktr.ee/elsihub
The discussion called for ethical responsibility, transparency, and research that focuses on challenges impacting quality of life rather than neutral traits that are part of Autistic identity. Here are some key takeaways from our speakers.
November 24, 2025 at 3:45 PM
The discussion called for ethical responsibility, transparency, and research that focuses on challenges impacting quality of life rather than neutral traits that are part of Autistic identity. Here are some key takeaways from our speakers.
How should autism researchers re-think their studies to serve the needs of the autistic community?
Our last #ELSIFridayForum session, we examined longstanding tensions between autism research—especially genetics—and the priorities and lived experiences of Autistic people.
Our last #ELSIFridayForum session, we examined longstanding tensions between autism research—especially genetics—and the priorities and lived experiences of Autistic people.
November 24, 2025 at 3:45 PM
How should autism researchers re-think their studies to serve the needs of the autistic community?
Our last #ELSIFridayForum session, we examined longstanding tensions between autism research—especially genetics—and the priorities and lived experiences of Autistic people.
Our last #ELSIFridayForum session, we examined longstanding tensions between autism research—especially genetics—and the priorities and lived experiences of Autistic people.
UPenn’s Department of Medical Ethics & Health Policy just announced its Spring 2026 event lineup!
The Research Ethics & Policy Series (REPS) returns with timely conversations at the intersection of ethics, genetics, and emerging biomedical innovation.
🔗 ELSIhub Calendar: elsihub.org/news-and-eve...
The Research Ethics & Policy Series (REPS) returns with timely conversations at the intersection of ethics, genetics, and emerging biomedical innovation.
🔗 ELSIhub Calendar: elsihub.org/news-and-eve...
November 21, 2025 at 2:16 PM
UPenn’s Department of Medical Ethics & Health Policy just announced its Spring 2026 event lineup!
The Research Ethics & Policy Series (REPS) returns with timely conversations at the intersection of ethics, genetics, and emerging biomedical innovation.
🔗 ELSIhub Calendar: elsihub.org/news-and-eve...
The Research Ethics & Policy Series (REPS) returns with timely conversations at the intersection of ethics, genetics, and emerging biomedical innovation.
🔗 ELSIhub Calendar: elsihub.org/news-and-eve...
Important work on #ELSI of #geneticprivacy - After 23andMe’s bankruptcy, the genetic data of 15M users was sold to a nonprofit led by its former CEO—raising new alarms about weak U.S. privacy laws. A new Science article urges Congress to enact stronger federal protections
November 20, 2025 at 1:58 PM
Important work on #ELSI of #geneticprivacy - After 23andMe’s bankruptcy, the genetic data of 15M users was sold to a nonprofit led by its former CEO—raising new alarms about weak U.S. privacy laws. A new Science article urges Congress to enact stronger federal protections
#ELSI in the news: A Boston AI startup is putting up a ‘ChatGPT for DNA’ — combining genetic data, search-engine style queries and primary-care insights.
How much should we rely on AI in primary care settings?
Share your thoughts here: connect.elsihub.org/c/general-di...
How much should we rely on AI in primary care settings?
Share your thoughts here: connect.elsihub.org/c/general-di...
November 19, 2025 at 9:25 PM
#ELSI in the news: A Boston AI startup is putting up a ‘ChatGPT for DNA’ — combining genetic data, search-engine style queries and primary-care insights.
How much should we rely on AI in primary care settings?
Share your thoughts here: connect.elsihub.org/c/general-di...
How much should we rely on AI in primary care settings?
Share your thoughts here: connect.elsihub.org/c/general-di...
We're hosting a webinar about applying grant from foundations!
Directors (inclu. @ishandasgupta.bsky.social) from two leading funders [email protected] @danafoundation.bsky.social will discuss funding opportunities and application process.
Registration: us06web.zoom.us/meeting/regi...
Directors (inclu. @ishandasgupta.bsky.social) from two leading funders [email protected] @danafoundation.bsky.social will discuss funding opportunities and application process.
