CRID - Unique Patient ID for rare disease clinical research
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Paula
Paula
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British Paediatric Surveillance Unit
British Paediatric Surveillance Unit
@bpsu.bsky.social
Research Elements
Research Elements
@reselements.bsky.social
American Epilepsy Society
American Epilepsy Society
@amepilepsysoc.bsky.social
CURE Epilepsy
CURE Epilepsy
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emelinefavreau.bsky.social
emelinefavreau.bsky.social
@emelinefavreau.bsky.social
Print Play Protect
Print Play Protect
@printplayprotect.bsky.social
The MED13L Foundation
The MED13L Foundation
@med13lfoundation.bsky.social
Inovalon
Inovalon
@inovalon.bsky.social
CRT Foundations of Data Science
CRT Foundations of Data Science
@crt-datascience.bsky.social
antonia-y.bsky.social
antonia-y.bsky.social
@antonia-y.bsky.social
Karel "CaCO3" Berka
Karel "CaCO3" Berka
@krapnik.bsky.social
European Health Futures Forum
European Health Futures Forum
@ehff.bsky.social
Nordic Wellbeing Academy
Nordic Wellbeing Academy
@wellbeingacademy.bsky.social
Lars Münter
Lars Münter
@larsmuenter.bsky.social
myHealth@myHands Project
myHealth@myHands Project
@myhealthmyhands.bsky.social
Open Research and Public Engagement Roadmap
Open Research and Public Engagement Roadmap
@engagedroadmap.bsky.social
The WEATHER Project is funded by the NIHR
The WEATHER Project is funded by the NIHR
@weatherprojectnihr.bsky.social
Renegade Research
Renegade Research
@renegaderesearch.bsky.social
Crystal M Williams
Crystal M Williams
@cmdclear.bsky.social
Theresa Whitlock-Wild
Theresa Whitlock-Wild
@wild1979.bsky.social
Philandra Costello
Philandra Costello
@philandra.bsky.social
Jijer
Jijer
@jijer.bsky.social
Neckel Lab
Neckel Lab
@neckellab.bsky.social
Mary Morlino
Mary Morlino
@marymorlino.bsky.social
40:40 Recruitment
40:40 Recruitment
@4040rec.bsky.social
Yong Li
Yong Li
@precisionmedicine.bsky.social
Sünne van Gemert-Godbersen
Sünne van Gemert-Godbersen
@sunnevgg.bsky.social
Kutand Alkım Bayer
Kutand Alkım Bayer
@kutandalkim.bsky.social
Chess ELO Academy
Chess ELO Academy
@chesseloacademy.bsky.social
Rosa HP Sca
Rosa HP Sca
@rosca26.bsky.social
Parc de Recerca Biomèdica de Barcelona
Parc de Recerca Biomèdica de Barcelona
@prbb.org
Medics for Rare Disease
Medics for Rare Disease
@medicsforrare.bsky.social
Okay, so about that…
Okay, so about that…
@okayaboutthat.bsky.social
Nersey Rastan
Nersey Rastan
@nerseyrastan.bsky.social
wsf-uk.bsky.social
wsf-uk.bsky.social
@wsf-uk.bsky.social
Cambridge Clinical Mitochondrial Research Group
Cambridge Clinical Mitochondrial Research Group
@mitocamb.bsky.social
Rare Disease Research Network_RDRN
Rare Disease Research Network_RDRN
@rd-rn.bsky.social
Cambridge Rare Disease Network
Cambridge Rare Disease Network
@camrare.bsky.social
Razz-Ma-Tazz
Razz-Ma-Tazz
@women-r-smarter.bsky.social
Activity Uplift
Activity Uplift
@activityuplift.bsky.social
Junior Einsteins Science Club®
Junior Einsteins Science Club®
@junioreinsteins.bsky.social
Barbara Rachelson
Barbara Rachelson
@barbararvt.bsky.social
Gabi Stands With Ukraine
Gabi Stands With Ukraine
@madgabmd.bsky.social
Rare Disease Clinical Trial Network
Rare Disease Clinical Trial Network
@rarediseasectn.bsky.social
CGD Society
CGD Society
@cgdsociety.bsky.social
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