Beth Fox
@pinkvulpine.bsky.social
Disabled activist, scholar, & vlogger
President Rehumanize Intl (views expressed here my own)
MPH & MA in Dev Psyc
Avid reader & crocheter
Proud stats nerd and dog mom to Kacie Kay
Taskmaster and Horne Section Enthusiast
John 9:2-3
President Rehumanize Intl (views expressed here my own)
MPH & MA in Dev Psyc
Avid reader & crocheter
Proud stats nerd and dog mom to Kacie Kay
Taskmaster and Horne Section Enthusiast
John 9:2-3
I normally only get my flu shot when I’m fully stable, but cases are rising rapidly in my area. So I went ahead and got it today even though my respiratory function was only 75% back to baseline.
I know it was the right decision, but I’ve plummeted back down to like 30% and I feel like I’m drowning
I know it was the right decision, but I’ve plummeted back down to like 30% and I feel like I’m drowning
December 4, 2025 at 12:56 AM
I normally only get my flu shot when I’m fully stable, but cases are rising rapidly in my area. So I went ahead and got it today even though my respiratory function was only 75% back to baseline.
I know it was the right decision, but I’ve plummeted back down to like 30% and I feel like I’m drowning
I know it was the right decision, but I’ve plummeted back down to like 30% and I feel like I’m drowning
Things have been rough. So I spent the day doing some art. This quote from @dimension20.bsky.social Neverafter has been on my mind a lot recently. Dying sucks and it often feels like I’m barely keeping my head above water, but I am grateful for every day and all the memories I’m able to make.
November 30, 2025 at 1:08 AM
Things have been rough. So I spent the day doing some art. This quote from @dimension20.bsky.social Neverafter has been on my mind a lot recently. Dying sucks and it often feels like I’m barely keeping my head above water, but I am grateful for every day and all the memories I’m able to make.
Starstruck (@dimension20.bsky.social ) is SciFi, but this line is all too real.
“You rent your ability to live”
Although, @brennanleemulligan.bsky.social charges much less than the US. My ventilator alone is over $5,000/month. I don’t want to think what my DME would charge for a full cyborg body
“You rent your ability to live”
Although, @brennanleemulligan.bsky.social charges much less than the US. My ventilator alone is over $5,000/month. I don’t want to think what my DME would charge for a full cyborg body
November 29, 2025 at 2:15 AM
Starstruck (@dimension20.bsky.social ) is SciFi, but this line is all too real.
“You rent your ability to live”
Although, @brennanleemulligan.bsky.social charges much less than the US. My ventilator alone is over $5,000/month. I don’t want to think what my DME would charge for a full cyborg body
“You rent your ability to live”
Although, @brennanleemulligan.bsky.social charges much less than the US. My ventilator alone is over $5,000/month. I don’t want to think what my DME would charge for a full cyborg body
On today’s episode of you may chronically ill if:
the new x-ray tech is surprised you’re so good at getting chest X-rays.
Also, I definitely have pneumonia again, but my lung didn’t collapse this time. So that’s good?
If you need me, I’ll be in bed pretending I have a functioning immune system.
the new x-ray tech is surprised you’re so good at getting chest X-rays.
Also, I definitely have pneumonia again, but my lung didn’t collapse this time. So that’s good?
If you need me, I’ll be in bed pretending I have a functioning immune system.
November 26, 2025 at 1:49 AM
On today’s episode of you may chronically ill if:
the new x-ray tech is surprised you’re so good at getting chest X-rays.
Also, I definitely have pneumonia again, but my lung didn’t collapse this time. So that’s good?
If you need me, I’ll be in bed pretending I have a functioning immune system.
the new x-ray tech is surprised you’re so good at getting chest X-rays.
Also, I definitely have pneumonia again, but my lung didn’t collapse this time. So that’s good?
If you need me, I’ll be in bed pretending I have a functioning immune system.
Not sure if I’m actually getting sick, still reeling from smoke inhalation (from catching my microwave on fire), or if my ventilator malfunctioning last night triggered a respiratory crisis. Either way breaking out the sick tea tonight and heading in for a chest x-ray and cultures in the morning.
November 25, 2025 at 5:58 AM
Not sure if I’m actually getting sick, still reeling from smoke inhalation (from catching my microwave on fire), or if my ventilator malfunctioning last night triggered a respiratory crisis. Either way breaking out the sick tea tonight and heading in for a chest x-ray and cultures in the morning.
Never a dull moment
November 24, 2025 at 12:20 AM
Never a dull moment
Just starting @dimension20.bsky.social adventuring party now that I’ve watched up through Crown of Candy. I’m not sure if Lou accurately described the Hydra lifestyle, but he nailed Kacie and I’s sleep habits.
