Sophia Forum
@sophiaforum.bsky.social
We exist to empower all women & trans women living with & at risk of HIV to reach their full potential, ensure their voices are heard and needs prioritized within the health sector www.sophiaforum.net
www.womenandprep.org.uk
www.womenandprep.org.uk
Reposted by Sophia Forum
Great Britain, banana republic.
December 8, 2025 at 10:39 AM
Great Britain, banana republic.
Reposted by Sophia Forum
The briefing was co-signed by the following organisations @nat.org.uk @bhiva.bsky.social @positivelyuk.bsky.social @sophiaforum.bsky.social @positiveeast.bsky.social @nazprojectlondon.bsky.social @phoenixhealthm.bsky.social
December 3, 2025 at 8:37 PM
The briefing was co-signed by the following organisations @nat.org.uk @bhiva.bsky.social @positivelyuk.bsky.social @sophiaforum.bsky.social @positiveeast.bsky.social @nazprojectlondon.bsky.social @phoenixhealthm.bsky.social
Reposted by Sophia Forum
Pre-Print available during peer-review
“Evaluation of the psychometric properties of the Episodic #Disability Questionnaire (EDQ) among women living with #HIV in the United Kingdom: a self-reported repeated measure study”
www.medrxiv.org/content/10.1...
@bhiva.bsky.social @sophiaforum.bsky.social
“Evaluation of the psychometric properties of the Episodic #Disability Questionnaire (EDQ) among women living with #HIV in the United Kingdom: a self-reported repeated measure study”
www.medrxiv.org/content/10.1...
@bhiva.bsky.social @sophiaforum.bsky.social
Evaluation of the psychometric properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the United Kingdom: a self-reported repeated measure study
Background Disability is an increasingly common health outcome as women age with HIV and multimorbidity. The Episodic Disability Questionnaire (EDQ) measures the presence, severity, and episodic natur...
www.medrxiv.org
November 4, 2025 at 7:46 PM
Pre-Print available during peer-review
“Evaluation of the psychometric properties of the Episodic #Disability Questionnaire (EDQ) among women living with #HIV in the United Kingdom: a self-reported repeated measure study”
www.medrxiv.org/content/10.1...
@bhiva.bsky.social @sophiaforum.bsky.social
“Evaluation of the psychometric properties of the Episodic #Disability Questionnaire (EDQ) among women living with #HIV in the United Kingdom: a self-reported repeated measure study”
www.medrxiv.org/content/10.1...
@bhiva.bsky.social @sophiaforum.bsky.social
Reposted by Sophia Forum
This post is general information, not medical advice.
For more in-depth, evidence-based resources on these topics:
👉 thewellproject.org
👉 pwn-usa.org
👉 icwglobal.org
👉 hiv.gov
US based service locator
👉 locator.hiv.gov
(UK) @tht.org.uk
(UK) @sophiaforum.bsky.social
For more in-depth, evidence-based resources on these topics:
👉 thewellproject.org
👉 pwn-usa.org
👉 icwglobal.org
👉 hiv.gov
US based service locator
👉 locator.hiv.gov
(UK) @tht.org.uk
(UK) @sophiaforum.bsky.social
December 1, 2025 at 5:29 AM
This post is general information, not medical advice.
For more in-depth, evidence-based resources on these topics:
👉 thewellproject.org
👉 pwn-usa.org
👉 icwglobal.org
👉 hiv.gov
US based service locator
👉 locator.hiv.gov
(UK) @tht.org.uk
(UK) @sophiaforum.bsky.social
For more in-depth, evidence-based resources on these topics:
👉 thewellproject.org
👉 pwn-usa.org
👉 icwglobal.org
👉 hiv.gov
US based service locator
👉 locator.hiv.gov
(UK) @tht.org.uk
(UK) @sophiaforum.bsky.social
Reposted by Sophia Forum
Participation Link: shareresearch.qualtrics.com/jfe/form/SV_...
October 29, 2025 at 3:03 PM
Participation Link: shareresearch.qualtrics.com/jfe/form/SV_...
Let’s reframe risk and focus on informed choices that reflect our desires and respect our lives. Find them here 👉 Risk to Reasons UK Website
October 27, 2025 at 2:10 PM
Let’s reframe risk and focus on informed choices that reflect our desires and respect our lives. Find them here 👉 Risk to Reasons UK Website
Great to see our recent Systematically excluded and ignored report mentioned in this article sophiaforum.net/women-and-hi...
