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Reposted by Silvana Mengoni

Making Positive Moves @positivemoves.bsky.social · Apr 3

📢New blog alert 📢 We have a blog, including an easy-read version, all about the Making Positive Moves findings and how our research has helped us understand what supports people to live their best lives. makingpositivemoves.org/category/blog/

Blog – Making Positive Moves

makingpositivemoves.org

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Silvana Mengoni @silvanamengoni.bsky.social · Mar 5

We really enjoyed hearing about other HPFT NHS Trust research and sharing our Making Positive Moves animation video and upcoming toolkit. You can watch our animation with the *wonderful* Joan here: youtu.be/Oy_bJreYte8?... and visit our website here: makingpositivemoves.org

Making Positive Moves Animation Video The Research Findings

YouTube video by Making Positive Moves MPM

youtu.be

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Silvana Mengoni @silvanamengoni.bsky.social · Mar 5

An absolute highlight of the HPFT research showcase!

Bridget Russell-Calvert @research-nurd.bsky.social · Mar 5

Purple Allstars telling HPFT Research Conference about life from their perspective. #PurpleAllstars #StAlbans @herts.ac.uk

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Holly Wilson @healthlibraryholly.bsky.social · Mar 3

We are looking for adults with a #LearningDisability to take part in our research about #EasyRead information!

If you or somebody you know would like to take part, please direct message or email me 📧💬

#LDresearch @silvanamengoni.bsky.social @regalexa.bsky.social

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Silvana Mengoni @silvanamengoni.bsky.social · Feb 25

Excited to be presenting our work on tube-feeding in Down syndrome at the Research Forum, and to hear the great range of talks over the three days!

Down Syndrome Education International @down-syndrome.org · Feb 25

Registration is now open for the 2025 Down Syndrome Research Forum. This year, we have added an extra day to accommodate more speakers than ever before. The forum will run online over three days from 17 to 19 March.

• Learn more: go.dselink.net/x5w8

Registration is now open for the 2025 Research Forum

Registration is now open for the 2025 Down Syndrome Research Forum. This year, we have added an additional day to accommodate more speakers than ever before. Th

go.dselink.net

Reposted by Silvana Mengoni

Making Positive Moves @positivemoves.bsky.social · Feb 4

Have you or someone know used the Making Positives Moves model or animation? youtube.com/watch?v=Oy_b... If so, we would love your feedback via our short questionnaire! herts.eu.qualtrics.com/jfe/form/SV_...

Making Positive Moves Animation Video The Research Findings

YouTube video by Making Positive Moves MPM

www.youtube.com

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Silvana Mengoni @silvanamengoni.bsky.social · Jan 23

Abstract submission deadline for the Down syndrome Research Forum is nearly here. Get submissions in by 31st Jan!
@dseinternational.bsky.social
www.down-syndrome.org/en-us/resear...

Down Syndrome Research Forum 2025

The 2025 Down Syndrome Research Forum will be held on 17th, 18th, and 19th March.

www.down-syndrome.org

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Silvana Mengoni @silvanamengoni.bsky.social · Jan 21

Super helpful to find other UH people on Bluesky! Thanks @louca-mai.bsky.social

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Silvana Mengoni @silvanamengoni.bsky.social · Jan 3

📢A journal article on parent/carer knowledge of technology devices for autistic children rounded off 2024!
link.springer.com/article/10.1...

The Knowledge and Preferences of Parents/Carers of Autistic Children and Young People about Technology Devices - Journal of Autism and Developmental Disorders

This study explored parents’/carers’ knowledge, interest, and preferences towards technology devices as support mediums for autistic children, the reasoning behind any choice and the factors associate...

link.springer.com

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Silvana Mengoni @silvanamengoni.bsky.social · Jan 3

📢New journal article to kick off 2025! A pilot evaluation of a school-based anxiety intervention onlinelibrary.wiley.com/doi/10.1002/...

Haven schools: A pilot evaluation of a school‐based programme to reduce anxiety in young people

Objectives The aim of this study was to conduct a pilot evaluation of a novel six-week school-based intervention (‘Haven Schools’) on young people's psychological wellbeing. Methods One hundred an...

onlinelibrary.wiley.com

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Irene Tuffrey-Wijne @tuffrey-wijne.com · Dec 19

Unique opportunity to do a full-time PhD in my award-winning Learning Disability Research Team, starting in March 2025!
You'll receive excellent supervision from me, Dr Andrea Bruun & Prof Jayne Price @andreabruun.bsky.social
Apply by 20th January
Please share!
www.findaphd.com/phds/project...

