Ian Stedman
@istedman.bsky.social
Assoc. Professor, York University’s School of Public Policy and Administration. University Research Chair in Law, Policy and Personalized Healthcare.
A couple of Dr Trish Caetano’s slides from today’s presentation at the Garrod Symposium at UBC. Takeaway: drugs for rare diseases can be expensive and budgets are thin [we all know this narrative]. So what do we need to do?
May 10, 2025 at 5:16 PM
A couple of Dr Trish Caetano’s slides from today’s presentation at the Garrod Symposium at UBC. Takeaway: drugs for rare diseases can be expensive and budgets are thin [we all know this narrative]. So what do we need to do?
Excited to be in the room as we celebrate @genomecanada.bsky.social’s 25th anniversary today. Of course all six regional Genome Centres also turn 25. And I’m told a big announcement is coming!!
February 6, 2025 at 2:39 PM
Excited to be in the room as we celebrate @genomecanada.bsky.social’s 25th anniversary today. Of course all six regional Genome Centres also turn 25. And I’m told a big announcement is coming!!
“…announces the launch of a strategic review of government operations and programs with a focus on expanding the use of Al in the public service to improve both efficiency and service delivery. The review will be led by the Al Secretariat…results… Budget 2025.” p176
budget.canada.ca/update-misea...
budget.canada.ca/update-misea...
December 17, 2024 at 2:56 AM
“…announces the launch of a strategic review of government operations and programs with a focus on expanding the use of Al in the public service to improve both efficiency and service delivery. The review will be led by the Al Secretariat…results… Budget 2025.” p176
budget.canada.ca/update-misea...
budget.canada.ca/update-misea...
From a presentation about the Quebec Rare Disease National Plan.
See their website: rare.quebec
See their website: rare.quebec
November 26, 2024 at 8:04 PM
From a presentation about the Quebec Rare Disease National Plan.
See their website: rare.quebec
See their website: rare.quebec
Happening now at #CORD conference, a powerful panel including some incredible patient advocates! #rarediseases
Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada)
Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada)
November 26, 2024 at 6:31 PM
Happening now at #CORD conference, a powerful panel including some incredible patient advocates! #rarediseases
Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada)
Biba Tinga (Sickle Cell Assoc of Canada), Deanna Badiuk (Acromegaly Can/BC) & Susi Vander Wyk (CureSMA Canada)
Followed by Trish Caetano from Canada’s Drug Agency and Mélanie Caron from INESSS (Institute national d’excellence en santé et en services sociaux - Quebec’s agency for Health Technology Assessment).
#raredisease
#raredisease
November 26, 2024 at 3:26 PM
Followed by Trish Caetano from Canada’s Drug Agency and Mélanie Caron from INESSS (Institute national d’excellence en santé et en services sociaux - Quebec’s agency for Health Technology Assessment).
#raredisease
#raredisease
The Canadian Organization for Rare Disorders conference is underway in Montreal, with Health Canada’s Daniel MacDonald talking about the National Strategy.
“95%, 700 days, $321K”
“95%, 700 days, $321K”
November 26, 2024 at 2:54 PM
The Canadian Organization for Rare Disorders conference is underway in Montreal, with Health Canada’s Daniel MacDonald talking about the National Strategy.
“95%, 700 days, $321K”
“95%, 700 days, $321K”
It happened today.
November 21, 2024 at 8:48 PM
It happened today.
The unstoppable Dr. Catherine Régis bringing us home as we wrap up the day at Queen’s Law. The busy whiteboard is a reflection of a great day of dialogue comparing Brazilian and Canadian approaches to Health AI!
November 18, 2024 at 8:53 PM
The unstoppable Dr. Catherine Régis bringing us home as we wrap up the day at Queen’s Law. The busy whiteboard is a reflection of a great day of dialogue comparing Brazilian and Canadian approaches to Health AI!
SMU Dedman School of Law Professor @nathancortez.bsky.social walks U.S. carefully through the U.S.’ approach to regulation of medical devices w\ AI.
November 18, 2024 at 6:11 PM
SMU Dedman School of Law Professor @nathancortez.bsky.social walks U.S. carefully through the U.S.’ approach to regulation of medical devices w\ AI.
Queen’s Law Dean (and Canada’s leading health law scholar) Colleen Flood, unpacks some of what she sees as being the real glaring problems in Health Canada’s proposed approach to regulating Health AI. Hopefully HC’s consultation report is released soon!
November 18, 2024 at 5:40 PM
Queen’s Law Dean (and Canada’s leading health law scholar) Colleen Flood, unpacks some of what she sees as being the real glaring problems in Health Canada’s proposed approach to regulating Health AI. Hopefully HC’s consultation report is released soon!
