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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 1d

Thank you to all of our incredible presenters at the Navigating Adrenal Health 2025. What a wealth of information! From deeply personal stories to exciting scientific advances, it was truly an inspiring conference.

#NAH25 #AdrenalInsufficiency

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 2d

Thank you to all who joined us live for Navigating Adrenal Health 2025!

Session recordings are forthcoming, pending review. If you registered for the conference, you will receive a link to the recordings. Check your email, and like and follow us on social media for updates.

NADF.us/2025conference

Thank you to all who joined us for Navigating Adrenal Health 2025, Inaugural Virtual Conference for Patients and Caregivers October 3-4. NADF.us/2025conference

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 6d

Get prepared to join us for NADF's inaugural virtual conference for patients and caregivers, Navigating Adrenal Health. We have a wealth of information from a wide variety of incredible presenters, and we can't wait to share it with you!

#NAH25#AdrenalInsufficiency #AdrenalDiseaseAwareness

Navigating Adrenal Health 2025. Inaugural Virtual Conference for Patients and Caregivers, October 3-4. How to Prepare for an Online Conference. Make sure your viewing device(s) are charged and ready. Grab a notebook and pen to jot down the important stuff. Get cozy with comfortable seating. Remember to hydrate! Prep snacks and lunch ahead of time if you can. Sit back and enjoy! NADF. NADF.us/2025conference

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 6d

We're counting down to "Navigating Adrenal Health" and so excited for the presentations we have lined up for you. From disease-specific topics to general advances in adrenal disease treatment, there's a lot of information we can't wait to share.

#NAH25 #AdrenalInsufficiency

A partial list of Friday presenters for NADF's inaugural virtual conference Navigating Adrenal Health 2025.

A list of Saturday presenters for NADF's inaugural virtual conference Navigating Adrenal Health 2025.

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 7d

Last call for #NAH25! Join our free virtual conference for expert-led presentations, patient perspectives, and practical resources designed to empower and educate. The conference will feature leading voices in endocrinology, emergency medicine, patient advocacy, and more.
bit.ly/nah25

Register thru October 2nd. Navigating Adrenal Health 2025. Inaugural virtual conference for patients and caregivers, October 3-4. Join us for two half days of expert-led presentations, patient perspectives, and practical resources designed to empower and educate. The conference will feature leading voices in endocrinology, emergency medicine, patient advocacy, and more. Register: bit.ly/nah25. Please note: if you already registered for the original conference dates, you need take no further action at this time. NADF.us/2025conference

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 8d

#NewEpisode of #AllThingsAdrenal podcast featuring Dr. Liza Lindenberg on #PrimaryAldosteronism and its connection to #Hypertension. Available at NADF.us/podcast or wherever you get your podcasts.

Be sure to check out our episode archive to learn more about other #AdrenalDiseases!

Headshots of Vanessa O'Rourke, podcast host, and Dr. Liza Lindenberg, podcast guest. Text reads, "New episode September 23, 2025. All Things Adrenal. 'Primary Aldosteronism is an Under-Diagnosed Cause of Hypertension'. NADF."

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 9d

Thank you, Dr. Carlos Caballero, for creating a Spanish-language educational workshop for patients with Adrenal Insufficiency, 'Taller para personas con Insufficiencia Suprarrenal'.

Watch it on YouTube: bit.ly/4nEv3zK

#AdrenalInsufficiency #InsufficienciaSuprarrenal

A still from a YouTube video and text, "Thank you, Dr. Carlos Caballero, for creating an educational workshop for patients with Adrenal Insufficiency, 'Taller para personas con Insufficiencia Suprarrenal'. Watch it on YouTube: bit.ly/4nEv3zK".

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 13d

The NADF Hawaii Support Group has a virtual meeting Saturday, September 27th at 4pm HT. Contact [email protected] or visit NADF.us/calendar to learn more.

Seeking a support group in your state? We have groups all over! Visit NADF.us/calendar for all upcoming events.

An illustration of a large group diverse people and text reading, "The NADF Hawaii Support Group has a virtual meeting Saturday, September 27th at 4pm HT. Contact NADFSupport@NADF.us or visit NADF.us/calendar to learn more."

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 13d

Join us October 3-4 for "Navigating Adrenal Health", a free virtual conference featuring leading voices in endocrinology, emergency medicine, patient advocacy, and more.

Register: bit.ly/nah25. All sessions will be recorded and available to those registered.

