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The McPin Foundation @mcpinfoundation.bsky.social · 22h

More details on the poster projects

Details of the CONNECT Study with diagrams about the Lived experience Advisory Panel network

Bottom right, an illustration of a procedure as part of the IMAT study

A graph showing mental health advisory groups by country

The McPin Foundation @mcpinfoundation.bsky.social · 22h

Lisa and John next to our poster. Great job Annie, 😀@awalsh9890.bsky.social, Vanessa is also with the team @vanessapinfold.bsky.social

Keep scrolling to find out more.

A man and a women either side of a poster

A women to the left hand side of a poster

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The McPin Foundation @mcpinfoundation.bsky.social · 22h

Today is World Mental Health Day and our team have been busy championing emerging practices within lived experience collaborations at the Mental Health Platform Research Summit in Edinburgh. Learn more about our 4 case studies/projects showcased in our poster 👇 #WMHD25

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The McPin Foundation @mcpinfoundation.bsky.social · 1d

It was great meeting in person and being part of the Mental Health Platform PPI&E steering group yesterday in Edinburgh. @nessbennett.bsky.social helped us with ripple mapping to think about the impact of our work. Thank you Susannah Strong for coordinating. Looking forward to today's Summit #WMHD25

Group of people standing around a table taking part of a ripple effects mapping activity, with paper being drawn on. Part of the Mental Health Platform PPI&E steering group

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The McPin Foundation @mcpinfoundation.bsky.social · 2d

Lived experience involvement was key to NEON, which looked at how much of an impact recovery narratives can have on people’s mental health journeys.

In today's blog, Programme Coordinator Stefan shares how the panel was involved & the difference it made 👉 tinyurl.com/synbystz

@institutemh.org.uk

I'd say 95% of the decisions about our narrative collection were made by the panel that had public and research team members

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The McPin Foundation @mcpinfoundation.bsky.social · 4d

What would be your priorities for mental health sleep research? 💤

@circadianmhnetw.bsky.social LEAP member Dylan shares their thoughts on the project's final body clock, sleep & mental health research priorities.

Find out what they are here 👉 tinyurl.com/45dwzjfr

@jameslindalliance.bsky.social

As someone whose sleep has been affected by neurodivergence, hormones, mental health challenges and pregnancy, it felt empowering to bring my intersectional voice to the project.

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Reposted by The McPin Foundation

McPin Young People's Network @mcpinypnetwork.bsky.social · 8d

For this year, the theme for Black History Month is Standing Firm in Power and Pride – so what better time to introduce the B.Life project, or simply put: ‘Black Life, period.’

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The McPin Foundation @mcpinfoundation.bsky.social · 10d

Hi Eva, we've sent out the recording to people who signed up for the webinar (even if they weren't able to attend). If you signed up you should have received it too. Thanks

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The McPin Foundation @mcpinfoundation.bsky.social · 17d

Are you a researcher who's interested in developing their PPI skills?

Our upcoming 3-session training course starts next month, find out more below! 👇

The McPin Foundation @mcpinfoundation.bsky.social · 25d

More funders & institutions want researchers to have patient & public involvement built into their studies/PhD programmes.

If you're a researcher in any field & want to incorporate PPI in your work in a more inclusive way, take a look at our course!

More info 👉 www.mcpin.org/work-with-us/training/

New PPI training dates - autumn 2025, don't miss out - book your place now

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The McPin Foundation @mcpinfoundation.bsky.social · 18d

Two days to go 🚨

Our free webinar 'New Treatments in Bipolar' is THIS Thursday 5.15-6.30pm.

If you have lived experience of Bipolar, or work/have an interest in the topic, come join us!

Get your tickets here 👉 tinyurl.com/5h6bd855

@bipolaruk.bsky.social @nihr.bsky.social @drtgergel.bsky.social

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

Head over to the McPin Young People’s Network account for tips and stories from young people for young people, and how getting involved in mental health research can be a good source of support too!

@mcpinypnetwork.bsky.social

Instagram: @mcpinypnetwork

#YMHD2025

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

And, in case you needed any more persuasion for involving and supporting young people in your research, here’s what a staff nurse & researcher had to say after her first experience of working with a Young Person’s Advisory Group.

Read her blog here 👉 tinyurl.com/mskbvx95

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

During the Agency project, the Young People’s Advisory Group created resources to help give young people more support & agency in clinical settings.

They created the ‘Agential Stance’ & gave advice for clinicians working with young people.

More info here 👉 tinyurl.com/yxcydfzc

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

When members of the McPin Young people’s Involvement team attended the International Association for Youth Mental Health conference in Copenhagen, they saw the importance of including young people in events like these.

Read all about it here 👉 tinyurl.com/pafakejf

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

YPAG member Lexie – who was on the same Youth Jury as Usman - suggests creating an environment that doesn’t feel the same as a school/work setting.

Read more about the event here 👉 tinyurl.com/35cerznr

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

Young People’s Advisory Group member Usman has 2 key pieces of advice .

“1st is making young people aware of what opportunities are available. It’s amazing to want to involve young people & get their thoughts, ideas & opinions but it’s important to know where & how to reach them.”

2nd in image:

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

It’s Youth Mental Health Day 2025 & the theme is #ShareSupport.

In the case of researchers working with young people, this could mean looking at different ways to support young people getting involved in mental health research.

Here are some quotes from the archives 🧵

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

The papers found these were all essential to PPI work with young people:

- Good communication

- An honest, authentic & transparent culture

- Building trust

- Interesting & engaging projects for advisory group members

 Find out what else came up here 👉 rdcu.be/ezDE1

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

17 papers shared how young people’s groups created safe spaces to ensure members were in an environment that was physically, emotionally, socially & mentally comfortable.

5 talked about creating space for youth leadership & minimising adult influence in the space

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

 18/26 papers found that getting involved in a research advisory group helped young people by:

- Develop new skills

- Create development spaces

- Provide an opportunity to work with people with similar interests

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The McPin Foundation @mcpinfoundation.bsky.social · 21d

If you involve young people in your research, our ‘Emerging practice in PPI’ paper has some interesting insights around Patient & Public Involvement work – including with young people.

 Find out more 👇

Link to paper👉 rdcu.be/ezDE1

#YMHD2025

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The McPin Foundation @mcpinfoundation.bsky.social · 22d

Do you know any young people 13-28 who might want to help shape mental health research?

@mcpinypnetwork.bsky.social is a great way to hear about opportunities to get directly involved & have a say in mental health research. 

Share the link here 👉 tinyurl.com/bdf5zcya

The McPin Foundation @mcpinfoundation.bsky.social · 22d

Do you have a research opportunity you’d like young people to be involved with?

Our Young People’s Network is made up of over 350 young people across the UK, including those with lived experience of mental health issues.

Find out more here 👉 tinyurl.com/3x7d5zfk

Public involvement in research - the McPin Foundation

We have extensive experience involving lived experience experts in mental health research and supporting others to do the same.

tinyurl.com

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The McPin Foundation @mcpinfoundation.bsky.social · 22d

We’ve been working with young people as co-researchers since 2020 & found it invaluable.

This resource shares our journey & model of co-research in hopes we can continue to evolve this way of working.

Read it here 👉 tinyurl.com/mwyafcu3 & tell us what you’d add in the comments!

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The McPin Foundation @mcpinfoundation.bsky.social · 22d

First up, our ‘Involving Young People in Research’ resource has 10 things you need to know about running a meeting with young people.

It goes from set-up & planning right through to logistics, as well as training & support.

Take a look here 👉 tinyurl.com/mskd5265

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