The experiences, needs and perspectives of staff in learning disability services when someone they support needs palliative or end of life care at Kingston University on FindAPhD.com

PhD Project - The experiences, needs and perspectives of staff in learning disability services when someone they support needs palliative or end of life care at Kingston University, listed on FindAPhD...

www.findaphd.com

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 14

Here's the link! herts.eu.qualtrics.com/jfe/form/SV_...

Study title: Development of a quality assessment tool for the clinical appraisal of Easy Read information

This survey is about Easy Read information. Easy Read information is a simplified form of written communication designed to be easily understood by people with Learning Disabilities. Easy Read informa...

herts.eu.qualtrics.com

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 13

Thanks for sharing! Here is the link for @healthlibraryholly.bsky.social survey herts.eu.qualtrics.com/jfe/form/SV_...

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 13

So much interesting and thought-provoking research at Seattle Club. Amazing job by the organisers! 👏🏻
Really enjoyed sharing WIELD 2 research. Our guidance documents and video for supporting use of Getting on with Epilepsy @booksbeyondwords.bsky.social are here www.herts.ac.uk/research/cen...

WIELD 2

University of Hertfordshire

www.herts.ac.uk

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Irene Tuffrey-Wijne @tuffrey-wijne.com · Dec 13

Hurray, we won Best Poster 1st Prize with this poster on being researchers with a learning disability employed at a university #SeattleClub2024
Some excellent talks on inclusive research today - we've come far but still have a looooong way to go

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 13

@francescaribenfors.bsky.social at Seattle Club talking about families' experience of inquests for autistic people and people with learning disabilities. A continuation of previous experience of being ignored and a lack of learning in the justice system

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 13

Here's a link for @healthlibraryholly.bsky.social questionnaire. We're looking for speech and language therapists to share their views about accessible health information herts.eu.qualtrics.com/jfe/form/SV_...

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 13

Looking forward to sharing the Making Positive Moves research findings at the Seattle Club conference with @samprowse20.bsky.social @positivemoves.bsky.social

Making Positive Moves @positivemoves.bsky.social · Dec 13

We're ready to present our poster about Making Positive Moves findings at the Seattle Club conference! Come and talk to us at the poster session @samprowse20.bsky.social @silvanamengoni.bsky.social

You can watch our animation video here too
youtu.be/Oy_bJreYte8?...

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 13

It's always slightly intimidating to present an evaluation of a resource when one of the authors is in the audience so this feedback means a lot!

Jane Bernal @jane-bernal.bsky.social · Dec 12

Detailed investigation of how healthcare professionals actually used the book, using conversational analysis. Always wanted this kind of research on @booksbeyondwords.bsky.social We knew people liked them, but not thinking d of detail of the conversations they provoke.

Irene Tuffrey-Wijne @tuffrey-wijne.com · Dec 12

Does using a pictorial story book about epilepsy improve outcomes for people with learning disabilities? Answer: yes! @booksbeyondwords.bsky.social Great presentation by @silvanamengoni.bsky.social

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Jane Bernal @jane-bernal.bsky.social · Dec 12

Detailed investigation of how healthcare professionals actually used the book, using conversational analysis. Always wanted this kind of research on @booksbeyondwords.bsky.social We knew people liked them, but not thinking d of detail of the conversations they provoke.

Irene Tuffrey-Wijne @tuffrey-wijne.com · Dec 12

Does using a pictorial story book about epilepsy improve outcomes for people with learning disabilities? Answer: yes! @booksbeyondwords.bsky.social Great presentation by @silvanamengoni.bsky.social

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 12

Great first day of Seattle Club conference. Really enjoyed hearing about all the amazing health inequalities work. Particular highlight was the Victoria and Stuart project, showcasing a toolkit to discuss end of life care planning, presented with humour and sensitivity www.victoriaandstuart.com

End Of Life Care Planning | The Victoria And Stuart Project

The Victoria and Stuart Project is about finding the best ways to help people with learning disabilities plan for the end of their life. We want to make sure that people with learning disabilities get the right care and support when they are ill and going to die. We will work with lots of people to try and get this right.

www.victoriaandstuart.com

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Irene Tuffrey-Wijne @tuffrey-wijne.com · Dec 12

Does using a pictorial story book about epilepsy improve outcomes for people with learning disabilities? Answer: yes! @booksbeyondwords.bsky.social Great presentation by @silvanamengoni.bsky.social

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 12

Holly is looking for speech and language therapists to take part in her research about accessible health information @healthlibraryholly.bsky.social

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Silvana Mengoni @silvanamengoni.bsky.social · Dec 12

@healthlibraryholly.bsky.social doing a wonderful job of sharing her PhD research on how easy read health information is created, used and evaluated at the Seattle Club conference

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