#AdrenalInsufficiency #AdrenalDisease

Navigating Adrenal Health 2025. Inaugural virtual conference for patients and caregivers, October 3-4. Join us for two half days of expert-led presentations, patient perspectives, and practical resources designed to empower and educate. The conference will feature leading voices in endocrinology, emergency medicine, patient advocacy, and more. Register: bit.ly/nah25. Please note: if you already registered for the original conference dates, you need take no further action at this time. NADF.us/2025conference

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 15d

Can people with #Addisons take Tirzepatide? Dr. Margulies advises caution and consideration in this Wednesday's Q&A.

#AdrenalInsufficiency

Wednesday Q&A. Q: I want to know if anyone with Addison's is taking Tirzepatide or if people with Addison's can take it? A: Tirzepatide is used to treat obesity and type 2 diabetes. It works by increasing insulin secretion, decreasing glucagon secretion, increasing insulin sensitivity, and delaying gastric emptying. There is no specific contraindication to this drug in the setting of Addison's disease, but there is a lot to consider before using it. An endocrinologist should be the one to prescribe and monitor it. The drug may cause hypoglycemia which can overlap with an effect from Addison's. Because GI side effects are common, including nausea and vomiting, these can be serious issues with Addison's. The drug cannot be used by anyone with type 1 diabetes, where insulin is absent, so it is critical to assess the etiology of any coexisting diabetes. Dr. Margulies, Medical Director of NADF. www.NADF.us

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 17d

Happy Fall! May you find your balance this equinox.

Please visit our website to join in our fall activities, including ...

* regional support groups
* national support groups
* Navigating Adrenal Health, our inaugural virtual conference Oct 3-4 - bit.ly/nah25

#AdrenalInsufficiency #AdrenalDisease

A fall scene with text, "Welcome Fall! See our calendar for fall support groups, community events, and more. NADF.us/calendar".

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 19d

NADF was featured as a trusted resource in two recent @everydayhealth.bsky.social articles:
"What is Congenital Adrenal Hyperplasia (CAH)?" and "How to Manage Mental Health and Congenital Adrenal Hyperplasia"

#CongenitalAdrenalHyperplasia #CAH #GeneticDisease

NADF has been featured as a trusted resource in two recent Everyday Health articles, "What is Congenital Adrenal Hyperplasia (CAH)?" (everydayhealth.com/genetic-diseases/congenital-adrenal-hyperplasia); "How to Manage Mental Health and Congenital Adrenal Hyperplasia" (everydayhealth.com/genetic-diseases/managing-mental-health-and-congenital-adrenal-hyperplasia).

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 23d

The NADF Virginia/West Virginia support group has a virtual meeting Tuesday, September 16th at 6pm ET.

Contact [email protected] or visit NADF.us/calendar to learn more.

An illustration of a multiracial group of people with their arms around each other. Text reads, "The NADF Virginia/West Virginia support group has a virtual meeting Tuesday, September 16th at 6pm ET. Contact NADFSupport@NADF.us or visit NADF.us/calendar to learn more."

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 23d

New dates announced! NADF's Inaugural Annual Virtual Conference, Fri 10/3-Sat 10/4. Join us for expert-led presentations, patient perspectives, and practical resources.

Visit NADF.us/2025conference for registration and a note from co-president Erin Foley-Moudry on the changes.

Navigating Adrenal Health 2025. The National Adrenal Diseases Foundation's Inaugural Annual Virtual Conference. New dates: Friday October 3 - Saturday October 4. Join us for two half days of expert-led presentations, patient perspectives, and practical resources designed to empower and educate. The conference will feature leading voices in endocrinology, emergency medicine, patient advocacy, and more. Register here: bit.ly/nah25. Please note: if you already registered for the original conference dates, you need take no further action at this time. NADF. NADF.us/2025conference.

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · 28d

This Wednesday Q + A concerns the impact of #AddisonsDisease on #perimenopause and #menopause. Dr. Margulies advises on this complex issue.

Have questions of your own? We want to hear them! Email [email protected] or DM us here to let us know what's on your mind.

Wednesday Q&A. Q: I have Addison’s Disease and notice an impact in my fatigue during different points of my cycle. I’m curious how my condition will impact my perimenopause and menopause when the time comes. See next slide for answer. www.NADF.us.

Wednesday Q&A. See previous slide for question. A: Addison's disease will not affect the timing of menopause or the severity of menopausal symptoms like hot flushes, sleep disturbance, weight changes, mood swings, and changes in sex drive. However, since these symptoms and physical changes may impact one's sense of well being and energy, there may be times when a slight temporary adjustment in steroid dosing can be useful. It is important to avoid overuse of hydrocortisone extra dosing to prevent unnecessary weight gain. If menopausal symptoms are severe, discuss hormone replacement therapy with your gynecologist. If it is felt to be appropriate for you, Addison's disease is not a contraindication. HRT will usually not require changing the hydrocortisone regimen. In fact, it may help to stabilize the dosing by reducing the swings of menopause. Dr. Margulies, Medical Director of NADF. www.NADF.us

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Sep 8

The NADF New Jersey Support Group meets Monday, September 8th at 7pm ET. To join, email [email protected] or visit NADF.us/calendar for more information.