Dr. Anna Goldenberg, co-lead of AI at SickKids is now leading the discussion at our Queen’s Law workshop comparing Canada’s and Brazil’s approaches to regulating healthcare AI!
November 18, 2024 at 4:17 PM
Dr. Anna Goldenberg, co-lead of AI at SickKids is now leading the discussion at our Queen’s Law workshop comparing Canada’s and Brazil’s approaches to regulating healthcare AI!
Learning now about Brazil’s digital health infrastructure and regulation of health AI. Thanks to Dr. Ana Estrella Haddad, who is Brazil’s National Secretary on Digital Health, Ministry of Health, for such an enlightening presentation!
November 18, 2024 at 3:47 PM
Learning now about Brazil’s digital health infrastructure and regulation of health AI. Thanks to Dr. Ana Estrella Haddad, who is Brazil’s National Secretary on Digital Health, Ministry of Health, for such an enlightening presentation!
At Queen’s Law for the day, connecting with colleagues from across Canada and Brazil to discuss the regulation of healthcare AI. The brilliant @teresascassa.bsky.social is getting us started with an overview of Canada’s broader AI regulation efforts!
November 18, 2024 at 2:04 PM
At Queen’s Law for the day, connecting with colleagues from across Canada and Brazil to discuss the regulation of healthcare AI. The brilliant @teresascassa.bsky.social is getting us started with an overview of Canada’s broader AI regulation efforts!
Very cool to hear @cbcwhitecoat play our episode again yesterday. Those listening will have heard @NightShiftMD mention that an update episode is coming soon. There's lots to talk about in the rare disease space, so please do tune in for the update!
(I will post when it is up)
(I will post when it is up)
June 18, 2025 at 4:13 PM
Very cool to hear @cbcwhitecoat play our episode again yesterday. Those listening will have heard @NightShiftMD mention that an update episode is coming soon. There's lots to talk about in the rare disease space, so please do tune in for the update!
(I will post when it is up)
(I will post when it is up)
At the Federal Courts tonight for the Inaugural Justice Roger T. Hughes Memorial Lecture in Intellectual Property Law. Professor Pina D’Agostino getting things underway!
November 14, 2024 at 9:42 PM
At the Federal Courts tonight for the Inaugural Justice Roger T. Hughes Memorial Lecture in Intellectual Property Law. Professor Pina D’Agostino getting things underway!
New website - check it out!
June 18, 2025 at 4:13 PM
New website - check it out!
PaCER Training program for parents of children with rare disease. Become trained as a parent research partner through the @UCalgary virtual Patient and Community Engagement (PaCER) training certificate program starting Jan 2025!
About PaCER program:
About PaCER program:
June 18, 2025 at 4:13 PM
PaCER Training program for parents of children with rare disease. Become trained as a parent research partner through the @UCalgary virtual Patient and Community Engagement (PaCER) training certificate program starting Jan 2025!
About PaCER program:
About PaCER program:
I think I found where the big outdoor slide is supposed to go at @YorkUniversity Markham campus. Can you spot it? You may have to zoom in.
June 18, 2025 at 4:10 PM
I think I found where the big outdoor slide is supposed to go at @YorkUniversity Markham campus. Can you spot it? You may have to zoom in.
Hey @YorkULAPS students, there are still some spots left in Prof @MacSweeneyG's one-of-a-kind Fall seminar on Public Service and Political ethics! If you've read the news lately, you'll know this is a hot topic course & taking it could be your competitive adv'tge on the job mkt!
June 18, 2025 at 4:09 PM
Hey @YorkULAPS students, there are still some spots left in Prof @MacSweeneyG's one-of-a-kind Fall seminar on Public Service and Political ethics! If you've read the news lately, you'll know this is a hot topic course & taking it could be your competitive adv'tge on the job mkt!
There’s an ant inside my iMac (3.3 GHZ, i5, 2020)
Is this a thing, @Apple?
Is this a thing, @Apple?
June 18, 2025 at 4:08 PM
There’s an ant inside my iMac (3.3 GHZ, i5, 2020)
Is this a thing, @Apple?
Is this a thing, @Apple?
Link to budget release:
June 18, 2025 at 4:07 PM
Link to budget release:
Minister @VictorFedeli addresses the capacity crowd and has some fun taking jabs at the rowdy (chatty) left side of the room!
June 18, 2025 at 4:06 PM
Minister @VictorFedeli addresses the capacity crowd and has some fun taking jabs at the rowdy (chatty) left side of the room!