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stripylightcic.bsky.social
Stripy Lightbulb CIC
@stripylightcic.bsky.social
300 followers 490 following 210 posts
Award-winning #SocialEnterprise working to improve the lives of people living with #MEcfs by educating professionals who have a duty of care. CPD accredited online training courses. www.stripylightbulb.com
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · Nov 14
Please share widely.

The 'M.E-Friendly Hospital Charter' and all associated content can now be found in one place on our website!

Check it out and get involved! www.stripylightbulb.com/me-friendly-...

#NhS #Healthcare #pwME #SevereME
M.E. Friendly Hospital Charter | Stripy Lightbulb CIC
It's intended to relieve M.E. patients of self-advocacy burdens by ensuring hospitals adhere to compassionate and M.E. appropriate care standards.
www.stripylightbulb.com
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 1d
M.E./C.F.S. means cognitive dysfunction, exhaustion & often pain, but it’s often misunderstood. Teachers who learn about it can spot the signs, adapt lessons & change lives. Knowledge is power. Compassion is impact. #Teachers
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 3d
We are thrilled to announce..... 👇

See our Board of Directors here - www.stripylightbulb.com/about/people/

#pwME #SocialEnterprise #Governance
Statement written on a white square background with pale yellow brush marks across the centre. Statement says - We’re delighted to welcome John Miller to the Board of Directors at Stripy Lightbulb CIC. John brings a wealth of experience in governance, risk management, and organisational culture, with a career spanning operational leadership, compliance, and digital transformation. From serving in the British Army’s Royal Tank Regiment to leading large-scale NHS projects at Synertec and overseeing operations at Quiddity Health, John’s track record of stakeholder engagement and business transformation is second to none. His belief that 'health, support, and opportunity should be accessible to all, without exception' aligns powerfully with our mission. At Stripy Lightbulb CIC, we work to improve understanding and support for the M.E./C.F.S. community through industry-specific online training for professionals in hashtag#healthcare and hashtag#education, and hashtag#employers. Our goal is to reduce stigma, improve care, and fund desperately needed research. John’s expertise will help us strengthen our impact, scale our reach, and ensure our governance remains as robust as our purpose. 💡 Welcome aboard, John, we’re thrilled to have you with us as we continue to challenge misconceptions and drive change for the M.E./C.F.S. community.
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 4d
Stripy Lightbulb CIC offers e-learning for professionals supporting M.E./C.F.S. and Long Covid patients. Same symptoms, same needs, same responsibility to care. 💬 #CPD
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 5d
M.E./C.F.S. and Long Covid share symptoms, and support needs. Stripy Lightbulb CIC’s e-learning helps #healthcare, #education & #employers provide informed care and support. Let’s stop the struggle. Start learning. 🌟 #CPD
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 6d
Stripy Lightbulb CIC stands with those left behind. No treatment, no support, no recognition. M.E./C.F.S. patients deserve better. Let’s fight stigma with education. 💡 #CPD
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 6d
M.E./C.F.S. patients feel abandoned. No treatment, little support, suicide risk is much higher than national average. NICE guidelines exist, but NHS adherence is minimal. We must do better. #MEcfs #Healthcare
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 7d
The economic impact of M.E./C.F.S. is huge, but ignored. People are dropping out of work & school, wrongly denied benefits, and left to struggle. Education on the illness isn’t optional, it’s survival. #Disability
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 8d
Students with M.E./C.F.S. are dropping out. Why? Educators don’t know how to support them. It’s not ‘just tiredness’, it’s a disabling condition. #InclusiveEducation
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 8d
Professionals with a duty of care, learn how to support those with M.E./C.F.S.(and Long Covid). Stripy Lightbulb CIC’s e-learning gives you the tools to do better. Improved knowledge saves energy. Literally. 💡 #ELearning #Training #CPD
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 9d
Many with ‘mild’ M.E./C.F.S. could work, if workplaces were flexible. Instead, they’re forced out, denied disability support & left in financial crisis. #Disability #WorkplaceInclusion
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 9d
Teachers: understanding M.E./C.F.S. isn’t optional, it’s essential. One of your students may be silently battling this condition. Your improved knowledgebase = empathy, support & better outcomes. Let’s make classrooms inclusive for all 💡 #Education #Learning
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 10d
Behind every M.E./C.F.S. diagnosis is a person fighting to be believed. Stigma isolates. Education empowers. Join Stripy Lightbulb CIC in changing the narrative. 💬 #MEcfs #EndTheStigma #CPD

stripylightbulb.com
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 16d
Get posting #pwME.

👀 youtube.com/shorts/ERPYv...

Copious amounts of private emails/letters are not working.

Constructive responses from DWP and/or DHSC would be very welcome.

Blog with info - stripylightbulb.com/2025/07/21/c...