Registration: us06web.zoom.us/meeting/regi...
November 18, 2025 at 3:24 PM
We're hosting a webinar about applying grant from foundations!
Directors (inclu. @ishandasgupta.bsky.social) from two leading funders [email protected] @danafoundation.bsky.social will discuss funding opportunities and application process.
Registration: us06web.zoom.us/meeting/regi...
Directors (inclu. @ishandasgupta.bsky.social) from two leading funders [email protected] @danafoundation.bsky.social will discuss funding opportunities and application process.
Registration: us06web.zoom.us/meeting/regi...
Lunchtime Lecture Series by The Working Group on Pediatric Gene Therapy & Medical Ethics (PGTME) at @nyumedpostdocs.bsky.social !
This week from 12-1:15pm ET daily, PGTME will host sessions on pressing topics in the gene therapy space.
Visit our ELSI calendar: elsihub.org/news-and-eve...
This week from 12-1:15pm ET daily, PGTME will host sessions on pressing topics in the gene therapy space.
Visit our ELSI calendar: elsihub.org/news-and-eve...
November 17, 2025 at 3:09 PM
Lunchtime Lecture Series by The Working Group on Pediatric Gene Therapy & Medical Ethics (PGTME) at @nyumedpostdocs.bsky.social !
This week from 12-1:15pm ET daily, PGTME will host sessions on pressing topics in the gene therapy space.
Visit our ELSI calendar: elsihub.org/news-and-eve...
This week from 12-1:15pm ET daily, PGTME will host sessions on pressing topics in the gene therapy space.
Visit our ELSI calendar: elsihub.org/news-and-eve...
Pic 2: Among Hispanic or Latino participants, ancestry patterns varied even more geographically - European ancestry was highest in states such as Florida and Pennsylvania. Native American ancestry was highest in western and southwestern states. African ancestry is highest in New York.
November 13, 2025 at 3:02 PM
Pic 2: Among Hispanic or Latino participants, ancestry patterns varied even more geographically - European ancestry was highest in states such as Florida and Pennsylvania. Native American ancestry was highest in western and southwestern states. African ancestry is highest in New York.
Pic 1: Hispanic or Latino participants had, on average, about half European ancestry, one-third Native American, and a smaller portion African.
November 13, 2025 at 3:02 PM
Pic 1: Hispanic or Latino participants had, on average, about half European ancestry, one-third Native American, and a smaller portion African.
🧵Why self-reported race/ethnicity cannot represent ancestry?
In our last Journal Club, Author Mateus H. Gouveia shared important insight from the paper, "Subcontinental genetic variation in the All of Us Research Program". The ancestry data from All of Us program shows great variation
In our last Journal Club, Author Mateus H. Gouveia shared important insight from the paper, "Subcontinental genetic variation in the All of Us Research Program". The ancestry data from All of Us program shows great variation
November 13, 2025 at 3:02 PM
🧵Why self-reported race/ethnicity cannot represent ancestry?
In our last Journal Club, Author Mateus H. Gouveia shared important insight from the paper, "Subcontinental genetic variation in the All of Us Research Program". The ancestry data from All of Us program shows great variation
In our last Journal Club, Author Mateus H. Gouveia shared important insight from the paper, "Subcontinental genetic variation in the All of Us Research Program". The ancestry data from All of Us program shows great variation
ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff.
Our November 2025 set explores interventions to increase genetic testing for breast cancer and more.
Read: elsihub.org/news/elsi-re...
Our November 2025 set explores interventions to increase genetic testing for breast cancer and more.
Read: elsihub.org/news/elsi-re...
November 12, 2025 at 4:32 PM
ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff.
Our November 2025 set explores interventions to increase genetic testing for breast cancer and more.
Read: elsihub.org/news/elsi-re...
Our November 2025 set explores interventions to increase genetic testing for breast cancer and more.
Read: elsihub.org/news/elsi-re...
