I hate seeing stories like these or of “partners” being disrespectful and non-supportive. Makes me happy I’m single, even on the tougher days.

Can you please share which of the presentations addressed this: “MECFS and LongCovid severely damage the immune system, to similar extents as HIV/AIDS, w similar mortality rates.”

I’m not seeing evidence of that anywhere and would like to dig into it more. Thank you.

Perhaps she tested before visiting?

www.emerge.org.au/how-to-suppo...

www.emerge.org.au/how-to-suppo...

It’s disappointing when friends/family in general don’t show the initiative to learn, but I’d imagine that is amplified when medical professionals aren’t even demonstrating some level of curiosity.

Thanks so much!

Done!

I am so grateful that I am older (63). My heart goes out to younger people and those with children who are navigating life with this illness. I can’t even imagine.

Great read. Thank you for sharing.

Been on it ~ 6 months and still experiencing crushing fatigue, insomnia, all my POTS symptoms.

Maybe it takes the edge off somehow a bit so I keep taking it, but not really seeing a huge benefit.

Thank you so much. 😀

Thank you so much.

Give them points for originality - at least it wasn’t Tumeric and yoga.

That’s where I was Friday afternoon/Saturday after having to shower and go to a medical appt. Still recovering but a little better today.

Hope the worsened symptoms improve soon. (I know better than to say “get well soon” as, with long COVID, that’s not happening).

With long COVID & POTS (and likely undiagnosed ME/CFS & MCAS) I rarely drive as it feels like I’m moving in slow motion & everything around me in is hyper-speed mode.

I tend to drive only when absolutely necessary, on neighborhood (no highway) roads, and when I know where I’m going w/o use of GPS.