Recent claims linking autism to Tylenol or vaccines are not supported by science.

We stand firmly against misinformation that fuels stigma, fear, and distrust in healthcare. Our community values evidence-based information, respect for lived experience, and the right to safe, informed care.

We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices.

Visit the page & complete the survey below

UK HIV care for #transgender and non-binary people: comment on #EHRC guidelines by 30th June.

i-base.info/htb/51331

This is a really important opportunity to tell the EHRC why their guidance is unworkable.

Find guidance from @transactualuk.bsky.social‬ and others via our link to help you respond.

🚨 Gilead’s lenacapavir could be a game-changer for #HIV — but at $28K/year, it’s priced out of reach for most.

Generics could cost <$50.

We’re calling on Gilead to make it affordable for all, not just the privileged few.

Please find UK-CAB public response below.

📢 #NHSEngland has updated the TAF prescribing policy – mainly to clarify eligibility & introduce a simple approval form (Blueteq).

✅ No changes to patient access.
📄 Clinicians just need to submit a tick-box form.

More updates on ART prescription coming soon – we will keep you posted.
#HIV

UK #lenacapavir Early Access Programme closed to new referrals as @england.nhs.uk and #Gilead fail to agree a price after more than two years:

i-base.info/htb/50940

NHS England took responsibility for approving access to this life-saving drug – this delay and result is unacceptable.

#HIVsky #MDR

@bhiva.bsky.social @drlaurajwaters.bsky.social @tristanjbarber.bsky.social @bashhuk.bsky.social @nicopolicek.bsky.social @positivelyuk.bsky.social @nat.org.uk @tht.org.uk @georgehousetrust.bsky.social @waverleycare.bsky.social @metrocharity.bsky.social @positiveeast.bsky.social

🚨 The Lenacapavir Early Access Programme has closed to new patients. This life-saving #HIV treatment is now out of reach for those who need it most.

We urge NHS England & Gilead to act now. Access to Lenacapavir must be restored. Urgently.

Community organisations: speak up. Silence costs lives.

Thanks to @janeshep.bsky.social for producing this beautiful riso print to raise funds for HIV i-Base:

i-base.info/htb/51064

It celebrates #TheDenverPrinciples, an essential #HIVactivist document that all people living with #HIV should know about.

Purchase at the link to support us.

#HIVsky

Our next UK-CAB members meeting will be on 20th of June 2025.

You can visit UK-CAB forum for the details and registration form.

We will announce the programme on the forum once it is ready.

Looking forward to seeing many of our members in June!

UK-CAB deeply concerned about GSK/ViiV diversity policy implications globally, despite UK/EU assurances.

Erosion anywhere sets a dangerous precedent. Our community is alarmed by US policy shifts & PEPFAR threats.

Please read our statement below.

#HIV #Diversity #GlobalHealth #UKCAB

@bhiva.bsky.social @bashhuk.bsky.social @nationalaidstrust.bsky.social @positivelyuk.bsky.social @tristanjbarber.bsky.social @drlaurajwaters.bsky.social @londonftci.bsky.social

New @abpi.bsky.social guidance risks excluding #HIV advocates from conferences — suggesting we’re too “impressionable” to hear about treatments.

We reject this.

People with HIV are informed, critical partners in progress.

You can read our response below.

#NothingAboutUsWithoutUs #HIVAdvocacy

The UK Community Advisory Board (UK-CAB) is now on BlueSky!

Follow and share with your networks.

#HIV #HIVAdvocacy #Advocate #HIVtreatment