The number of random quotes I’ve compiled from this show is wild.
The number of random quotes I’ve compiled from this show is wild.
November 22, 2025 at 2:17 PM
Just starting @dimension20.bsky.social adventuring party now that I’ve watched up through Crown of Candy. I’m not sure if Lou accurately described the Hydra lifestyle, but he nailed Kacie and I’s sleep habits.
The number of random quotes I’ve compiled from this show is wild.
The number of random quotes I’ve compiled from this show is wild.
This whole video is great, but 4:18-7:12 was genuinely cathartic. Leaving academia because of my terminal illness was hard. But at least I’m not Franklin.
Dying sucks, but joking about it helps! Thank you @brennanleemulligan.bsky.social for not being afraid of dark humor
youtu.be/1sp_I-XUxtU?...
Dying sucks, but joking about it helps! Thank you @brennanleemulligan.bsky.social for not being afraid of dark humor
youtu.be/1sp_I-XUxtU?...
Warren - UCB NY Cagematch - January 22, 2015
YouTube video by NY Comedy
youtu.be
November 22, 2025 at 2:48 AM
This whole video is great, but 4:18-7:12 was genuinely cathartic. Leaving academia because of my terminal illness was hard. But at least I’m not Franklin.
Dying sucks, but joking about it helps! Thank you @brennanleemulligan.bsky.social for not being afraid of dark humor
youtu.be/1sp_I-XUxtU?...
Dying sucks, but joking about it helps! Thank you @brennanleemulligan.bsky.social for not being afraid of dark humor
youtu.be/1sp_I-XUxtU?...
3 weeks ago I was told Kacie had 2-3 weeks. She’s still stable and regaining skills everyday! Yesterday she got her favorite bone out of the toy box all by herself and started chewing on it.
November 19, 2025 at 2:22 PM
3 weeks ago I was told Kacie had 2-3 weeks. She’s still stable and regaining skills everyday! Yesterday she got her favorite bone out of the toy box all by herself and started chewing on it.
Stroke perks! Today I learned that I’ve lost enough sensation on my right side that I can feel them put in an IV! All shot and blood draws will be on the right side from now on.
November 17, 2025 at 10:29 PM
Stroke perks! Today I learned that I’ve lost enough sensation on my right side that I can feel them put in an IV! All shot and blood draws will be on the right side from now on.
Kacie did her little happy hops again this morning for the first time since she collapsed nearly 3 weeks ago. The vets didn’t think she’d still be here but she’s still improving everyday 💕
November 16, 2025 at 2:38 PM
Kacie did her little happy hops again this morning for the first time since she collapsed nearly 3 weeks ago. The vets didn’t think she’d still be here but she’s still improving everyday 💕
My new aide insists on calling me Ms. Fox and it makes me feel so old. The nursing agency and med transport also refer to my apartment building as a facility. Am I the only resident under 55? Quite possibly. The joys of being 33 and actively dying are endless.
November 11, 2025 at 6:37 PM
My new aide insists on calling me Ms. Fox and it makes me feel so old. The nursing agency and med transport also refer to my apartment building as a facility. Am I the only resident under 55? Quite possibly. The joys of being 33 and actively dying are endless.
Being the human parent of 2 medically complex animals, I’ve learned to take photos and videos when one starts doing something odd. This morning Beany baby started coughing/gagging. Kacie went to check on him and this is the footage I actually got. I love that they love each other so much.
November 11, 2025 at 6:11 PM
Being the human parent of 2 medically complex animals, I’ve learned to take photos and videos when one starts doing something odd. This morning Beany baby started coughing/gagging. Kacie went to check on him and this is the footage I actually got. I love that they love each other so much.
My little ginger babies 💕
Photos of my sweet Kacie Kay and spicy little Julian Patatas being cute and sleepy.
Photos of my sweet Kacie Kay and spicy little Julian Patatas being cute and sleepy.
November 6, 2025 at 7:15 PM
My little ginger babies 💕
Photos of my sweet Kacie Kay and spicy little Julian Patatas being cute and sleepy.
Photos of my sweet Kacie Kay and spicy little Julian Patatas being cute and sleepy.
Setting up my nativity tonight and I can’t help but think that cow looks precisely packed to eat baby Jesus. This nativity is older than me. This has never been a problem before. #MangerDanger
@thehornesection.bsky.social
@thehornesection.bsky.social
November 5, 2025 at 1:29 AM
Setting up my nativity tonight and I can’t help but think that cow looks precisely packed to eat baby Jesus. This nativity is older than me. This has never been a problem before. #MangerDanger
@thehornesection.bsky.social
@thehornesection.bsky.social
Okay. But fur real what’s up with my animals? Julian Patatas has been an absolute menace all morning. Put on @thehornesection.bsky.social Christmas album to help Kacie settle for a nap and Juju comes running over and starts making biscuits on my lap. A few songs in and they are both mesmerized.