September 9, 2025 at 11:27 PM
Great to see our recent Systematically excluded and ignored report mentioned in this article sophiaforum.net/women-and-hi...
Reposted by Sophia Forum
New modelling by Gilead Sciences shows we're off-track to meet current targets - but hope is not lost.
Ending the HIV epidemic by 2030
www.newstatesman.com
September 9, 2025 at 5:59 AM
New modelling by Gilead Sciences shows we're off-track to meet current targets - but hope is not lost.
Reposted by Sophia Forum
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV
_
dmuIcB6Lxi79qPs
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV
_
dmuIcB6Lxi79qPs
September 9, 2025 at 3:56 PM
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV
_
dmuIcB6Lxi79qPs
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV
_
dmuIcB6Lxi79qPs
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV
_
dmuIcB6Lxi79qPs
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV
_
dmuIcB6Lxi79qPs
September 9, 2025 at 3:56 PM
National project co-produced with communities facing the greatest barriers to PrEP. Focus on racially
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV
_
dmuIcB6Lxi79qPs
minoritised women & men, queer men of color, trans/non-binary people, sex workers, drug users,
homeless, and recent migrants. LINK:
shareresearch.qualtrics.com/jfe/form/SV
_
dmuIcB6Lxi79qPs
Sophia Forum is excited to launch a new series of blogs platforming women living with HIV to share their experiences. The first in the series is by Rebecca Mbewe & explores her journey from diagnosis to living well with HIV - please read,Share widely: sophiaforum.net/2025/07/17/a...
July 17, 2025 at 8:59 AM
Sophia Forum is excited to launch a new series of blogs platforming women living with HIV to share their experiences. The first in the series is by Rebecca Mbewe & explores her journey from diagnosis to living well with HIV - please read,Share widely: sophiaforum.net/2025/07/17/a...
Reposted by Sophia Forum
Florence Anam (GNP+) reminds us at #IAS2025: “We’re in a difficult time for science in the HIV response, but these new WHO guidelines show we’re still moving forward, for women, for children, for all of us.”
July 14, 2025 at 11:59 AM
Florence Anam (GNP+) reminds us at #IAS2025: “We’re in a difficult time for science in the HIV response, but these new WHO guidelines show we’re still moving forward, for women, for children, for all of us.”
@linkedin.com I have been hacked and trying to contact someone at LinkedIn to speak to v unsuccessfully for over 10 days. Who can I speak to please. I cannot access my account which ever way I try
July 10, 2025 at 2:03 PM
@linkedin.com I have been hacked and trying to contact someone at LinkedIn to speak to v unsuccessfully for over 10 days. Who can I speak to please. I cannot access my account which ever way I try
Reposted by Sophia Forum
#HIV organisations have come together to call for the guidelines to be withdrawn.
,
We believe they will not reduce inequality or protect everyone’s right to fairness, dignity, and respect.
Read the full statement on our website:
nat.org.uk/news/hiv-...
,
We believe they will not reduce inequality or protect everyone’s right to fairness, dignity, and respect.
Read the full statement on our website:
nat.org.uk/news/hiv-...
June 30, 2025 at 11:36 AM
#HIV organisations have come together to call for the guidelines to be withdrawn.
,
We believe they will not reduce inequality or protect everyone’s right to fairness, dignity, and respect.
Read the full statement on our website:
nat.org.uk/news/hiv-...
,
We believe they will not reduce inequality or protect everyone’s right to fairness, dignity, and respect.
Read the full statement on our website:
nat.org.uk/news/hiv-...
The 2024 Sophia Forum WISE-UP+ workshop on HIV and bone health was designed and led by women living with HIV and allies with the primary aim to improve knowledge about bone health for women ageing with HIV. sophiaforum.net/wise-up/wise... for more information and links to the report and poetry book.
June 11, 2025 at 8:02 AM
The 2024 Sophia Forum WISE-UP+ workshop on HIV and bone health was designed and led by women living with HIV and allies with the primary aim to improve knowledge about bone health for women ageing with HIV. sophiaforum.net/wise-up/wise... for more information and links to the report and poetry book.
Reposted by Sophia Forum
Eating Together isn’t just about food — it’s about connection, conversation, and community 💛
And it wouldn’t happen without our wonderful volunteers.
Thank you 🙏🏼
#VolunteersWeek #TheFoodChain #CommunityMatters #HIVSupport
And it wouldn’t happen without our wonderful volunteers.