FYI @georgemonbiot.bsky.social

#pwME #MEcfs #Politics
Get Posting pwME!
YouTube video by Stripy Lightbulb CIC
youtube.com
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 20d
Teachers, employers, HR leaders - ME/CFS affects your people too.
Stripy Lightbulb CIC’s training isn’t just for doctors.
It’s for anyone with a duty of care.
💡 Learn how to adapt, support, and lead with empathy.
🔗 stripylightbulb.com

#Learn #Training
M.E./C.F.S. Training for Professionals - Stripy Lightbulb CIC
We offer CPD Accredited courses about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to professionals. Our training is also Long Covid Relevant.
stripylightbulb.com
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 21d
Healthcare professionals:
Would you treat a heart condition without training?
Then why guess with ME/CFS?
Stripy Lightbulb CIC offers a CPD-accredited course designed to help you support patients with dignity and honesty.
💬 Sign up. Make a difference.
📲 stripylightbulb.com
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 22d
We are very happy to have signed this letter and fully support this Chronic Living Therapy campaign.

chroniclivingtherapy.com/open-letter-...

#pwME
Open Letter to BACP magazine, Therapy Today - Chronic Living Therapy
A recent article in the magazine for members of the British Association of Counselling & Psychotherapy (BACP) has highlighted again the need for research, factual investigation and informed debate abo...
chroniclivingtherapy.com
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 22d
ME/CFS is NOT “just tiredness.”
It’s a global health crisis, a neurological condition, and one of the most misunderstood illnesses in healthcare.
Stripy Lightbulb CIC’s training helps professionals get it right.
🎓 Learn. Understand. Support.
🔗 stripylightbulb.com
M.E./C.F.S. Training for Professionals - Stripy Lightbulb CIC
We offer CPD Accredited courses about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to professionals. Our training is also Long Covid Relevant.
stripylightbulb.com
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 23d
Stripy Lightbulb CIC is campaigning for people living with ME/CFS who are too often ignored.
🛏️ #BEDforSevereME highlights the 25% who are bedbound.
📢 #DWPCampaigns fight for fairer support.
Be part of the change: stripylightbulb.com
#MEcfs #DisabilityRights #InvisibleIllness
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 24d
Professionals: Are you equipped to support people with ME/CFS?

There is a knowledge gap.

Stripy Lightbulb CIC’s CPD-accredited course fills that gap, with real insight, practical solutions, and compassion.
👉 Sign up today and earn your badge of understanding: stripylightbulb.com
M.E./C.F.S. Training for Professionals - Stripy Lightbulb CIC
We offer CPD Accredited courses about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to professionals. Our training is also Long Covid Relevant.
stripylightbulb.com
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 24d
ME/CFS patients deserve better.
Better understanding. Better care. Better outcomes.
Stripy Lightbulb CIC’s training empowers professionals to be part of that change.
💪 Be the ally patients need.
🎓 Enroll now: stripylightbulb.com
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 24d
Healthwatch is being scrapped. For the M.E. community, that means one less way to be heard.
“In house” solutions won’t work unless the NHS becomes truly patient-centred, before the closure
Don’t silence the patient voice.
📢 localdemocracyandhealth.com/2025/09/14/d...
#Healthwatch #PatientVoice #PwME
Don’t Silence the Patient Voice: Why Abolishing Healthwatch is a Mistake
Abolishing local Healthwatch is NOT a foregone conclusion – now is the time for MPs and national and local allies to defend independent public voice in health and care The NHS 10 year plan fl…
localdemocracyandhealth.com
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · 28d
'Stripy Lightbulb CIC exists to educate, advocate, and innovate. If we were in Government, we’d lead with compassion, science, and pragmatism. Because investing in health is investing in the future.'

www.stripylightbulb.com/2025/09/09/c...

#Politics #UK
Confronting the Cost of Chronic Illness and Rebuilding a Healthier, Fairer UK | Stripy Lightbulb CIC
Confronting the cost of chronic illness is key to rebuilding a healthier, fairer UK. The nation's crisis is a symptom of systemic failure post-COVID.
www.stripylightbulb.com
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 9
M.E./C.F.S. is the no.1 health cause for long-term school absence in the #UK. Are you equipped to support your students? Our CPD-accredited course gives you the tools to help them thrive. Enrol today. #MECFS #CPD #EdChat #InclusiveEducation

www.stripylightbulb.com/training/edu...
Empty white chair is pushed underneath a brown wooden desk. Photo from Pexels - Cottonbro Studio
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stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 9
Confronting the cost of chronic illness is key to rebuilding a healthier, fairer UK. The nation's crisis is a symptom of systemic failure post-COVID.

www.stripylightbulb.com/2025/09/09/c...

#Politics #Economics #PublicHealth
Confronting the Cost of Chronic Illness and Rebuilding a Healthier, Fairer UK | Stripy Lightbulb CIC
Confronting the cost of chronic illness is key to rebuilding a healthier, fairer UK. The nation's crisis is a symptom of systemic failure post-COVID.
www.stripylightbulb.com
stripylightcic.bsky.social
Stripy Lightbulb CIC @stripylightcic.bsky.social · Sep 8
We posted an update on our WCA / DWP work on Friday.

In case you missed it, the whole video can be found here - www.youtube.com/live/g7CoGRU...

#PwME #MEcfs #Politics #DWP
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