An exciting hybrid event in our ELSI Orbit:
"15th Annual Ethics Conference: Research Ethics & Novel Biotechnologies: When Tech is On You, In You, Over You, and More"
Keynote: "The Ethics and Futures of Wearable Self-Surveillance".
More info: elsihub.org/event/15th-a...
"15th Annual Ethics Conference: Research Ethics & Novel Biotechnologies: When Tech is On You, In You, Over You, and More"
Keynote: "The Ethics and Futures of Wearable Self-Surveillance".
More info: elsihub.org/event/15th-a...
November 11, 2025 at 4:02 PM
An exciting hybrid event in our ELSI Orbit:
"15th Annual Ethics Conference: Research Ethics & Novel Biotechnologies: When Tech is On You, In You, Over You, and More"
Keynote: "The Ethics and Futures of Wearable Self-Surveillance".
More info: elsihub.org/event/15th-a...
"15th Annual Ethics Conference: Research Ethics & Novel Biotechnologies: When Tech is On You, In You, Over You, and More"
Keynote: "The Ethics and Futures of Wearable Self-Surveillance".
More info: elsihub.org/event/15th-a...
In our upcoming ELSI Friday Forum, we’ll discuss the responsibilities of autism researchers to the individuals and communities they study — including the promotion of wellbeing, implementation, and best practices for engagement and communication of study results.
November 7, 2025 at 3:18 PM
In our upcoming ELSI Friday Forum, we’ll discuss the responsibilities of autism researchers to the individuals and communities they study — including the promotion of wellbeing, implementation, and best practices for engagement and communication of study results.
How researchers talk about autism matters. 🧵
🔍In their 2022 paper, “Autism research is in crisis” (Frontiers in Psychology), Monique Botha and Eilidh Cage examine how autism researchers construct autistic people through their language and frameworks.
🔍In their 2022 paper, “Autism research is in crisis” (Frontiers in Psychology), Monique Botha and Eilidh Cage examine how autism researchers construct autistic people through their language and frameworks.
November 7, 2025 at 3:18 PM
How researchers talk about autism matters. 🧵
🔍In their 2022 paper, “Autism research is in crisis” (Frontiers in Psychology), Monique Botha and Eilidh Cage examine how autism researchers construct autistic people through their language and frameworks.
🔍In their 2022 paper, “Autism research is in crisis” (Frontiers in Psychology), Monique Botha and Eilidh Cage examine how autism researchers construct autistic people through their language and frameworks.
🗓️Save the date - ELSI Congress 2026
The 2026 ELSI Congress will be held June 22-24, at the Friday Conference Center in Chapel Hill, NC.
The organizing committee wants to hear your thoughts on the theme(s)!
Join our discussion on ELSIconnect here: connect.elsihub.org/c/announceme...
The 2026 ELSI Congress will be held June 22-24, at the Friday Conference Center in Chapel Hill, NC.
The organizing committee wants to hear your thoughts on the theme(s)!
Join our discussion on ELSIconnect here: connect.elsihub.org/c/announceme...
November 4, 2025 at 2:23 PM
🗓️Save the date - ELSI Congress 2026
The 2026 ELSI Congress will be held June 22-24, at the Friday Conference Center in Chapel Hill, NC.
The organizing committee wants to hear your thoughts on the theme(s)!
Join our discussion on ELSIconnect here: connect.elsihub.org/c/announceme...
The 2026 ELSI Congress will be held June 22-24, at the Friday Conference Center in Chapel Hill, NC.
The organizing committee wants to hear your thoughts on the theme(s)!
Join our discussion on ELSIconnect here: connect.elsihub.org/c/announceme...
Genomic and other Autism research raises hopes for improved health outcomes yet also raises concerns.
💡Join our upcoming #ELSIFridayForum to explore the responsibilities of Autism researchers towards the individuals and community they study.
Signup: cumc.co1.qualtrics.com/jfe/form/SV_...
💡Join our upcoming #ELSIFridayForum to explore the responsibilities of Autism researchers towards the individuals and community they study.
Signup: cumc.co1.qualtrics.com/jfe/form/SV_...
