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retinaint.bsky.social
@retinaint.bsky.social
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retinaint.bsky.social
For World Sight Day this year, our priority is to #KeepPatientsVoting.

We are proud to launch our campaign, Patient Voices: Deciding Our Futures.

Learn more: https://ow.ly/s3X250X7MoU

#WorldSightDay #PatientVoices #WSD2025
A social media graphic from Retina International’s “Patient Voices: Deciding our Futures” campaign. It features a black-and-white portrait of Leighton Boyd, Chair of Retina Australia, smiling and wearing a light shirt. Next to his image is a quote that reads: “When patients have a voice in establishing policy, programs and systems are better designed to meet real-world needs.” The Retina International logo appears in the top right corner, and at the bottom is the campaign hashtag #KeepPatientsVoting.
October 8, 2025 at 7:05 PM
retinaint.bsky.social
Are you a young person living with a retinal condition? Register today for the Retina International Youth World Conference! Saturday, September 27 at 4pm CET> us06web.zoom.us/meeting/regi... #Conference #Science #Retina #RetinaYouth
September 9, 2025 at 8:08 AM
retinaint.bsky.social
We're excited to attend @euretina.bsky.social!

➡️ Our abstract details:
“Can large language models improve the readability of online patient education materials on retinal diseases?”

📍 6th September 2025
🕤 10:00 – 10:06
📌Speakers' Corner 18

@avrilbdaly.bsky.social @nabinpaudel.bsky.social
A graphic of the RI team. There is text: Connect with us! Retina International at EURETINA '25. The EURETINA logo is placed underneath the text. There are three black and white headshots of staff- Dr Nabin Paudel, Avril Daly and Dr Ellen Moran. All three are looking directly to camera and smiling. The Retina International logo is placed underneath the image, bottom centre.
September 3, 2025 at 11:05 AM
retinaint.bsky.social
Join us at @euretina.bsky.social! We will be presenting our latest work, "Can large language models improve the readability of online patient education materials on retinal diseases?”

🗓 Speakers’ Corner 18: Miscellaneous
⏰ 09:30–10:30 CEST | Dr. Nabin Paudel speaking 10:00–10:06

#EURETINA #RI
Can large language models improve the readability of online patient education materials on retinal diseases?’ Hashtags: #EURetina2025. Below: ‘Oral Presentation: Dr. Nabin Paudel, Head of Research & Programmes, Retina International. 6 September 2025, 09:30–10:30 CEST.’ Large text reads: ‘People living with retinal diseases often face complex, highly technical medical information.’ Text reads: ‘Our research explores how artificial intelligence (AI), specifically large language models, can make these materials clearer, simpler, and easier to understand, improving health literacy and empowering patients in their care decisions.’ Text reads: ‘Our pilot study tested whether AI tools like ChatGPT, Claude, and DeepSeek could rewrite online patient education materials (PEMs) to be: more readable, more accessible, and better suited for all educational backgrounds.’
August 14, 2025 at 10:27 AM
retinaint.bsky.social
Save the date! Our Head of Research, Dr. @nabinpaudel.bsky.social will speak at #EURETINA2025 on AI and clearer patient info for retinal diseases.
- Sept 6, 10:00 CEST.
#Ophthalmology #AI #EURETINA25 @euretina.bsky.social
A headshot of Dr Nabin Paudel. He is standing in a park and smiling to camera. The Retina International logo is placed bottom centre of the graphic. Text in black on a green background states: Can large language models improve the readability of online patient education materials on retinal diseases. The Retina International logo is placed bottom centre of the graphic. The hashtag #EURETINA25 is placed on the graphic above the RI logo.
July 2, 2025 at 9:41 AM
retinaint.bsky.social
Congrats to Prof. José-Alain Sahel, Co-chair of our SMAB, on receiving the @arvoinfo.bsky.social Proctor Medal for his pioneering work in retinal research.

This is one of the highest honors bestowed by ARVO - and so well deserved.

#ProctorMedal #ARVO #Award #RetinalResearch #Retina #Research
An image of Jose Sahal on a pink background. The RI logo is centred in the image. Text states: Retina International warmly congratulates Professor José-Alain Sahel, Co-chair of our Scientific and Medical Advisory Board, on receiving the prestigious Proctor Medal - one of the highest honors bestowed by ARVO.
June 18, 2025 at 9:04 AM
retinaint.bsky.social
Thanks to all who joined our #ARVO #SIG on #GA trial endpoints yesterday - great insights from regulators, industry, academia & the patient community.

