rpgene.org/blogs/f/late...

I write a lot about Retinitis Pigmentosa to try and raise awareness for the disease that afflicts both of my children.
Please watch the PBS special that was done on our family at youtu.be/jbykP5ytPA8 , or visit our website for more information: www.rpgene.org.
#RP #Retinitispigmentosa #Blindness

The PBS segment about RP and our family premieres tonight on channel 42 WTVI PBS Charlotte. It will run several times over the next week. Here is a direct link to the special. Our website is www.rpgene.org

www.youtube.com/watch?v=jbyk...

I started a nonprofit to raise funds for medical research to try to find a cure for Retinitis Pigmentosa after both of my children were diagnosed with the disease this year. It causes blindness and I can’t stand by and do nothing while
my children go blind. Find out more at www.rpgene.org