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Torie Robinson @torierobinson.bsky.social · 15d

😲 I was shocked! On Epilepsy Sparks Insights I chat with Dr Ewan Nurse 🤩🇦🇺 about #seizure diaries 📝.

How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life.

Watch here 👉🏻 shorturl.at/SJLxN

#Epilepsy

Torie Robinson @torierobinson.bsky.social · 22d

Chatting with neurologist Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital re:
〰️ Metabolic epilepsies & the future
〰️ Patients we can’t yet help 😞
〰️ Advocacy, gene therapy, SUDEP & mental health
Listen/watch, here 👇🏻!

🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU

#epilepsy #neurology #podcast

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Torie Robinson @torierobinson.bsky.social · 25d

The fabulous Prof Georgia Ramantani and I meet again! At the #IEC2025 conference! Georgia’s podcast episodes were:
- Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and;
- The Sacrifices & Benefits of a Hemispherectomy”.
Check them out here 👇🏻!
youtu.be/u6Sjsh5TuDo

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Torie Robinson @torierobinson.bsky.social · 29d

😃 Did you know about metabolic epilepsies? Did you know that a lack of vitamin B6 💊 can lead to an #epilepsy 😱?! Hear from Dr Phillip Pearl 🤩🇺🇸 from Boston Children's Hospital & Harvard Medical School about inherited #metabolic epilepsies! 👇🏻

🎙️ Podcast shorturl.at/5entK
🎬 YouTube shorturl.at/ghltc

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Torie Robinson @torierobinson.bsky.social · Sep 9

Check him out! The cool neurologist (and upcoming podcast guest 🥳) Ching Soong Khoo from Malaysia 🇲🇾 - at the International Epilepsy Congress in Lisbon 🇵🇹!
And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand!

#epilepsy #neurology #IEC2025

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Torie Robinson @torierobinson.bsky.social · Sep 9

Meeting in person really makes a difference! 😀 I meet our Epilepsy Sparks Insights podcast guest Consultant Neurologist Elisabeth Doran 🤩 🇮🇪 face to face for the first time! 😀😀 Along with upcoming guest Claire Behan 🇮🇪! All the at International Epilepsy Congress in Lisbon 🇵🇹!

#IEC2025 #epilepsy

Torie Robinson @torierobinson.bsky.social · Sep 5

Had an absolute blast chatting with Asst. Prof. Simona Balestrini 🤩🌍🇬🇧 🇮🇹 for the latest episode of Epilepsy Sparks Insights!

Learn about Transcranial Magnetic Stimulation here 👇🏻 and its potential as a future epilepsy treatment!

Watch here 🎬 youtu.be/hyLxVtc6ud8

Torie Robinson @torierobinson.bsky.social · Sep 3

🤩 Our team at the International Epilepsy Congress 2025 in Lisbon 🇵🇹! It was such fun, with laughs and great questions from the audience! It was in interactive 1.5 hour session with topics including sex, SUDEP, suicide, and more!

#epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology

Torie Robinson @torierobinson.bsky.social · Sep 2

Lisbon icons - at sunset! 🌅:
🏰 Castelo de São Jorge
🗽 The Cristo Rei statue
🌉 The Ponte 25 de Abril suspension bridge
🌅 Lovely sunset

#lisbon #castle #portugal

Torie Robinson @torierobinson.bsky.social · Sep 2

Gorgeous, utterly fresh seafood 🐟🐙 in Lisbon! Fish doesn’t smell fishy - because it’s FRESH!

#lisbon #seafood #Portugal #foodlover #foodgasm #fish

Torie Robinson @torierobinson.bsky.social · Aug 31

Day 2 at the International Epilepsy Congress in Lisbon!
Tomorrow I’m part of a fun talk “From Awkward to Empowered: Having truly 'patient-centered' conversations in epilepsy care and research” with Milena Gandy, Heidi Munger Clary, Lucas Orellana, & Brad Kamitaki!
Join us!!