Thank you 🙏🏼
#VolunteersWeek #TheFoodChain #CommunityMatters #HIVSupport
June 3, 2025 at 5:27 AM
Eating Together isn’t just about food — it’s about connection, conversation, and community 💛
And it wouldn’t happen without our wonderful volunteers.
Thank you 🙏🏼
#VolunteersWeek #TheFoodChain #CommunityMatters #HIVSupport
And it wouldn’t happen without our wonderful volunteers.
Thank you 🙏🏼
#VolunteersWeek #TheFoodChain #CommunityMatters #HIVSupport
Reposted by Sophia Forum
important editorial from @thelancet.com HIV:
'Adapting the UK's HIV response to a changing epidemic'
www.thelancet.com/journals/lan...
@bhiva.bsky.social @sophiaforum.bsky.social @nat.org.uk
'Adapting the UK's HIV response to a changing epidemic'
www.thelancet.com/journals/lan...
@bhiva.bsky.social @sophiaforum.bsky.social @nat.org.uk
Adapting the UK's HIV response to a changing epidemic
2025 could be a pivotal year for HIV in the UK. The national HIV Action Plan, published
in 2021, will conclude, and a new Action Plan will be launched later this year. The
UK has a smaller HIV epidemi...
www.thelancet.com
May 29, 2025 at 8:05 PM
important editorial from @thelancet.com HIV:
'Adapting the UK's HIV response to a changing epidemic'
www.thelancet.com/journals/lan...
@bhiva.bsky.social @sophiaforum.bsky.social @nat.org.uk
'Adapting the UK's HIV response to a changing epidemic'
www.thelancet.com/journals/lan...
@bhiva.bsky.social @sophiaforum.bsky.social @nat.org.uk
Reposted by Sophia Forum
Are you living with #HIV & aged over 50 in the UK or a carer for someone who is?
What are your health and care concerns about HIV and ageing?
Please help to create a "bank" of research questions to improve the health and care of older adults with HIV
app.onlinesurveys.jisc.ac.uk/s/socs/have-...
What are your health and care concerns about HIV and ageing?
Please help to create a "bank" of research questions to improve the health and care of older adults with HIV
app.onlinesurveys.jisc.ac.uk/s/socs/have-...
Have your say to improve the care of people aged over 50 living with HIV in the UK
app.onlinesurveys.jisc.ac.uk
April 30, 2025 at 2:18 PM
Are you living with #HIV & aged over 50 in the UK or a carer for someone who is?
What are your health and care concerns about HIV and ageing?
Please help to create a "bank" of research questions to improve the health and care of older adults with HIV
app.onlinesurveys.jisc.ac.uk/s/socs/have-...
What are your health and care concerns about HIV and ageing?
Please help to create a "bank" of research questions to improve the health and care of older adults with HIV
app.onlinesurveys.jisc.ac.uk/s/socs/have-...
Reposted by Sophia Forum
Juddy Otti, reflecting on the work of Africa Advocacy Foundation, @sophiaforum.bsky.social and @onevoicenetwork.bsky.social, highlighted the urgent need to partner and sustainably fund community-led organisations to tackle inequalities faced by women and Black communities.
May 20, 2025 at 3:48 PM
Juddy Otti, reflecting on the work of Africa Advocacy Foundation, @sophiaforum.bsky.social and @onevoicenetwork.bsky.social, highlighted the urgent need to partner and sustainably fund community-led organisations to tackle inequalities faced by women and Black communities.
Reposted by Sophia Forum
I wrote this while at the @bhiva.bsky.social conference so suitably inspired! #BHIVA25
@bashhuk.bsky.social @iasociety.bsky.social @tht.org.uk @nationalaidstrust.bsky.social @eltonjohnaidsfoundation.org @unaids.org @appghiv.bsky.social @sophiaforum.bsky.social @hiv-i-base.bsky.social
@bashhuk.bsky.social @iasociety.bsky.social @tht.org.uk @nationalaidstrust.bsky.social @eltonjohnaidsfoundation.org @unaids.org @appghiv.bsky.social @sophiaforum.bsky.social @hiv-i-base.bsky.social
I wrote about the devastating impact that international aid cuts will have on the HIV sector globally for @the-independent.com
“We cannot sit back and watch this humanitarian disaster unfold. We must act.”
www.independent.co.uk/voices/labou...
“We cannot sit back and watch this humanitarian disaster unfold. We must act.”
www.independent.co.uk/voices/labou...