#AdrenalDisease #AdrenalInsufficiency

An illustration of a group of people facing the viewer and text that reads, "The NADF New Jersey Support Group meets Monday, September 8th at 7pm ET. To join, email NADFSupport@NADF.us or visit NADF.us/calendar for more information".

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Sep 5

There's still time to earn educational credit through our free webinar with @prodigyems.bsky.social.

Free CE for EMS clinicians, plus lifesaving info for #AdrenalInsufficiency patients, their families, caregivers, colleagues, and friends.

link.prodigyems.com/nadf

A black and white image of EMS attending a patient and text that reads, "Free CE for EMS clinicians! 'Recognizing and Managing Adrenal Crisis in the Field'. Recognizing adrenal crisis in the field, real-life case studies and practical strategies, life-saving interventions. Hurry! The opportunity to earn free educational credit ends soon. link.prodigyEMS.com/nadf. Prodigy EMS and NADF."

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Sep 1

Happy Labor Day from NADF!

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Aug 28

Mark your calendars and register today for NADF's free virtual conference "Navigating Adrenal Health", October 2-3, 2025.

More information: NADF.us/2025conference
Register: bit.ly/nah25

Please join us for "Navigating Adrenal Health" NADF's virtual conference for patients and caregivers, October 2-3 2025. Featuring patient resources, research updates, EMS standards and practices, and more! Register today: bit.ly/nah25.

National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Aug 27

New episode of #AllThingsAdrenal #podcast now out! Listen on our website NADF.us/podcast or wherever you get your podcasts.

This month, Vanessa interviews author and advocate Wendy Moses about her journey from life threatening Cushing's syndrome to Addison's disease.

New episode of All Things Adrenal podcast August 27, 2025. "Cushing's Was Controlling My Life." Photo of host Vanessa O'Rourke and guest Wendy Moses. NADF, National Adrenal Diseases Foundation.

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Aug 20

Workshop for Persons with Adrenal Insufficiency
Friday, August 22 · 3pm ET/3:00pm ART
💻 us06web.zoom.us/j/89307224416 · ID: 893 0722 4416 · Code: 923448

Thank you Dr. Valeria de Miguel for creating this webinar. Dr. de Miguel is part of the working group led by Dr. Witchel.

An advertisement for the Hospital Italiano free webinar "Taller para personas con insuficiencia suprarrenal/Workshop for Persons with Adrenal Insufficiency" on Friday, August 22 at 2pm ET/3pm ART.

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Aug 18

Did you know NADF has a caregiver support group?

You can't pour from an empty cup. Sometimes the best way to fill up is to connect with others who understand what you're experiencing. We invite you to join us today!
NADF.us/family-and-caregiver-support-group

#AdrenalDisease #AdrenalInsufficiency

An illustration of a group of people chatting around a table, and text reading, "Did you know NADF has a caregiver support group? Connect with other who understand the challenges you face. Register today: NADF.us/family-and-caregiver-support-group".

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Aug 15

Congratulations to Aiden Krein (University of Colorado Boulder) and Gryphon Kinney (Tulane University) for presenting on data collected by the MyAI Registry.

For more information MyAI, visit NADF.us/adrenal-insufficiency-study-recruitment

#AdrenalDisease #AdrenalInsufficiency

A photo of two people standing next to a scientific poster. Text reads, "Congratulations to Aiden Krein (University of Colorado Boulder) and Gryphon Kinney (Tulane University) for presenting during the National Jewish Health end of summer research symposium. The presentations were based on data collected by the My Adrenal Insufficiency (MyAI) Registry. NADF.us/adrenal-insufficiency-study-recruitment".

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Aug 13

The NADF Colorado Support Group has a virtual meeting Wednesday, August 13th at 5:30pm MT. Reach out to [email protected] to join.

Looking for support in your area? We have support groups all over the United States. Visit NADF.us/support-groups to learn more.

#AdrenalInsufficiency

An image of a group of people with their arms around each other's shoulders. Text reads, "The NADF Colorado Support Group has a virtual meeting Wednesday, August 13th at 5:30pm MT. Reach out to NADFSupport@NADF.us or visit our calendar to join - NADF.us/calendar".

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National Adrenal Diseases Foundation @nadfadrenal.bsky.social · Aug 11

The NADF Delaware Support Group has a virtual meeting Tuesday, August 12th at 7pm ET.

Contact [email protected] to join. For more support groups, visit NADF.us/support-groups.