#epilepsy #iec2025

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Torie Robinson @torierobinson.bsky.social · Aug 30

👏🏻 Honestly, a fab talk by Reeta Kälviäinen, Manuel Toledo, and Lawrence Hirsch at the Satellite Symposium - Medscape: “The Clock Is Ticking: Optimizing Ongoing Seizure Response!”
Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)!
#epilepsy

Torie Robinson @torierobinson.bsky.social · Aug 30

🥳 Reetta Kalviainen led the fab session about Epilepsy Experience Experts/Consultants and how researchers can and should work with them! Great questions and conversation had between Reetta, Jacqueline, Eli Cripps, I, & the audience at the International Epilepsy Congress in Lisbon!
#IEC2025 #epilepsy

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Torie Robinson @torierobinson.bsky.social · Aug 28

Thank you so much to João Ferreira & Miguel França for a brilliant NEUROSENSE EU summit in Porto 🇵🇹! I was chuffed to be part of the round table where I spoke of my Public Patient Involvement, along with fellow leads Prof Sándor Beniczky, Jose Angel Aibar, and Prof. Torbjörn Tomson.
#epilepsy #sudep

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Torie Robinson @torierobinson.bsky.social · Aug 27

Join us today in Porto 🇵🇹 at the NEUROSENSE EU summit where we hear all about the project, our results so far, and the potential to predict and help prevent #SUDEP!

#epilepsy #neurotech #neurology

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Torie Robinson @torierobinson.bsky.social · Aug 24

Oh yes…. 😢

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Torie Robinson @torierobinson.bsky.social · Jul 31

🎙️ Just released a new Epilepsy Sparks episode: “They Aren’t FAKE! Non-Epileptic Events” with Dr Parthvi Ravat 🤩 - a brill chat about #FND & #DissociativeSeizures / #NonEpilepticEvents, and the overlap with #epilepsy!
Real symptoms. Real science. Real hope. 👇🏻
🎧 shorturl.at/iiRc1
🎬 shorturl.at/dzczm

Reposted by Torie Robinson

Rikke S. Møller @rikkesmoller.bsky.social · Jul 5

Exciting Announcement‼️

Thrilled to be working on the program for the 7th Dianalund International Conference on #Epilepsy 🤩

⭐️ The topic is "Developmental and Epileptic Encephalopathies: From Mechanisms to Action" 🤩

📅 May 6-8, 2026, in Køge, Denmark 🇩🇰

#DICE2026
@torierobinson.bsky.social

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Torie Robinson @torierobinson.bsky.social · Jun 23

The fabulous neurologist Tissa Wijeratne and I at the #Helsinki - for the European Academy of Neurology conference 2025!
Check out Tissa’s QR code for the World Federation of Neurology 👇🏻!

#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia #migrain

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Torie Robinson @torierobinson.bsky.social · Jun 22

Descending into #Helsinki - for the European Academy of Neurology conference 2025!

#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia

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Torie Robinson @torierobinson.bsky.social · Jun 22

See you soon #Helsinki 🇫🇮! Can’t wait to be at, speak at, and moderate at the European Academy of Neurology Congress!

#epilepsy #ean2025 #neurology

Finnair aircraft (A321) at London Heathrow Airport, Terminal 3. Adjacent to the Control Tower.

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Torie Robinson @torierobinson.bsky.social · May 23

Hear why neuroscientists 🧠🧑‍🔬 should be valued, globally 🗺️! Prof Helen Scharfman 🤩 explains to us her #epilepsy research using mossy cells and the potential understanding them further may bring to people with anepilepsy and #anxiety! 👇🏻

▶️ YouTube youtu.be/KHBqEYT1ThY
🎙️ Podcast shorturl.at/e7XWY

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Torie Robinson @torierobinson.bsky.social · May 15

🧑‍⚕️📺 For ~30 years, Dr. Zarine
Mogal 🤩 has been a force in epilepsy care & awareness in Pakistan 🇵🇰 - even using TV ads to fight stigma and encourage diagnoses & treatment!
Zarine’s story is inspiring. Watch/listen/read her inspiring story 👇🏻!

📹 YouTube youtu.be/zHio3etPTt0
🎙️ Podcast shorturl.at/fDgYs

Revolutionising Epilepsy Perceptions & Care in Pakistan - Dr. Zarine Mogal

YouTube video by Epilepsy Sparks Insights

youtu.be

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Torie Robinson @torierobinson.bsky.social · May 1

🚨 People with an #epilepsy face a much higher risk of #suicide—yet it’s rarely spoken of.
Psychiatrist Prof. Andrea Cipriani joins us on Epilepsy Sparks Insights 🎙️ to explore why lived experience, neurology & #psychiatry must unite. 👇🏻

🎧 shorturl.at/Wh3RF
📹 youtu.be/J8P-irnBiQc
✍️ shorturl.at/Eh41T

Torie Robinson @torierobinson.bsky.social · Apr 24

So pleased to moderate the talk by star neurologist @rkalviainen.bsky.social 🤩 who was talking about rapid early seizure termination ( #REST) and the Finnish 🇫🇮 epilepsy care pathway model; inc collab of clinicians & patient orgs to improve care!
#UCBEpilepsySummit2025 #neurology #epilepsy

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