More multistakeholder conversations to come!
A blue image with dark grey text, with a screengrab of the special interest group meeting participants on Zoom. The text states: RI Special Interest Group (SIG). The Retina International logo is placed at the bottom centre of the image. Dark grey poster with blue text. Text states: Panelists: Avril Daly, Dr. Andrew Want,Dr. Maximilian Pfau, Dr. Jane Moseley. #ARVO. The Retina International logo is placed bottom centre of the graphic.
June 11, 2025 at 11:11 AM
retinaint.bsky.social
Our @arvoinfo.bsky.social #SIG on #GeographicAtrophy endpoints is just 2 weeks away. Join us on June 10 to help shape more meaningful trial outcomes.
🔗 Register today! www.arvo.org/education/sp...
@avrilbdaly.bsky.social @nabinpaudel.bsky.social @ema.europa.eu #GeographicAtrophy #ClinicalTrials
A yellow poster with details of the SIG session: Special Interest Group (SIG). Harmonizing and Designing Novel Endpoints in Degenerative Retinal Diseases to Foster Innovation. June 10 - 9:00 - 10:30 am EDT
May 29, 2025 at 10:53 AM
retinaint.bsky.social
Our CEO @avrilbdaly.bsky.social, in her role as President of @eurordis.bsky.social, opened the EURORDIS Membership Meeting 2025 in Riga 🇱🇻 #EMM2025

The theme: Maximising our impact - Strengthening the voice of the rare disease community in decision-making.

#RareDiseases #EURORDIS #PatientVoice
There is a photograph of Avril Daly on stage placed on a pink background. She is speaking into a microphone. Behind her on screen is a presentation slide. The Retina International logo is placed at the bottom centre of the graphic.
May 23, 2025 at 8:50 AM
retinaint.bsky.social
How do we make GA clinical trials more patient-focused?
Join our virtual @arvoinfo.bsky.social SIG session:

June 10, 9-10:30am EDT.

Hosted by @retinaint.bsky.social - open discussion encouraged!

🔗 Register: www.arvo.org/education/sp...

#GeographicAtrophy #RetinaResearch #ClinicalTrials #AMD
Blue poster with dark grey text: Special Interest Group (SIG). Harmonizing and Designing Novel Endpoints in Degenerative Retinal Diseases to Foster Innovation. #ARVO2025. The Retina International logo is centred at the bottom of the graphic. Image 2: Dark grey poster with blue text. Panelists: Avril Daly, Dr. Andrew Want,Dr. Maximilian Pfau, Dr. Jane Moseley
May 21, 2025 at 9:59 AM
retinaint.bsky.social
We warmly welcome the @ema.europa.eu CHMP’s positive opinion on the first targeted therapy for Thyroid Eye Disease (TED).

🔗 Read more: retina-international.org/ted-press-re...

#RareDisease #TED #RetinaInternational #VisionHealth #InnovationInSight @amgen.bsky.social @avrilbdaly.bsky.social
Text on a pink background: Retina International Welcomes CHMP's Positive Opinion on First Targeted Therapy for Thyroid Eye DIsease. The Retina International logo is centered at the bottom of the graphic. Text on a pink background: This is a pivotal moment for the TED community. Avril Daly, CEO, Retina International. The Retina International logo is centered at the bottom of the graphic.
May 12, 2025 at 9:42 AM
retinaint.bsky.social
We're delighted to have had such a productive few days at #ARVO2025 @arvoinfo.bsky.social this year. Dr @nabinpaudel.bsky.social & @avrilbdaly.bsky.social presented work that demonstrates our commitment to patient-driven, evidence-based innovation. So many interesting discussions! More to follow!
A photograph of Dr Nabin Paudel, who is standing in front of his poster at ARVO. The poster is presented on a poster board. Nabin is wearing a suit and smiling to camera. Underneath the photograph is a blue block colour with the Retina International logo and the hastag #ARVO2025
May 7, 2025 at 11:29 AM
retinaint.bsky.social
Attending @arvoinfo.bsky.social #ARVO2025? Don't miss our Head of Research & Programmes Dr @nabinpaudel.bsky.social: Accuracy and readability of ChatGPT-4o responses to patient queries on AMD.

