PZ
@itsmepz.bsky.social
Music 🎶 Film 🎞️
Hot Chips 🍟 Happiest by the sea 🌊
Forever exhausted
#pwME
Living small with ME on unceded Whadjuk Noongar country ("Perth, Australia")
Hot Chips 🍟 Happiest by the sea 🌊
Forever exhausted
#pwME
Living small with ME on unceded Whadjuk Noongar country ("Perth, Australia")
To think how long people have treated EBV as just a rite of passage when it's been pretty silently wreaking chaos.
Implicated in multiple sclerosis, now lupus, and for a long time linked to triggering #MEcfs
Implicated in multiple sclerosis, now lupus, and for a long time linked to triggering #MEcfs
November 13, 2025 at 12:22 AM
To think how long people have treated EBV as just a rite of passage when it's been pretty silently wreaking chaos.
Implicated in multiple sclerosis, now lupus, and for a long time linked to triggering #MEcfs
Implicated in multiple sclerosis, now lupus, and for a long time linked to triggering #MEcfs
Yep. The "useless eaters" rhetoric directed at disabled people has also ramped up heavily. It's particularly awful in the UK at the moment, as they discuss disability employment and reducing access to social security.
November 7, 2025 at 7:04 AM
Yep. The "useless eaters" rhetoric directed at disabled people has also ramped up heavily. It's particularly awful in the UK at the moment, as they discuss disability employment and reducing access to social security.
I'm wondering why Long Covid Kids are encouraging this?
You did a very good thing reaching out to her.
You did a very good thing reaching out to her.
November 3, 2025 at 2:49 PM
I'm wondering why Long Covid Kids are encouraging this?
You did a very good thing reaching out to her.
You did a very good thing reaching out to her.
Reposted by PZ
People w/ severe ME are well practiced in the discipline of surviving for the sake of survival, of caring for bodies that may never “get better.” In a world of climate collapse & ecocide where *most* ecosystems are becoming sick & disabled, it’s a discipline we should all be practicing.
October 31, 2025 at 12:58 AM
People w/ severe ME are well practiced in the discipline of surviving for the sake of survival, of caring for bodies that may never “get better.” In a world of climate collapse & ecocide where *most* ecosystems are becoming sick & disabled, it’s a discipline we should all be practicing.
It's been some time since I've read it so i'll have to go back and have a look! It is my favourite of the criteria though 😅
October 30, 2025 at 6:05 AM
It's been some time since I've read it so i'll have to go back and have a look! It is my favourite of the criteria though 😅
*PENE - post-exertional neuroimmune exhaustion is described in the Myalgic Encephalomyelitis International Clinical Criteria (2011)
October 29, 2025 at 10:50 PM
*PENE - post-exertional neuroimmune exhaustion is described in the Myalgic Encephalomyelitis International Clinical Criteria (2011)
...pathogens other than C19 are still with us, and therefore still triggering onset of this post-acute infectious illnesses).
#MyalgicEncephalomyelitis
#MECFS
#MillionsMissing
#MillionsMoreMissing
#pwME
#MyalgicEncephalomyelitis
#MECFS
#MillionsMissing
#MillionsMoreMissing
#pwME
October 29, 2025 at 10:46 PM
...pathogens other than C19 are still with us, and therefore still triggering onset of this post-acute infectious illnesses).
#MyalgicEncephalomyelitis
#MECFS
#MillionsMissing
#MillionsMoreMissing
#pwME
#MyalgicEncephalomyelitis
#MECFS
#MillionsMissing
#MillionsMoreMissing
#pwME
Oh - PEM is the "hallmark" of Long Covid now?
October 29, 2025 at 10:33 PM
Oh - PEM is the "hallmark" of Long Covid now?
I won't forget first hearing Let Me Ride on a mixtape in high school...
showing my age, but it's The Chronic for me.
showing my age, but it's The Chronic for me.
October 27, 2025 at 11:36 PM
I won't forget first hearing Let Me Ride on a mixtape in high school...
showing my age, but it's The Chronic for me.
showing my age, but it's The Chronic for me.
And relieved to find others that just get it!
October 27, 2025 at 9:58 AM
And relieved to find others that just get it!
I wish they could understand that at its most basic all exertion is energy expenditure and this has consequences for our physical state/symptoms.
October 27, 2025 at 9:57 AM
I wish they could understand that at its most basic all exertion is energy expenditure and this has consequences for our physical state/symptoms.
What do you mean the harder you think, the less able you are to walk (wobble) around the house?
October 27, 2025 at 2:47 AM
What do you mean the harder you think, the less able you are to walk (wobble) around the house?
October 25, 2025 at 12:27 AM
Love, love, love the images you share Niko. ✨️💛
Thank you for letting us in.
Thank you for letting us in.
October 21, 2025 at 10:10 AM
Love, love, love the images you share Niko. ✨️💛
Thank you for letting us in.
Thank you for letting us in.
Reposted by PZ
People with ME/CFS are the antithesis of quitters. To keep showing up and choosing life and trying to find ways to be more alive in the face of immense physical and societal challenges is courageous, disciplined, and heroic.
October 19, 2025 at 12:09 AM
People with ME/CFS are the antithesis of quitters. To keep showing up and choosing life and trying to find ways to be more alive in the face of immense physical and societal challenges is courageous, disciplined, and heroic.