November 3, 2025 at 4:24 PM
Okay. But fur real what’s up with my animals? Julian Patatas has been an absolute menace all morning. Put on @thehornesection.bsky.social Christmas album to help Kacie settle for a nap and Juju comes running over and starts making biscuits on my lap. A few songs in and they are both mesmerized.
Kacie had a quite good day yesterday all things considered but has been restless overnight. I turned on @thehornesection.bsky.social and let their music work its magic on her. Now the only problem is she’s managing to take up the whole bed and I don’t have the heart to move her. 🐶💕💔
November 3, 2025 at 11:10 AM
Kacie had a quite good day yesterday all things considered but has been restless overnight. I turned on @thehornesection.bsky.social and let their music work its magic on her. Now the only problem is she’s managing to take up the whole bed and I don’t have the heart to move her. 🐶💕💔
I don’t think I’ve introduced him here yet. This is my little foster failure. Julian Patatas. Named for my book series, Ender’s Game, and, of course, my favorite TV program, @taskmaster.tv
We started fostering him when he was just a few days old. He’s a literal nightmare but I love him so much
We started fostering him when he was just a few days old. He’s a literal nightmare but I love him so much
November 2, 2025 at 8:55 PM
I don’t think I’ve introduced him here yet. This is my little foster failure. Julian Patatas. Named for my book series, Ender’s Game, and, of course, my favorite TV program, @taskmaster.tv
We started fostering him when he was just a few days old. He’s a literal nightmare but I love him so much
We started fostering him when he was just a few days old. He’s a literal nightmare but I love him so much
Last Tuesday my sweet Kacie Kay fell out bed and became disoriented and unable to walk. Thursday she was diagnosed with an aggressive terminal cancer.
She’s still eating (though she can’t chew) & drinking well.
There’s no treatment but we have found a medication cocktail that’s keeping comfortable
She’s still eating (though she can’t chew) & drinking well.
There’s no treatment but we have found a medication cocktail that’s keeping comfortable
November 2, 2025 at 8:29 PM
Last Tuesday my sweet Kacie Kay fell out bed and became disoriented and unable to walk. Thursday she was diagnosed with an aggressive terminal cancer.
She’s still eating (though she can’t chew) & drinking well.
There’s no treatment but we have found a medication cocktail that’s keeping comfortable
She’s still eating (though she can’t chew) & drinking well.
There’s no treatment but we have found a medication cocktail that’s keeping comfortable
Heyo Bluesky, my stroke addled brain genuinely forgot this app existed for a few months. What’d I miss? Who’s still here?
November 1, 2025 at 7:07 AM
Heyo Bluesky, my stroke addled brain genuinely forgot this app existed for a few months. What’d I miss? Who’s still here?
Things I didn’t expect to have to tell my dog:
“Excuse me! I need my wheelchair back. “
“Excuse me! I need my wheelchair back. “
July 22, 2025 at 2:43 AM
Things I didn’t expect to have to tell my dog:
“Excuse me! I need my wheelchair back. “
“Excuse me! I need my wheelchair back. “
After listening about 20 times, Kacie decided to show off her dance moves
June 23, 2025 at 6:08 PM
After listening about 20 times, Kacie decided to show off her dance moves
10 years ago, I had to say goodbye to my mom and my best friend. It felt. Like life couldn’t go on without her, and I’m still not sure how it has. I hope she’d be proud of the person I’ve become.
@thehornesection.bsky.social “grief” is my anthem for today.
music.amazon.com/podcasts/7b1...
@thehornesection.bsky.social “grief” is my anthem for today.
music.amazon.com/podcasts/7b1...
June 23, 2025 at 5:30 PM
10 years ago, I had to say goodbye to my mom and my best friend. It felt. Like life couldn’t go on without her, and I’m still not sure how it has. I hope she’d be proud of the person I’ve become.
@thehornesection.bsky.social “grief” is my anthem for today.
music.amazon.com/podcasts/7b1...
@thehornesection.bsky.social “grief” is my anthem for today.
music.amazon.com/podcasts/7b1...
Found a secret accesible playground downtown this morning. Now time for a nap with Kacie before more shenanigans this evening.
June 7, 2025 at 3:53 PM
Found a secret accesible playground downtown this morning. Now time for a nap with Kacie before more shenanigans this evening.
Someone’s feeling much better after wasp sting and Benadryl hangover.
June 7, 2025 at 1:03 PM
Someone’s feeling much better after wasp sting and Benadryl hangover.