📌Large language models in Ophthalmology
📅 May 6, 2025 | 3:30PM - 5:15PM
📍 Posterboard Number: 3952 - B0489
Photograph of Nabin in front of his poster at ARVO
May 6, 2025 at 2:07 PM
retinaint.bsky.social
Productive day for us @arvoinfo.bsky.social - our CEO @avrilbdaly.bsky.social presented her work on #GA and Dr @nabinpaudel.bsky.social will present on Tuesday. At ARVO? Come find us to chat more about our work: ℹ️ www.linkedin.com/posts/retina... #ARVO2025 #ARVO #EyeResearch #Ophthalmology
Avril Daly presenting her work at ARVO 2025. Avril is standing in front of her poster, which is on a poster board. She is presenting her work to another person. Underneath the image is #ARVO2025 and the Retina International logo. Dr Nabin Paudel in front of his work at ARVO 2025. Nabin is standing in front of his poster, which is on a poster board. Underneath the image is #ARVO2025 and the Retina International logo
May 4, 2025 at 8:50 PM
retinaint.bsky.social
At Retina International, our newsletter isn’t just news, it’s a global connection. A place where patients, researchers, advocates, and allies come together to share, learn, and lead change in retinal health.
➡️ Read our April edition here: bit.ly/4cNCvUU.
➡️ Subscribe here: bit.ly/4cGXVmt
#RetinaIntl
April 23, 2025 at 11:19 AM
retinaint.bsky.social
Late-stage #AMD isn’t just a health issue, it’s an economic one.
New research led by Dr. @Nabin Paudel @retinaint.bsky.social, shows massive costs in 🇧🇬 🇩🇪 🇺🇸, with lost well-being & productivity driving the burden. Early action matters. Read more:
🔗 www.ophthalmologytimes.com/view/economi... #DMAE
English: "Title in English and Spanish: Economic burden of late-stage age-related macular degeneration." Spanish: "Título en inglés y español: Carga económica de la DMAE en etapa avanzada." "Text: Late-stage AMD causes significant economic burden, with reduced well-being and productivity loss." Spanish: "Texto: La DMAE en etapa avanzada causa una carga económica significativa, con pérdida de bienestar y productividad." Early detection, vision rehabilitation services, and access to therapies are essential to mitigating the economic impact of AMD.
April 16, 2025 at 12:10 PM
retinaint.bsky.social
Retina International is gearing up for @arvoinfo.bsky.social where Avril Daly and Dr. Nabin Paudel will present two important poster sessions on:
- Patient-driven insights into Geographic Atrophy
- Using ChatGPT-4o to support AMD patient education
📅 May 4 & May 6
#PatientPerspectives #AIinHealthcare
A promotional graphic for ARVO 2025 featuring Avril Daly, CEO of Retina International. A black and white portrait of Avril appears in the upper right corner. Text reads: “Avril Daly, CEO, Retina International #ARVO2025 May 4, 2025 from 8:00 AM to 9:45 AM Burden of geographic atrophy and treatment expectations of therapies: perspectives from patient-driven research funding and support organizations.” Retina International’s colorful logo is at the bottom right. The background is a dark blue-gray with pink and lavender design elements. A promotional graphic for ARVO 2025 featuring Dr. Nabin Paudel, Head of Research & Programmes at Retina International. A black and white portrait of Dr. Paudel appears in the upper right corner. Text reads: “Dr. Nabin Paudel, Head of Research & Programmes, Retina International #ARVO2025 May 6, 2025 from 3:30 PM to 5:15 PM Accuracy and Readability of ChatGPT-4o Generated Responses to queries on Age-related Macular Degeneration for Patient Education and Counselling.” Retina International’s colorful logo is at the bottom right. The background is a dark blue-gray with yellow and beige design elements.
April 8, 2025 at 1:51 PM
retinaint.bsky.social
Today, on @who.int #WorldHealthDay, we’re highlighting inherited retinal diseases in maternal and newborn care. Early diagnosis = healthier futures. #HealthForAll #GeneticTesting #WHO #RetinaInternational #EyeHealth #VisionResearch #Ophthalmology #ScienceResearch #WorldHealthDay
Graphic for World Health Day, April 7, 2025. The background is dark slate grey with a stylized gold outline of an eye in the center. Above the eye, large white text reads: "World Health Day," and below it, smaller text reads: "April 7, 2025." Under the eye is the hashtag "#HealthForAll." At the bottom are the logos of the World Health Organization (WHO) on the left and Retina International on the right. A soft green curve enters the image from the lower right corner.
April 7, 2025 at 12:20 PM
retinaint.bsky.social
Did you miss #RareDiseaseDay2025 at @europarl.europa.eu? Our CEO, @avrilbdaly.bsky.social, President @eurordis.bsky.social, called for an EU Action Plan for Rare Diseases; faster diagnoses, better treatments & holistic support.
Watch/listen back to Avril here: shorturl.at/wsEkw
#RareDiseases #EU
The image shows a panel discussion at the European Parliament, with a "Renew Europe" banner displayed on the front of the panelist table. Avril Daly is speaking into a microphone. Her image is also displayed on a large screen above the panel.
March 24, 2025 at 1:27 PM
retinaint.bsky.social
How does mental health intersect with rare eye diseases? Our latest podcast with David Sanchez, @avrilbdaly.bsky.social, and Matt Bolz-Johnson @eurordis.bsky.social explores the emotional impact, policy challenges, and the power of community support. Listen here: youtu.be/7d7RxQEGeHU
March 20, 2025 at 1:00 PM
retinaint.bsky.social
Another fantastic #EducationHub session: We discussed the role of patients in research & regulation, with expert insights from NCPE & @ema.europa.eu. Patients are not just participants - they’re decision-makers.

