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rFSGS Initiative @rfsgsinitiative.bsky.social · Mar 31

As #KidneyMonth2025 ends, we want to hear from you all on what continues to inspire you and provide hope for a future where a cure for #rFSGS exists! Let us know your thoughts and experiences in the comments below. ⬇️

#rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Mar 27

Help us understand why!

If you or someone you know has #rFSGS and you are interested in learning how you can help and provide a biosample, email us at [email protected].

#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Mar 27

Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.

#KidneyMonth #rFSGS #rFSGSConference

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Reposted by rFSGS Initiative

David Koch Jr. Glomerular Kidney Center @cuimcglomcenter.bsky.social · Mar 13

Happy Thursday! Less than a month left to register for the IgAN Diagnosis & Treatment Updates 2025 on April 4th. Feel free to register using the following link: www.eventleaf.com/e/...

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rFSGS Initiative @rfsgsinitiative.bsky.social · Mar 23

Once FSGS reoccurs after a #KidneyTransplant, there are limited treatment options & currently no definitive cure. Follow us to stay updated on the latest news about #rFSGS research & join our Facebook group: www.facebook.com/groups/57871...

#KidneyMonth #rFSGSConference #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Mar 17

Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email [email protected].

#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Mar 13

It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure.

#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Mar 11

Stay connected with attendees from the past #rFSGSConference, meet others who have been impacted by #rFSGS, and share your experiences in our Recurrent FSGS Community Facebook group: www.facebook.com/groups/57871...

#KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Mar 6

Flashback to our #rFSGSConference in December! We brought together patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned! #KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph @genetickidneydoc.bsky.social

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rFSGS Initiative @rfsgsinitiative.bsky.social · Mar 4

Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates.

#rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 20

Thank you for joining us for the wonderful #rFSGSConference last week in Washington, DC! We look forward to being in touch with you all soon! #rFSGS

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 9

At today's #rFSGSConference, we're connecting patients, families, doctors, researchers, funders, & political leaders to raise awareness of #rFSGS.

The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚

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Reposted by rFSGS Initiative

Matt Sampson @kidneyomicsamps.bsky.social · Dec 9

It’s wonderful that the @rfsgsinitiative.bsky.social conference has two sessions dedicated to stories from patients & families. We are so grateful to hear the perspectives of these courageous & generous individuals @genetickidneydoc.bsky.social @opeyemiolabisi.bsky.social @gbadegesinlab.bsky.social

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Reposted by rFSGS Initiative

Matt Sampson @kidneyomicsamps.bsky.social · Dec 9

A clear and stirring mission statement for the @rfsgsinitiative.bsky.social from an inspiring video that opened the session @genetickidneydoc.bsky.social

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Reposted by rFSGS Initiative

Matt Sampson @kidneyomicsamps.bsky.social · Dec 9

The epitome of a Physician-Scientist. @gbadegesinlab.bsky.social swoops in to DC this morning from being on call last night in North Carolina to moderate an early session here at @rfsgsinitiative.bsky.social

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 9

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 9

We've kicked off the first-ever #rFSGSConference! We look forward to an impactful day by and for #rFSGS patients. #RareDisease #KidneyTransplant

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Reposted by rFSGS Initiative

Matt Sampson @kidneyomicsamps.bsky.social · Dec 9

This guy, @genetickidneydoc.bsky.social, with a great help, has put together a wonderful program for the inaugural @rfsgsinitiative.bsky.social meeting. Looking for to tomorrow’s big day #kidneyomics #NephSky

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 9

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 9

We look forward to seeing you tomorrow for the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference!
🔹7:30 a.m.–5:30 p.m.
🔹Hyatt Regency Washington on Capitol Hill
🔹Washington, DC

View our program to see what's in store: www.scgcorp.com/rFSGS2024/Ag... #rFSGSConference

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 5

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 5

📣REGISTRATION DEADLINE EXTENDED📣

There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re...

#KidneyTransplant
#RareDisease
#nephsky
#skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 3

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 3

🚨 #rFSGSConference registration closes today! 🚨

Don't miss out! If you want to take part in the first-ever conference on #rFSGS with patients, accomplished researchers, political leaders, and more, register now: www.scgcorp.com/rFSGS2024/Re... #KidneyTransplant #RareDisease

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rFSGS Initiative @rfsgsinitiative.bsky.social · Dec 2

@gbadegesinlab.bsky.social
@kidneyomicsamps.bsky.social
@opeyemiolabisi.bsky.social
@alessiafornoni.bsky.social
@genetickidneydoc.bsky.social
#rFSGS
#rFSGSConference
#KidneyTransplant
#RareDisease
#nephsky
#medsky
#skyneph

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