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Julia Frost @jufrost.bsky.social · 13d

Thanks to @oliwilliams.bsky.social @tomshakespeare.bsky.social and everyone else who contributed to this weeks qualtiative symposium and for giving us much to think about arc-swp.nihr.ac.uk/news/reflect...

Reflections on the Qualitative Research Symposium 2025: Innovation and Creativity for Impact - PenARC

On 25th September 2025, the University of Exeter’s Qualitative Research Reference Group (QRRG) hosted its third annual Qualitative Research Symposium, supported by PenARC. This year’s theme, Innovatio...

arc-swp.nihr.ac.uk

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Reposted by Julia Frost

Exeter Collaboration for Academic Primary Care @apexcomms.bsky.social · Jul 9

Published in the British journal of cardiac nursing by Assoc. Prof. Julia Frost et al: Understanding the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals who support them tinyurl.com/2efewbcd

Understanding the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals who support them: Systematic rev...

The limited capacity of HCPs to support HFpEF patients and caregivers to develop effective self-management understanding and practice can lead to disempowerment and loss of control. Tailored intervent...

tinyurl.com

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Julia Frost @jufrost.bsky.social · Jun 4

Great to see our collaborative work on widening patient engagement for clinical drug trials and trial design shared with patients with IPF www.actionpf.org/news/the-pow... @cjpope.bsky.social @actionpfsteve.bsky.social

The power of patient involvement in research – Action for Pulmonary Fibrosis

The power of patient involvement in research: How APF is amplifying the voices of people affected by pulmonary fibrosis and ways you can get involved.

www.actionpf.org

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Julia Frost @jufrost.bsky.social · Apr 17

Could patient insight reports that inform clinical drug trial development better represent the needs of patients with IPF? Yes! doi.org/10.1111/hex....

Widening Patient Engagement for Rare Disease Drug Trials: The Perspectives of Patients With Idiopathic Pulmonary Fibrosis on Participating in Clinical Drug Trials and Drug Trial Design

Background Research about patient engagement for people with rare diseases has identified how the experiences of some members of the public are overlooked in relation to clinical trial design and tr...

doi.org

Reposted by Julia Frost

Vicki Goodwin MBE @vickigphysio.bsky.social · Feb 13

Great news that our CHART trial is now open to recruitment with our fab team @drandyclegg.bsky.social @jufrost.bsky.social @amandafarrin.bsky.social @janemasoli.bsky.social @emmavardy2.bsky.social and many others

PenARC (NIHR ARC South West Peninsula) @penarc.bsky.social · Feb 13

PenARC & @arc-yharc.bsky.social researchers are working in partnership with older people with #heartfailure and #frailty to increase their independence.

> Learn more: tinyurl.com/4xt8f7en

@nihrarcs.bsky.social @exeter.ac.uk @universityofleeds.bsky.social @livunipress.bsky.social @nihr.bsky.social

NIHR APPLIED RESEARCH COLLABORATION SOUTH WEST PENINSULA.
Two older men smile as they walk through a park.

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Reposted by Julia Frost

Vicki Goodwin MBE @vickigphysio.bsky.social · Dec 4

Come and do a Dunhill Medical Trust #PhD with me and @jufrost.bsky.social looking at #CGA for people with #heartfailure and #frailty as part of the @nihr.bsky.social funded CHART trial and #processevaluation www.exeter.ac.uk/study/fundin...

Award details | Funding and scholarships for students | University of Exeter

www.exeter.ac.uk

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Julia Frost @jufrost.bsky.social · Nov 23

Fantastic presentation of an amazing body of work

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Julia Frost @jufrost.bsky.social · Sep 13

Great to see pharma acknowledging that patients can make such a valuable contribution to making clinical trials more accessible 1.reutersevents.com/LP=37335

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Reposted by Julia Frost

Prof. Virginia Braun (she/her they/them) @ginnybraun.bsky.social · Jul 28

How do you solve a problem like COREQ? A critique of Consolidated Criteria for Reporting Qualitative Research - ScienceDirect

New out (& maybe still uncorrected proofs) from @vicclarke.bsky.social and me.

Please share

www.sciencedirect.com/science/arti...

How do you solve a problem like COREQ? A critique of Consolidated Criteria for Reporting Qualitative Research

In this paper, we argue that COREQ – the consolidated criteria for reporting qualitative research (Tong et al., 2007) – is a problem, and a problem in…

www.sciencedirect.com

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