November 3, 2025 at 7:45 PM
Genomic and other Autism research raises hopes for improved health outcomes yet also raises concerns.
💡Join our upcoming #ELSIFridayForum to explore the responsibilities of Autism researchers towards the individuals and community they study.
Signup: cumc.co1.qualtrics.com/jfe/form/SV_...
💡Join our upcoming #ELSIFridayForum to explore the responsibilities of Autism researchers towards the individuals and community they study.
Signup: cumc.co1.qualtrics.com/jfe/form/SV_...
Are you in Portland for #ASBH2025 ? Check out our list of #ELSI -related presentations and panels. Connect with ELSI scholars and let us know about what's you're up to!
connect.elsihub.org/c/general-di...
connect.elsihub.org/c/general-di...
October 22, 2025 at 8:09 PM
Are you in Portland for #ASBH2025 ? Check out our list of #ELSI -related presentations and panels. Connect with ELSI scholars and let us know about what's you're up to!
connect.elsihub.org/c/general-di...
connect.elsihub.org/c/general-di...
Risk communication containing genetic information is complex: Even well-counseled participants struggle to interpret probabilistic information. Therefore, ethical practice requires cultural and educational adaptation in counseling and materials.
October 22, 2025 at 6:27 PM
Risk communication containing genetic information is complex: Even well-counseled participants struggle to interpret probabilistic information. Therefore, ethical practice requires cultural and educational adaptation in counseling and materials.
What will happen if a cognitively healthy individual is given the genetic test result, that they are at risk of Alzheimer’s?
On Oct 10th #ELSIFridayForum, our panelists uncovered challenges and concerns on returning and receiving Alzheimer’s genetic risk information. Read the recap ⬇️
On Oct 10th #ELSIFridayForum, our panelists uncovered challenges and concerns on returning and receiving Alzheimer’s genetic risk information. Read the recap ⬇️
October 22, 2025 at 6:26 PM
What will happen if a cognitively healthy individual is given the genetic test result, that they are at risk of Alzheimer’s?
On Oct 10th #ELSIFridayForum, our panelists uncovered challenges and concerns on returning and receiving Alzheimer’s genetic risk information. Read the recap ⬇️
On Oct 10th #ELSIFridayForum, our panelists uncovered challenges and concerns on returning and receiving Alzheimer’s genetic risk information. Read the recap ⬇️
🧬 New ELSI Collection: Investigative Genetic Genealogy (IGG) and Law Enforcement
Since the Golden State Killer case, IGG has transformed the criminal investigation. Yet, this powerful technique raises pressing ethical and legal challenges.
Explore the collection here: elsihub.org/collection/e...
Since the Golden State Killer case, IGG has transformed the criminal investigation. Yet, this powerful technique raises pressing ethical and legal challenges.
Explore the collection here: elsihub.org/collection/e...
October 16, 2025 at 3:05 PM
🧬 New ELSI Collection: Investigative Genetic Genealogy (IGG) and Law Enforcement
Since the Golden State Killer case, IGG has transformed the criminal investigation. Yet, this powerful technique raises pressing ethical and legal challenges.
Explore the collection here: elsihub.org/collection/e...
Since the Golden State Killer case, IGG has transformed the criminal investigation. Yet, this powerful technique raises pressing ethical and legal challenges.
Explore the collection here: elsihub.org/collection/e...
Are you at @geneticssociety.bsky.social Annual meeting? Check out our list of ELSI-related panels and presentations, ranging from community engagement to the ethical use of population descriptors.
Take this opportunity to engage with ELSI community!
connect.elsihub.org/c/general-di...
Take this opportunity to engage with ELSI community!
connect.elsihub.org/c/general-di...
October 15, 2025 at 5:03 PM
Are you at @geneticssociety.bsky.social Annual meeting? Check out our list of ELSI-related panels and presentations, ranging from community engagement to the ethical use of population descriptors.
Take this opportunity to engage with ELSI community!
connect.elsihub.org/c/general-di...