I’m a doctor specialising in HIV – we should be very afraid of cuts to Aids funding
Hospitals will see a surge of people with Aids-related conditions that we should no longer see in this age of effective treatment, warns Dr Rageshri Dhairyawan
www.independent.co.uk
April 26, 2025 at 6:17 AM
I wrote this while at the @bhiva.bsky.social conference so suitably inspired! #BHIVA25
@bashhuk.bsky.social @iasociety.bsky.social @tht.org.uk @nationalaidstrust.bsky.social @eltonjohnaidsfoundation.org @unaids.org @appghiv.bsky.social @sophiaforum.bsky.social @hiv-i-base.bsky.social
@bashhuk.bsky.social @iasociety.bsky.social @tht.org.uk @nationalaidstrust.bsky.social @eltonjohnaidsfoundation.org @unaids.org @appghiv.bsky.social @sophiaforum.bsky.social @hiv-i-base.bsky.social
Reposted by Sophia Forum
Today the UK supreme court ruled that trans women aren't women. I strongly disagree. Gender like most aspects of the self and society is a construct.
Trans Femme Futures by Nat Raha and Mijke van der Drift has been made free to access by Pluto Press.
www.plutobooks.com/978074534941...
Trans Femme Futures by Nat Raha and Mijke van der Drift has been made free to access by Pluto Press.
www.plutobooks.com/978074534941...
Trans Femme Futures
'A brilliant, useful, and immensely moving book that deals a critical blow to the epistemic austerity of our times' - Jordy Rosenberg
'Femme' describes a ...
www.plutobooks.com
April 16, 2025 at 8:47 PM
Today the UK supreme court ruled that trans women aren't women. I strongly disagree. Gender like most aspects of the self and society is a construct.
Trans Femme Futures by Nat Raha and Mijke van der Drift has been made free to access by Pluto Press.
www.plutobooks.com/978074534941...
Trans Femme Futures by Nat Raha and Mijke van der Drift has been made free to access by Pluto Press.
www.plutobooks.com/978074534941...
Our GROWS peer support project supports women living and ageing with HIV. We have just trained 16 new peer mentors who are available to provide 1-1 or remote peer support. If you’re an HIV clinic, Advocate, Peer Mentor, Caseworker, Allied Health Professional, pharmacist etc please email Juddy below
April 16, 2025 at 6:57 AM
Our GROWS peer support project supports women living and ageing with HIV. We have just trained 16 new peer mentors who are available to provide 1-1 or remote peer support. If you’re an HIV clinic, Advocate, Peer Mentor, Caseworker, Allied Health Professional, pharmacist etc please email Juddy below
Reposted by Sophia Forum
❤️ Much needed recognition of women's contribution to the #HIV movement @sophiaforum.bsky.social @positivelyuk.bsky.social @icwglobal.bsky.social
2 years ago, for Women's History Month, Tim Murphy wrote about 15 women who were #HIV activists.
I have a lot of faves from my time leading coverage at TheBody. This piece is one of the top 10 articles I commissioned. Say their names & fight to preserve their work.
www.thebody.com/article/wome...
I have a lot of faves from my time leading coverage at TheBody. This piece is one of the top 10 articles I commissioned. Say their names & fight to preserve their work.
www.thebody.com/article/wome...
March 28, 2025 at 6:29 PM
❤️ Much needed recognition of women's contribution to the #HIV movement @sophiaforum.bsky.social @positivelyuk.bsky.social @icwglobal.bsky.social
Reposted by Sophia Forum
2 years ago, for Women's History Month, Tim Murphy wrote about 15 women who were #HIV activists.
I have a lot of faves from my time leading coverage at TheBody. This piece is one of the top 10 articles I commissioned. Say their names & fight to preserve their work.
www.thebody.com/article/wome...
I have a lot of faves from my time leading coverage at TheBody. This piece is one of the top 10 articles I commissioned. Say their names & fight to preserve their work.
www.thebody.com/article/wome...
March 27, 2025 at 10:19 PM
2 years ago, for Women's History Month, Tim Murphy wrote about 15 women who were #HIV activists.
I have a lot of faves from my time leading coverage at TheBody. This piece is one of the top 10 articles I commissioned. Say their names & fight to preserve their work.
www.thebody.com/article/wome...
I have a lot of faves from my time leading coverage at TheBody. This piece is one of the top 10 articles I commissioned. Say their names & fight to preserve their work.
www.thebody.com/article/wome...