More: shorturl.at/QK1mG

#RetinaInternational #PatientAdvocacy #HTA #RegulatoryAffairs
A virtual meeting screenshot from Retina International's Education Hub. The title slide reads, “Regulation and regulatory bodies: what is involved and how can patients make a difference.” Various speakers, including Avril Daly, Joan O’Callaghan, and Russell Wheeler, are visible in the session. A screenshot from the Education Hub event. The slide from the European Medicines Agency (EMA) titled “Who we are” is displayed, explaining different committees. Participants, including Kaisa Immonen and Dr. Jane Moseley, are highlighted in the Zoom call. A mix of presentation slides and speaker views. One slide from the NCPE outlines the HTA (Health Technology Assessment) process, showing the connection between NCPE, HTA, and payers. The session features discussions on patient involvement in regulatory decisions.
March 18, 2025 at 12:22 PM
retinaint.bsky.social
Retina International are delighted to announce our latest publication in Frontiers Medicine #RIWC24 #Patient #Value #UnmetNeeds #Therapies www.frontiersin.org/journals/med...
March 4, 2025 at 4:00 PM
retinaint.bsky.social
The RI Education Hub continued today with two excellent presentations on Patient Registries from Russell Wheeler and Todd Durham @fightblindness.bsky.social. Thanks to our speakers and participants for their participation and engagement #IRD #Genetics #GeneticTesting #Registries #ClinicalTrials
The image is a screenshot of a zoom session with a powerpoint slide on the left and participants on the right hand side.
February 7, 2025 at 1:05 PM
retinaint.bsky.social
This year, ARVO has accepted Avril Daly's and Dr. Nabin Paudel's abstracts; we are excited to announce that they will be flying out this year to Salt Lake City this May to present studies on GA burden and treatment expectations & AI generated responses to patient queries on AMD #GA #AI #ChatGPT
ID: It is a darkgray background with decorative shapes with RI's logo colours. The ARVO 2025 Logo and the RI logo are on top. On the left there is Avril Daly's B&W picture with her name and work title below; she is smiling with her blonde hair up. Next to her, is Nabin's B&W picture with his name and work title below; He is smiling with his arms crossed, wearing a white button up shirt. Below that text are the titles of the abstracts in white; Nabin's abstract title reads: Accuracy and Readability of ChatGPT-4o Generated Responses to queries on Age-related Macular Degeneration for Patient Education and Counselling Avril's abstract title reads: Burden of geographic atrophy and treatment expectations of therapies: perspectives from patient driven research funding and support organizations
January 15, 2025 at 12:29 PM
retinaint.bsky.social
Retina International supports this International Universal Health Coverage Day and urges decision makers around the world to protect people from financial hardship when accessing health services #HealthForAll #UniversalHealthCoverage #UHCDay #equity #UHC
A graphic promoting Universal Health Coverage Day by Retina International. The black background features the silhouette of a person's profile filled with colourful icons representing health, sustainability, and community, such as a white dove, a doctor and patient, a person riding a bike, and a blooming flower. To the left is text in bold white letters that reads: "For too many people around the world, the cost of accessing healthcare and medicines is too high. Governments, this #UHCDay, we call on you to make good on your promises and protect people from impoverishing health spending." At the top are the Universal Health Coverage Day umbrella logo and Retina International logo
December 12, 2024 at 12:02 PM