Further information on our newest paper can be found here:

physiosforme.com/hr-monitor-p...

(end)

We worked with a great team:
@sunsopeningband.bsky.social Harry Leeming and patient experts. Collaboration with the ME community has been central to all our research projects - we learn from the best!

89% were still using heart rate monitors after 8 weeks, and 66% after 6 months.

No significant drop in activity level after the introduction of heart rate monitors, which appears to contradict concerns that this method of pacing will cause people to become over cautious.

(3)

As this is a feasibility study, no conclusions can be drawn about the data itself; the outcome is whether this protocol is feasible.

Key points found:

The protocol (using home-based testing) was feasible with no adverse events

(2)

I will try and see what I can find out tomorrow when I can log in 🧐

Severe ME is particularly challenging because even your physical presence with a patient may cause worsening symptoms.

Physios can have a role in pain and posture management but this must be from a place of understanding of the condition.

@thecsp.bsky.social

One of us is an avid player of lawn bowls
One of us attends a punk/rock festival annually
One of us has published four horror novels
One of us goes to France every year to cycle up mountains (slowly)

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Finally, on #MEAwarenessDay we'd like to emphasize the importance of learning about ME to physiotherapists and other healthcare professionals

And to #pwME we'd like to offer our continued support and let you know that you have a dedicated team on your side 💜

And of course here's some information about our book, which provides more detailed evidence based material to help you understand more about safe management of people with ME

#MEAwarenessDay

www.physiosforme.com/our-book

Here are seven slides that give a basic overview of ME and relevant issues for health professionals

#MEAwarenessDay

t.co/X9eVenALoX

Here is a one page handout to help identify areas of any practice that might need to be adapted to work safely with people with ME

physiosforme.com/onesheetprinto…#MEAwarenessDayay