Take this opportunity to engage with ELSI community!
connect.elsihub.org/c/general-di...
Meet the 2025-26 Sadler Scholars and CERA Fellows: Blessing Adewuyi & Victor Ekuta, MD
@hastingscenter.bsky.social collaborates with CERA to offer additional professional opportunities to their Sadler Scholars who conduct ELSI related work.
Learn more: www.thehastingscenter.org/news/meet-th...
@hastingscenter.bsky.social collaborates with CERA to offer additional professional opportunities to their Sadler Scholars who conduct ELSI related work.
Learn more: www.thehastingscenter.org/news/meet-th...
October 7, 2025 at 2:35 PM
Meet the 2025-26 Sadler Scholars and CERA Fellows: Blessing Adewuyi & Victor Ekuta, MD
@hastingscenter.bsky.social collaborates with CERA to offer additional professional opportunities to their Sadler Scholars who conduct ELSI related work.
Learn more: www.thehastingscenter.org/news/meet-th...
@hastingscenter.bsky.social collaborates with CERA to offer additional professional opportunities to their Sadler Scholars who conduct ELSI related work.
Learn more: www.thehastingscenter.org/news/meet-th...
📖 Join us for the next ELSI Journal Club session!
Subcontinental genetic variation in the All of Us Research Program: Implications for biomedical research
Published on @ajhgnews.bsky.social
🗓 October 31, 2025 | 🕛 12–1 p.m. ET
📍 Online via Zoom
🔗 Register here: us06web.zoom.us/meeting/regi...
Subcontinental genetic variation in the All of Us Research Program: Implications for biomedical research
Published on @ajhgnews.bsky.social
🗓 October 31, 2025 | 🕛 12–1 p.m. ET
📍 Online via Zoom
🔗 Register here: us06web.zoom.us/meeting/regi...
October 6, 2025 at 4:38 PM
📖 Join us for the next ELSI Journal Club session!
Subcontinental genetic variation in the All of Us Research Program: Implications for biomedical research
Published on @ajhgnews.bsky.social
🗓 October 31, 2025 | 🕛 12–1 p.m. ET
📍 Online via Zoom
🔗 Register here: us06web.zoom.us/meeting/regi...
Subcontinental genetic variation in the All of Us Research Program: Implications for biomedical research
Published on @ajhgnews.bsky.social
🗓 October 31, 2025 | 🕛 12–1 p.m. ET
📍 Online via Zoom
🔗 Register here: us06web.zoom.us/meeting/regi...
📅Join us on October 10th, 12pm ET/ 9am PT for the next #ELSIFridayForum: Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease
Speakers: Ottman, PhD; Jessica Mozersky, PhD
Moderator: Emily Largent, JD, RN, PhD.
cumc.co1.qualtrics.com/jfe/form/SV_...
Speakers: Ottman, PhD; Jessica Mozersky, PhD
Moderator: Emily Largent, JD, RN, PhD.
cumc.co1.qualtrics.com/jfe/form/SV_...
September 29, 2025 at 3:25 PM
📅Join us on October 10th, 12pm ET/ 9am PT for the next #ELSIFridayForum: Knowing or Not Knowing: The Ethics of Returning Genetic Risk Information for Alzheimer’s Disease
Speakers: Ottman, PhD; Jessica Mozersky, PhD
Moderator: Emily Largent, JD, RN, PhD.
cumc.co1.qualtrics.com/jfe/form/SV_...
Speakers: Ottman, PhD; Jessica Mozersky, PhD
Moderator: Emily Largent, JD, RN, PhD.
cumc.co1.qualtrics.com/jfe/form/SV_...
ELSIhub has officially launched a brand new discussion forum - ELSIconnect!
Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space.
To join, visit: connect.elsihub.org
Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space.
To join, visit: connect.elsihub.org
September 19, 2025 at 2:16 PM
ELSIhub has officially launched a brand new discussion forum - ELSIconnect!
Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space.
To join, visit: connect.elsihub.org
Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space.
To join, visit: connect.elsihub.org