Centre of Genomics and Policy
@genomicsandpolicy.bsky.social
240 followers 46 following 42 posts
Centre of Genomics and Policy: Exploring the socio-ethical and legal issues in genomic health sciences. www.genomicsandpolicy.org/
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genomicsandpolicy.bsky.social
🗞️ Our newsletter is fresh off the press!

Catch up on the recent research, publications, and highlights at the CGP in our Summer-Fall Issue: mailchi.mp/mcgill/cgp-n...
CGP News | Summer-Fall Issue 2025
mailchi.mp
genomicsandpolicy.bsky.social
The CGP and @phgfoundation.bsky.social co-hosted an international think tank at Ayer’s Cliff, Canada, bringing together leading scholars, professionals and practitioners to reimagine the future of #genomics, #medicine, and global population #health in a data-driven world now through 2050.
Photo (left to right): Bartha Maria Knoppers, Brian Chung, Laura Blackburn, Ron Zimmern, Vasiliki Rahimzadeh, Colin, Ma’n H. Zawati, Anna Lewis, Edward Dove, Nicola Mulder, Jeffrey Barrett, Paul Pharoah, Marina Cornel, Anneke Lucassen, Anthony Ng, David Glazer, Katherine Littler, Jeff Skopek, Habiba Al Safar, Eric Meslin, Yann Joly, Calvin Ho, and Pete Mills.
genomicsandpolicy.bsky.social
Prof. Calvin W.L. Ho’s talk, “Polygenic Risk Scores and the Human Right to Science,” from the Annual Bartha Maria Knoppers Lecture, is now available for viewing! 🎤

Watch the recording on our YouTube channel:
youtu.be/BRbpegQDF5A?...
Prof. Calvin Ho presenting at the Bartha Maria Knoppers Annual Lecture 2025
genomicsandpolicy.bsky.social
📸 In the photo (left to right): David Rosenblatt, Bartha Maria Knoppers, Calvin W.L. Ho, Eric M. Meslin, Yann Joly, and Ma'n H. Zawati.
genomicsandpolicy.bsky.social
🎤 That’s a wrap on the 3rd Annual Bartha Maria Knoppers Lecture! Honoured to host Prof. Calvin W.L. Ho (@monashuniversity.bsky.social) for his talk, "Polygenic Risk Scores and the Human Right to Science," celebrating Knoppers' legacy in genomics and health law. Thanks to all who attended!
genomicsandpolicy.bsky.social
Is it time to rethink ELSI? 💭

Last week at @mcgill.ca, our guest speaker Eric M. Meslin, global leader in bioethics and science policy and member of the CGP Advisory Committee member, sparked a vital convo on ELSI’s future in research & genomics—its roots, impact, and two diverging paths ahead.
Reposted by Centre of Genomics and Policy
mhzawati.bsky.social
Honoured to share that I have been elected to the College of New Scholars, Artists and Scientists of the Royal Society of Canada. Grateful to my mentors, colleagues & students whose support and collaboration made this possible, and I look forward to working with such an inspiring community.
genomicsandpolicy.bsky.social
At the H2R conference at @ox.ac.uk, Terese Knoppers spoke about the barriers and bridges towards making healthcare data more accessible for childhood cancer survivors and families. The talk drew on ACCESS & CGP’s research project: Pan-Canadian Approaches to Data Sharing & Access.

🔗 bit.ly/47kscHi
genomicsandpolicy.bsky.social
💡McGill iGEM's annual #biotech conference On the Verge brings together students, academics, and industry leaders to explore real-world applications of synthetic biology. This year’s theme focuses on #bioethics, systemic challenges, career pathways, and the future of #SynBio innovation.
genomicsandpolicy.bsky.social
📣 Upcoming conference on AI & biotech happening this week-end in Montreal!

CGP Academic Associate Maelenn Corfmat will be speaking on the “Bioethics in Action” panel at On the Verge, McGill iGEM’s annual biotech conference!

🔗 For more info & to register: igemontheverge.wixsite.com/home
genomicsandpolicy.bsky.social
About our speaker:

Prof. Calvin Ho is an Associate Professor with the Faculty of Law at Monash University in Melbourne (Australia), Research Fellow of the Centre for Medical Ethics at the University of Hong Kong, and Fellow of PHG Foundation at the University of Cambridge (UK).
genomicsandpolicy.bsky.social
⏰ Just over 2 weeks away until the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! We are grateful to have Prof. Calvin Ho as this year’s speaker. Join us for an insightful talk on Polygenic Risk Scores & the Human Right to Science.

🧵More details: bit.ly/472cW1z
genomicsandpolicy.bsky.social
📘 Guide (English): lnkd.in/ecRmQqrM
📘 Guide (French): lnkd.in/eDJ9AQra

🔗 Both guides are also available on our website:
lnkd.in/exJTMtSr

#IntersexHealth #HealthEquity #InclusiveCare #AffirmativePractice
Towards Affirmative Intersex Health Communication in Canada: An Introductory Guide for Healthcare Providers
genomicsandpolicy.bsky.social
🩺 The Guide for Healthcare Providers on Affirmative Intersex Health Communication—now available in English & French. A Canadian-first resource to support inclusive, affirming care.

Link to guides below 🧵
genomicsandpolicy.bsky.social
🚨Two NEW papers from our team!

Ecological Genome Project
🔗 doi.org/10.1111/bioe...
A bold vision for ecogenomics + One Health to guide ethical, interdisciplinary genomics.

Data Sharing in Genomics
🔗 doi.org/10.1186/s402...
New GA4GH lexicon to improve cross-border collaboration & data governance.
Reposted by Centre of Genomics and Policy
mhzawati.bsky.social
Two new articles have been published from our team:
“The evolution of health data ecosystems: An international survey” in AJHG: doi.org/10.1016/j.aj... & “Harnessing the promises of cell therapy, gene therapy, and regenerative medicine in Québec, Canada” in Front. Med.: doi.org/10.3389/fmed...
genomicsandpolicy.bsky.social
We are elated to host the 3rd Bartha Maria Knoppers Annual Lecture on Sept 5th! Our guest speaker Calvin Ho, Associate Professor (Faculty of Law, Monash University), will present on “Polygenic Risk Scores and the Human Right to Science.”

RSVP by Aug 28: bit.ly/4kPaLBC
genomicsandpolicy.bsky.social
While #GenerativeAI helps make #GenomicResearch more productive and accessible, Academic Associate Maelenn Corfmat explores two key concerns in her HaploTalks presentation at the @mcgill.ca Victor Phillip Dahdaleh Institute of Genomic Medicine: #Privacy and #HumanAgency 🧬🤖💬
genomicsandpolicy.bsky.social
Academic Associate Terese Knoppers shared the Centre’s latest research on improving intersex health communication with intersex adults in Canada at the Intersex Insights conference in Dublin, Ireland.

🔗 To learn more about the research: www.frontiersin.org/journals/pub...
genomicsandpolicy.bsky.social
This week concludes the Global Health Law summer course led by CGP Director Yann Joly and Academic Associate Diya Uberoi, offered as part of the @mcgill.ca Summer Institute in Global Health Program. 🌎 🩺 ⚖️ Thank you to all who participated!
CGP Academic Associate Diya Uberoi - Global Health Law Course