Lucy McKay
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loomoomahoo.bsky.social
Lucy McKay
@loomoomahoo.bsky.social
CEO of Medics for Rare Disease. I want to see a world in which there is equitable healthcare for everyone. Trying to play my part in making this happen. Personal account. Views are my own. Trying not to burn out before #RareDiseaseDay
Last week a UK Supreme Court Judge said that sex is binary & "the biological characteristics that make an individual a man or a woman...are assumed to be self-explanatory and to require no further explanation".

But what about Lexi who is intersex? Listen now rdpodcast4medics.buzzsprout.com
April 25, 2025 at 10:00 AM
when it's your first French lesson after Rare Disease Day and you have to explain what you've been up to...
March 5, 2025 at 8:43 PM
It's #RareDiseaseDay! 350 million+ people live worldwide with a rare condition. The majority start in childhood and families face terrible challenges due to ignorance and stigma. Break this pattern, #ShowYourStripes today in support of the Rare Community @medicsforrare.bsky.social
February 28, 2025 at 11:46 AM
Uncertainty - the cardinal symptom of #RareDisease #RareDisease101 by @medicsforrare.bsky.social #RareSky
February 25, 2025 at 7:44 PM
An estimated 350 million people live with a rare condition worldwide. Regardless of where they live or which condition life can be very difficult due to a lack of awareness in society & healthcare. Break down ignorance & stigma - #ShowYourStripes this #RareDiseaseDay on Fri 28 Feb
February 21, 2025 at 11:50 AM
Tick Tock Tick Tock. Only 10 days until #RareDiseaseDay so get your socks ready to #ShowYourStripes Show support of 350 million people living worldwide with a rare condition on 28th Feb @medicsforrare.bsky.social
February 18, 2025 at 3:57 PM
It's busy at work so as a reprieve i have been going through the Unstable Unicorn deck and assigning everyone a unicorn alter-ego. I think I am Wrecking Ball Unicorn. @jojomcp.bsky.social ?

www.unicornsdatabase.com
February 13, 2025 at 3:25 PM
I am packing up a parcel for Mr Wes Streeting MP to ask him, as Secretary of State for Health and Social Care, to support the rare community and join the #ShowYourStripes campaign this #RareDiseaseDay. Is this advocacy or lobbying?

www.civilsociety.co.uk/news/sector-...
February 12, 2025 at 4:07 PM
I am enjoying reading a book about maritime escapades in 1700s. I drew a map to track the Wager on my remarkable after looking at my daughter's atlas (anything to avoid googling things). I couldn't work out the Cape Horn route right tho or wager island location avidgrann.bsky.social Score out of 10?
February 3, 2025 at 9:47 AM
OK so I am 2 days late but I can't waste this beautiful image!

Don't wait until 28th Feb to decide how you're going to mark #RareDiseaseDay. Head to @medicsforrare.bsky.social website and downloading lots of beautiful digital assets for your socials & emails. Order stripey socks & #ShowYourStripes
January 30, 2025 at 11:38 AM
It's beginning to look at lot like...February. And February means #RareDiseaseDay which means @medicsforrare.bsky.social will be sending out lots of zebra stripe socks to healthcare professionals. That is once i have unpacked all these boxes #ShowYourStripes #RareSky
January 29, 2025 at 5:52 PM
and you have a house rabbit! can we be friends? 😂
January 29, 2025 at 4:50 PM
January 23, 2025 at 4:34 PM