KH
@khvmd.bsky.social
pwME since 2018
Veterinarian
Pittsburgh, PA USA
Veterinarian
Pittsburgh, PA USA
Particularly exercised? Is that an autocorrect for exasperated?
November 25, 2025 at 6:33 AM
Particularly exercised? Is that an autocorrect for exasperated?
Please tell me somebody is suing the EPA to stop this!
November 25, 2025 at 6:26 AM
Please tell me somebody is suing the EPA to stop this!
Still took me 4 1/2 years to get a diagnosis!
November 24, 2025 at 5:17 PM
Still took me 4 1/2 years to get a diagnosis!
Plus my insurance allows for self referral to specialists. That’s not true for everyone unfortunately, but I have been able to find helpful Drs by searching all over the country. I live in PA but have to FL for an ME literate Dr. luckily I can manage that.
November 24, 2025 at 5:16 PM
Plus my insurance allows for self referral to specialists. That’s not true for everyone unfortunately, but I have been able to find helpful Drs by searching all over the country. I live in PA but have to FL for an ME literate Dr. luckily I can manage that.
It’s a little better in the US. There a couple ME centers and the Drs here are not locked into national protocols. You might be able to convince your GP Dr by giving them research articles to read. My was willing to try LDN based on info from me. They don’t know much but some are open minded. Some.
November 24, 2025 at 5:12 PM
It’s a little better in the US. There a couple ME centers and the Drs here are not locked into national protocols. You might be able to convince your GP Dr by giving them research articles to read. My was willing to try LDN based on info from me. They don’t know much but some are open minded. Some.
“They’re failing to understand the central mechanism that governs your entire existence.” Bingo! Whether I’m crashed or trying to avoid a crash, my whole life, such as it is, revolves around PEM. That it prevents me from gaining function makes it the one ME symptom I just can’t overcome.
November 24, 2025 at 12:45 AM
“They’re failing to understand the central mechanism that governs your entire existence.” Bingo! Whether I’m crashed or trying to avoid a crash, my whole life, such as it is, revolves around PEM. That it prevents me from gaining function makes it the one ME symptom I just can’t overcome.
Frustrations all around. I wasn’t singling out Dr Wust’s survey. I’ve never seen any actually capture the lived experience of PEM. How devastating/life altering it is. How it ruins your life even when it’s not happening due to the restrictions required to avoid it. How you have to carry on anyway.
November 23, 2025 at 11:13 PM
Frustrations all around. I wasn’t singling out Dr Wust’s survey. I’ve never seen any actually capture the lived experience of PEM. How devastating/life altering it is. How it ruins your life even when it’s not happening due to the restrictions required to avoid it. How you have to carry on anyway.
To the moon! How can both be in the same category? Same for standing 5 min vs the next option of 30 min? Increments of 1 minute are more applicable for me. Every day, every symptom, every crash trigger is so different I can’t average it out. Sorry, it’s just so frustrating.
November 23, 2025 at 6:21 AM
To the moon! How can both be in the same category? Same for standing 5 min vs the next option of 30 min? Increments of 1 minute are more applicable for me. Every day, every symptom, every crash trigger is so different I can’t average it out. Sorry, it’s just so frustrating.
Done. Is it just me or do all of these questionnaires just seem to miss the point? I live a world of such extremes. The peril from the most innocuous task can be severe, other days I accomplish a lot. It’s so hard to answer. Also, the difference between 1 football field and 10 seems like from here
November 23, 2025 at 6:21 AM
Done. Is it just me or do all of these questionnaires just seem to miss the point? I live a world of such extremes. The peril from the most innocuous task can be severe, other days I accomplish a lot. It’s so hard to answer. Also, the difference between 1 football field and 10 seems like from here
The beatings will continue until morale improves.
November 21, 2025 at 6:32 AM
The beatings will continue until morale improves.
I’m crying. I had an orange tabby named Troy Pawamalu. He was only 10 when I lost him to liver failure. I hope your little Troy recovers and a long happy life in your care. 💕
November 21, 2025 at 6:31 AM
I’m crying. I had an orange tabby named Troy Pawamalu. He was only 10 when I lost him to liver failure. I hope your little Troy recovers and a long happy life in your care. 💕
I’ll go if Ronald McDonald gives the eulogy.
November 21, 2025 at 6:15 AM
I’ll go if Ronald McDonald gives the eulogy.
That smug smile infuriates me!
November 21, 2025 at 5:59 AM
That smug smile infuriates me!
I think when he insults a reporter because he doesn’t like their question, the next reporter called in should ask the exact same question and so on until he either answers the question or storms out of the room.
November 19, 2025 at 4:19 AM
I think when he insults a reporter because he doesn’t like their question, the next reporter called in should ask the exact same question and so on until he either answers the question or storms out of the room.
“So far” is doing a lot of heavy lifting in that sentence.
November 17, 2025 at 3:31 PM
“So far” is doing a lot of heavy lifting in that sentence.
Does this mean it’s now an open case again and they “can’t” release the files??
November 15, 2025 at 12:22 PM
Does this mean it’s now an open case again and they “can’t” release the files??
I don’t understand why it it isn’t possible to isolate the immunoglobulins from the serum that are causing the mitochondrial damage?
November 13, 2025 at 8:22 AM
I don’t understand why it it isn’t possible to isolate the immunoglobulins from the serum that are causing the mitochondrial damage?
Hopefully the decorator hung all the gold crap up with command strips.
November 7, 2025 at 4:33 AM
Hopefully the decorator hung all the gold crap up with command strips.
I honestly don’t even envy that. I don’t see a warm inviting home, just a giant responsibility. A comfy cottage on the 50,000 acres sure sounds nice though.
November 2, 2025 at 8:28 PM
I honestly don’t even envy that. I don’t see a warm inviting home, just a giant responsibility. A comfy cottage on the 50,000 acres sure sounds nice though.
Don’t forget his efforts to reshape the lower court judiciary and prevent Obama from filling a Supreme Court seat. It’s all coming to fruition now!
November 2, 2025 at 5:19 PM
Don’t forget his efforts to reshape the lower court judiciary and prevent Obama from filling a Supreme Court seat. It’s all coming to fruition now!