Lucy McKay
@loomoomahoo.bsky.social
CEO of Medics for Rare Disease. I want to see a world in which there is equitable healthcare for everyone. Trying to play my part in making this happen. Personal account. Views are my own. Trying not to burn out before #RareDiseaseDay
Last week a UK Supreme Court Judge said that sex is binary & "the biological characteristics that make an individual a man or a woman...are assumed to be self-explanatory and to require no further explanation".
But what about Lexi who is intersex? Listen now rdpodcast4medics.buzzsprout.com
But what about Lexi who is intersex? Listen now rdpodcast4medics.buzzsprout.com
April 25, 2025 at 10:00 AM
Last week a UK Supreme Court Judge said that sex is binary & "the biological characteristics that make an individual a man or a woman...are assumed to be self-explanatory and to require no further explanation".
But what about Lexi who is intersex? Listen now rdpodcast4medics.buzzsprout.com
But what about Lexi who is intersex? Listen now rdpodcast4medics.buzzsprout.com
when it's your first French lesson after Rare Disease Day and you have to explain what you've been up to...
March 5, 2025 at 8:43 PM
when it's your first French lesson after Rare Disease Day and you have to explain what you've been up to...
It's #RareDiseaseDay! 350 million+ people live worldwide with a rare condition. The majority start in childhood and families face terrible challenges due to ignorance and stigma. Break this pattern, #ShowYourStripes today in support of the Rare Community @medicsforrare.bsky.social
February 28, 2025 at 11:46 AM
It's #RareDiseaseDay! 350 million+ people live worldwide with a rare condition. The majority start in childhood and families face terrible challenges due to ignorance and stigma. Break this pattern, #ShowYourStripes today in support of the Rare Community @medicsforrare.bsky.social
Uncertainty - the cardinal symptom of #RareDisease #RareDisease101 by @medicsforrare.bsky.social #RareSky
February 25, 2025 at 7:44 PM
Uncertainty - the cardinal symptom of #RareDisease #RareDisease101 by @medicsforrare.bsky.social #RareSky
An estimated 350 million people live with a rare condition worldwide. Regardless of where they live or which condition life can be very difficult due to a lack of awareness in society & healthcare. Break down ignorance & stigma - #ShowYourStripes this #RareDiseaseDay on Fri 28 Feb
February 21, 2025 at 11:50 AM
An estimated 350 million people live with a rare condition worldwide. Regardless of where they live or which condition life can be very difficult due to a lack of awareness in society & healthcare. Break down ignorance & stigma - #ShowYourStripes this #RareDiseaseDay on Fri 28 Feb
Tick Tock Tick Tock. Only 10 days until #RareDiseaseDay so get your socks ready to #ShowYourStripes Show support of 350 million people living worldwide with a rare condition on 28th Feb @medicsforrare.bsky.social
February 18, 2025 at 3:57 PM
Tick Tock Tick Tock. Only 10 days until #RareDiseaseDay so get your socks ready to #ShowYourStripes Show support of 350 million people living worldwide with a rare condition on 28th Feb @medicsforrare.bsky.social
It's busy at work so as a reprieve i have been going through the Unstable Unicorn deck and assigning everyone a unicorn alter-ego. I think I am Wrecking Ball Unicorn. @jojomcp.bsky.social ?
www.unicornsdatabase.com
www.unicornsdatabase.com
February 13, 2025 at 3:25 PM
It's busy at work so as a reprieve i have been going through the Unstable Unicorn deck and assigning everyone a unicorn alter-ego. I think I am Wrecking Ball Unicorn. @jojomcp.bsky.social ?
www.unicornsdatabase.com
www.unicornsdatabase.com
I am packing up a parcel for Mr Wes Streeting MP to ask him, as Secretary of State for Health and Social Care, to support the rare community and join the #ShowYourStripes campaign this #RareDiseaseDay. Is this advocacy or lobbying?
www.civilsociety.co.uk/news/sector-...
www.civilsociety.co.uk/news/sector-...
February 12, 2025 at 4:07 PM
I am packing up a parcel for Mr Wes Streeting MP to ask him, as Secretary of State for Health and Social Care, to support the rare community and join the #ShowYourStripes campaign this #RareDiseaseDay. Is this advocacy or lobbying?
www.civilsociety.co.uk/news/sector-...
www.civilsociety.co.uk/news/sector-...
I am enjoying reading a book about maritime escapades in 1700s. I drew a map to track the Wager on my remarkable after looking at my daughter's atlas (anything to avoid googling things). I couldn't work out the Cape Horn route right tho or wager island location avidgrann.bsky.social Score out of 10?
February 3, 2025 at 9:47 AM
I am enjoying reading a book about maritime escapades in 1700s. I drew a map to track the Wager on my remarkable after looking at my daughter's atlas (anything to avoid googling things). I couldn't work out the Cape Horn route right tho or wager island location avidgrann.bsky.social Score out of 10?
OK so I am 2 days late but I can't waste this beautiful image!
Don't wait until 28th Feb to decide how you're going to mark #RareDiseaseDay. Head to @medicsforrare.bsky.social website and downloading lots of beautiful digital assets for your socials & emails. Order stripey socks & #ShowYourStripes
Don't wait until 28th Feb to decide how you're going to mark #RareDiseaseDay. Head to @medicsforrare.bsky.social website and downloading lots of beautiful digital assets for your socials & emails. Order stripey socks & #ShowYourStripes
January 30, 2025 at 11:38 AM
OK so I am 2 days late but I can't waste this beautiful image!
Don't wait until 28th Feb to decide how you're going to mark #RareDiseaseDay. Head to @medicsforrare.bsky.social website and downloading lots of beautiful digital assets for your socials & emails. Order stripey socks & #ShowYourStripes
Don't wait until 28th Feb to decide how you're going to mark #RareDiseaseDay. Head to @medicsforrare.bsky.social website and downloading lots of beautiful digital assets for your socials & emails. Order stripey socks & #ShowYourStripes
It's beginning to look at lot like...February. And February means #RareDiseaseDay which means @medicsforrare.bsky.social will be sending out lots of zebra stripe socks to healthcare professionals. That is once i have unpacked all these boxes #ShowYourStripes #RareSky
January 29, 2025 at 5:52 PM
It's beginning to look at lot like...February. And February means #RareDiseaseDay which means @medicsforrare.bsky.social will be sending out lots of zebra stripe socks to healthcare professionals. That is once i have unpacked all these boxes #ShowYourStripes #RareSky
and you have a house rabbit! can we be friends? 😂
January 29, 2025 at 4:50 PM
and you have a house rabbit! can we be friends? 😂